Re: [TMIC] More Lesions??
*Recurrent TM also occurs in Neuromyelitis Optica (Devic's). Roughly 80% of all NMO patients are relapsing.* ** *Grace (NMO since 2005)*
Re: [TMIC] More Lesions??
Jill, recurrent TM is rare, and most likely caused by some other disease like M S. Good luck with the solumedrol. It made me feel horribly premenstral- jt was then I realized that I never wanted to be a woman! F
Re: [TMIC] More Lesions??
Well I went to the ER yesterday and got admitted of course and today finally got a full body MRI. Maybe tomorrow they'll start the solumedrol because they said I need an IV bag of it. I never had that before, so we'll see. I'm not really fond of the neuro on call because he says TM doesn't recur! I said well it has before. Ok so my family practice resident just walked out and said I have 2 new lesions at t 4 and 5 that werent there before. It still showed my one at T10 from years ago but I'll have to read the report again and write what it said. I'll write back when I know more. I still have no solumedrol drip!! --- On Sat, 1/31/09, lynne myers lynnemye...@yahoo.com wrote: From: lynne myers lynnemye...@yahoo.com Subject: Re: [TMIC] Exacerbation? Medrol Dose pack? To: Jill Z jillybean60...@yahoo.com Date: Saturday, January 31, 2009, 6:09 AM I have used the dose packs quite a few times with good success for exacerbations. Have only taken higher dose once and was on a month taper with that, it worked about the same but caused all kinds of problems with my adreanal glands so wont do that again. Lynne --- On Fri, 1/30/09, Jill Z jillybean60...@yahoo.com wrote: From: Jill Z jillybean60...@yahoo.com Subject: [TMIC] Exacerbation? Medrol Dose pack? To: tmic-list@eskimo.com Date: Friday, January 30, 2009, 9:08 PM Hi Everyone, I had another mild episode/exacerbation of TM the other night. I am a little weaker today than yesterday.(left leg weakness, right leg burning nerve pain) I couldn't get a hold of my regular neuro, but got a script for the Medrol dose pack from one of the docs in the ER. Normally my doc had me on 90mg to start, then taper down for a couple weeks. Should I take this lower dose? Is this better than nothing? Luckily this episode was not nearly as bad as the last one Any help would be appreciated! Thanks, Jill
Re: [TMIC] More Lesions??
Jill, dear...you will be in our prayers. Please let us know what is going on...Jeanne ---Original Message--- From: Jill Z Date: 2/1/2009 8:18:34 PM To: lynnemye...@yahoo.com; tmic-list@eskimo.com Subject: Re: [TMIC] More Lesions?? Well I went to the ER yesterday and got admitted of course and today finally got a full body MRI. Maybe tomorrow they'll start the solumedrol because they said I need an IV bag of it. I never had that before, so we'll see. I'm not really fond of the neuro on call because he says TM doesn't recur! I said well it has before. Ok so my family practice resident just walked out and said I have 2 new lesions at t 4 and 5 that werent there before. It still showed my one at T10 from years ago but I'll have to read the report again and write what it said. I'll write back when I know more. I still have no solumedrol drip!! --- On Sat, 1/31/09, lynne myers lynnemye...@yahoo.com wrote: From: lynne myers lynnemye...@yahoo.com Subject: Re: [TMIC] Exacerbation? Medrol Dose pack? To: Jill Z jillybean60...@yahoo.com Date: Saturday, January 31, 2009, 6:09 AM I have used the dose packs quite a few times with good success for exacerbations. Have only taken higher dose once and was on a month taper with that, it worked about the same but caused all kinds of problems with my adreanal glands so wont do that again. Lynne --- On Fri, 1/30/09, Jill Z jillybean60...@yahoo.com wrote: From: Jill Z jillybean60...@yahoo.com Subject: [TMIC] Exacerbation? Medrol Dose pack? To: tmic-list@eskimo.com Date: Friday, January 30, 2009, 9:08 PM Hi Everyone, I had another mild episode/exacerbation of TM the other night. I am a little weaker today than yesterday.(left leg weakness, right leg burning nerve pain) I couldn't get a hold of my regular neuro, but got a script for the Medrol dose pack from one of the docs in the ER. Normally my doc had me on 90mg to start, then taper down for a couple weeks. Should I take this lower dose? Is this better than nothing? Luckily this episode was not nearly as bad as the last one Any help would be appreciated! Thanks, Jill
Re: [TMIC] More Lesions??
Jill, do you have family with you??? Jeanne ---Original Message--- From: Jill Z Date: 2/1/2009 8:18:34 PM To: lynnemye...@yahoo.com; tmic-list@eskimo.com Subject: Re: [TMIC] More Lesions?? Well I went to the ER yesterday and got admitted of course and today finally got a full body MRI. Maybe tomorrow they'll start the solumedrol because they said I need an IV bag of it. I never had that before, so we'll see. I'm not really fond of the neuro on call because he says TM doesn't recur! I said well it has before. Ok so my family practice resident just walked out and said I have 2 new lesions at t 4 and 5 that werent there before. It still showed my one at T10 from years ago but I'll have to read the report again and write what it said. I'll write back when I know more. I still have no solumedrol drip!! --- On Sat, 1/31/09, lynne myers lynnemye...@yahoo.com wrote: From: lynne myers lynnemye...@yahoo.com Subject: Re: [TMIC] Exacerbation? Medrol Dose pack? To: Jill Z jillybean60...@yahoo.com Date: Saturday, January 31, 2009, 6:09 AM I have used the dose packs quite a few times with good success for exacerbations. Have only taken higher dose once and was on a month taper with that, it worked about the same but caused all kinds of problems with my adreanal glands so wont do that again. Lynne --- On Fri, 1/30/09, Jill Z jillybean60...@yahoo.com wrote: From: Jill Z jillybean60...@yahoo.com Subject: [TMIC] Exacerbation? Medrol Dose pack? To: tmic-list@eskimo.com Date: Friday, January 30, 2009, 9:08 PM Hi Everyone, I had another mild episode/exacerbation of TM the other night. I am a little weaker today than yesterday.(left leg weakness, right leg burning nerve pain) I couldn't get a hold of my regular neuro, but got a script for the Medrol dose pack from one of the docs in the ER. Normally my doc had me on 90mg to start, then taper down for a couple weeks. Should I take this lower dose? Is this better than nothing? Luckily this episode was not nearly as bad as the last one Any help would be appreciated! Thanks, Jill 17.jpg
