RE: [TMIC]

[Harlow, Diane]

My TM started in September 2010 with numbness in my feet. I thought I had sat 
wrong and they had just fallen asleep. By the next day the numbness had moved 
up to my waist and I lost bladder control. The following day I was numb up to 
my arm pits and having issues with my breathing. I had severe numbness in my 
hands and mid-section. I never experienced any pain, just deep numbness. My 
lesions are at C2  C3.


Diane

From: Butcher, Bernie (SFS) [mailto:bernie.butc...@honeywell.com]
Sent: Monday, June 24, 2013 9:58 AM
To: Janice Nichols; tmic-list@eskimo.com
Subject: RE: [TMIC]

Hi Janice – the onset of TM (which was changed to MS) began with tingling in 
left arm, the whole arm. Then left leg. I still cannot lift my left leg. No 
banding ever

BERNARD BUTCHER
Honeywell Engineering
516-577-5868
From: Janice Nichols [mailto:jannic...@gmail.com]
Sent: Monday, June 24, 2013 10:39 AM
To: tmic-list@eskimo.commailto:tmic-list@eskimo.com
Subject: [TMIC]

Hello!

When I have read the stories of how TM first attacked you all, some/many have 
said that you had a severe pain around the
middle of your body – banding.And for some, it has stayed with you.I 
would like a response from all of you as to whether
or not your TM started with the severe pain or not. Also, is it still with 
you today or did it get better with time/meds.
I would like to be able to give my doc some kind of percentage of how TM has 
hit myself and others.   Would really appreciate
responses.

Thanks,

Janice
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[TMIC] RE: Provigil for TM?

[Harlow, Diane]

Hi - I am new to the group. Diagnosed with TM in 2010 and struggle with extreme 
fatigue. I have used Provigil and Nuvigil for the last year. The medication 
gives me a better quality of life. I still have fatigue, but it does help me 
make it through the day. The only struggle I have had is with insurance. They 
are very hesitant to pay, because it is a very expensive medication. I finally 
got it approved, but it took a while.

Good luck


From: Dalton Garis [mailto:malugss...@gmail.com]
Sent: Thursday, July 19, 2012 9:32 AM
To: bobberino; Cindy McLeroy; Susan Kleinz; celr...@aol.com
Cc: tmic-l...@eskimo.net
Subject: [TMIC] Re: Provigil for TM?

Fellow sufferers;

Have any of you heard of Provigil?  Used for narcolepsy, it has found use by MS 
patients to counter the extreme fatigue common with MS; and our situation is 
often similar in some respects.

I get this fatigue, sometimes so bad that I stumble from lunch, slurring my 
speech, and collapse on anything available and must be carried to a bed.

Would Provigil be useful??

Who has heard of this med?

Dalton H. Garis
Flushing, Queens
New York, USA
Mobile: 718-838-0437
Landline: 917-285-2047
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not the intended recipient or the employee or agent responsible for delivering 
it to the intended recipient, any dissemination, publication or copying of this 
e-mail is strictly prohibited. The sender does not accept any responsibility 
for any loss, disruption or damage to your data or computer system that may 
occur while using data contained in, or transmitted with, this e-mail.If you 
have received this e-mail in error, please immediately notify us by return 
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