That's extraordinary!
How wonderful!
Dalton
Dalton H. Garis
Flushing, New York
USA
From: margaret shearer margaretshea...@hotmail.com
Date: Tue, 23 Jul 2013 17:33:11 +0100
To: Robert Pall robthe...@aol.com
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Subject: Re: [TMIC] Baclofin Pump
Resent-From: tmic-list@eskimo.com
Resent-Date: Tue, 23 Jul 2013 09:33:14 -0700 (PDT)
Great updates Robert I have enjoyed reading them .
Margaret from TM Scotland Support Group UK
Sent from Margaret's iPad
On 23 Jul 2013, at 17:24, Robert Pall robthe...@aol.com wrote:
This is my third Journal report since receiving my Baclofin Pump on 6/28/13.
After the first couple of weeks where I did have some post operation problems
(leaking spinal fluid) everything has gotten better and better. I am
currently weaning my self off of Lyrica where I was taking 450 mg per day I
am now down to 75 mg and will start 50 mg tomorrow and after 10 days be off
the drug entirely. I have had my6 pump adjusted twice since the surgery and I
am now in effect taking twice the dosage that was being used when the pump
was initially implanted. My scars are slowly going away ( I had my cuts
closed with glue instead of actual stitches. I am back to swimming one mile
of laps per day and walking approximately one mile per day with my pulling 20
month old 75 lb Golden Retriever. I am walking almost normally with no
tightening or extra banding due to walking or exercise. In fact the only
thing I cannot do is run...and the great thing is that when walking I believe
I look normal. After 4 weeks I can honestly say that I am feeling the best
I have in 15 years. I consider the decision to have the pump put in me the
most significant thing I have ever done to treat6 my TM. closing I could not
be happier than I am now.
For the people living in the Tri-State arera I would highly recommend my
current Neurologist Doctor Neil Holland who not only told me about the
benefits of the pump ...he also stated that the pump is totally underutilized
when treating conditions such as TM and MS. I strongly urge all TM'rs to at
least get the trial to see if they are good candidates for the procedure. The
trial takes about 3 hours and is done in the hospital (in my case by Dr.
Holland). After only a few minutes after receiving the trial injection I was
amazed by the difference in my banding and spasticity. I finally feel I have
become proactive with my condition instead of simply looking for and using
new drugs to slightly alleviate the
