OMG Lynn!! How often must you get it filled? I would pray to God that wasnt every month. I think my doctor said like maybe every 3 months but IDK, I couldnt afford that. Rob I hope you can get it and NOT have that cost involved!! Again best of luck!!
Amy Shultz in Ohio Date: Fri, 22 Feb 2013 16:36:52 -0800 From: lynnemye...@yahoo.com Subject: Re: [TMIC] Baclofen pump To: robthe...@aol.com; tmic-list@eskimo.com Rob I have had a pump for quite a few years now, I use it to control clonus in my legs. The only down side I have found is the cost involved with getting the pump filled. Even with insurance my co-pay is over $600 every time I have to go in. From: Robert Pall <robthe...@aol.com> To: tmic-list@eskimo.com Sent: Tuesday, February 12, 2013 11:31 AM Subject: [TMIC] Baclofen pump I have just seen a new neuro who recommended the baclofen pump. He had me do a trial where he inserted a needle into my spine and injected a small dose of baclofen. Almost immediately I felt the banding in my legs improve and my walking was much better as well. I guess I am just worried about the downside if any of the pump. I would love to hear from people presently using the pump and hear their side of the story. Please keep in mind that I presently walk unassisted and drive (and swim). Ju7st want to make sure the upside is far better than the downside! All the best! Rob in New Jersey