Re: [TMIC] Baclofen pump
I have to get it filled every 6 months. It was every three at first, but once my dose was stable they used a stronger concentration of Baclofen and moved it out. From: amy shultz mic...@hotmail.com To: lynnemye...@yahoo.com; TM group tmic-list@eskimo.com Sent: Saturday, February 23, 2013 9:22 PM Subject: RE: [TMIC] Baclofen pump OMG Lynn!! How often must you get it filled? I would pray to God that wasnt every month. I think my doctor said like maybe every 3 months but IDK, I couldnt afford that. Rob I hope you can get it and NOT have that cost involved!! Again best of luck!! Amy Shultz in Ohio Date: Fri, 22 Feb 2013 16:36:52 -0800 From: lynnemye...@yahoo.com Subject: Re: [TMIC] Baclofen pump To: robthe...@aol.com; tmic-list@eskimo.com Rob I have had a pump for quite a few years now, I use it to control clonus in my legs. The only down side I have found is the cost involved with getting the pump filled. Even with insurance my co-pay is over $600 every time I have to go in. From: Robert Pall robthe...@aol.com To: tmic-list@eskimo.com Sent: Tuesday, February 12, 2013 11:31 AM Subject: [TMIC] Baclofen pump I have just seen a new neuro who recommended the baclofen pump. He had me do a trial where he inserted a needle into my spine and injected a small dose of baclofen. Almost immediately I felt the banding in my legs improve and my walking was much better as well. I guess I am just worried about the downside if any of the pump. I would love to hear from people presently using the pump and hear their side of the story. Please keep in mind that I presently walk unassisted and drive (and swim). Ju7st want to make sure the upside is far better than the downside! All the best! Rob in New Jersey
Re: [TMIC] Baclofen pump
Yes paying for each refill is standard. They actually charge for in office surgery each time they access it to refill it. We have a private insurance through my husbands work and our co-pay is 20% each time. From: heyjude48...@aol.com heyjude48...@aol.com To: lynnemye...@yahoo.com Sent: Friday, February 22, 2013 9:09 PM Subject: Re: [TMIC] Baclofen pump Lynn, I had no idea we would have to pay each time the pump needed to be refilled. Is that a standard thing? What kind of insurance do you have? That really scares me because no one mentioned that aspect of it. Jude, Michigan In a message dated 2/22/2013 7:37:04 P.M. Eastern Standard Time, lynnemye...@yahoo.com writes: Rob I have had a pump for quite a few years now, I use it to control clonus in my legs. The only down side I have found is the cost involved with getting the pump filled. Even with insurance my co-pay is over $600 every time I have to go in. From: Robert Pall robthe...@aol.com To: tmic-list@eskimo.com Sent: Tuesday, February 12, 2013 11:31 AM Subject: [TMIC] Baclofen pump I have just seen a new neuro who recommended the baclofen pump. He had me do a trial where he inserted a needle into my spine and injected a small dose of baclofen. Almost immediately I felt the banding in my legs improve and my walking was much better as well. I guess I am just worried about the downside if any of the pump. I would love to hear from people presently using the pump and hear their side of the story. Please keep in mind that I presently walk unassisted and drive (and swim). Ju7st want to make sure the upside is far better than the downside! All the best! Rob in New Jersey
[TMIC] Unidentified subject!
I read a the posts and reply occasionally. Hope everyone is keeping Well in the northern hemisphere. Cheers Shirley Sent from my iPhone
