Re: [TMIC] New onset of TM - little girl

[jrushton]

 Oh, God (and I mean that), I couldn't agree more.  The only way I would
feel okay with that is if Dr. Kerr agreed with them.  
 
---Original Message---
 
From: roseofr...@aol.com
Date: 7/17/2009 2:18:36 PM
To: jrush...@columbiaenergyllc.com
Subject: Re: [TMIC] New onset of TM - little girl
 
Oh Jeanne..If you know that childs Mom tell her NOT to let
them put that child on chemo!  They will totally destroy her
immune system and that is the LAST thing that child needs.
Boy do I ever hope Dr. Kerr talks to the Mom and gives her
the same advice!
They need to let the steroids do their work and get her into
PT.and on vitamins.
 
I have lifted her in prayerif our Father feels the same way
I do, He will keep the doctors from doing the wrong thing.
   Hugs,  Lynn



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Re: [TMIC] New onset of TM - little girl

[Grace M.]

*It depends on the underlying cause of her TM.  If it is something like NMO
(As in my case.) then immunosuppression via chemo would be something that a
neuro would definitely consider.  If it is idiopathic---then, no.*
**
*Respectfully, *
*Grace*  *(NMO since 2005)*

Re: [TMIC] New onset of TM - little girl

[L T CHERPESKI]

Jeanne, first of all Colby is of course in my prayers.  I just can't believe 
she is from Dayton, your intimate little town. My goodness - so rare.

Ok you're upset that the doctors want to put her on chemo.  I have been on 
chemo since the beginning of TM 7 years ago.  The reason for this is because I 
also have Sjogrens/Lupus, which is what caused my TM in the first place.  My 
immune system needs to be suppressed so that hopefully it will not attack my 
spine again.  I have re-current TM because of my other autoimmune diseases.  It 
is NOT unusual for the doctors to find a positive ANA when running all the 
tests when she first presented with symptoms.  If she does not have 
RA,Sjogrens,Lupus or some other autoimmune disease or re-current TM I would 
question the chemo definitely. But if she does have one of the above, it is 
very important to get her on the chemo as soon as possible to avoid any relapse.

How old is Colby now?  I'm so glad the doctors knew to get her on steroids - I 
hope they gave her IV Solumedrol??  It's a great idea if the doctor will call 
Dr. Kerr - this sounds like it could be a complicated case.  I will keep Colby 
and her family in my thoughts and prayers.  Please keep us updated?  Thanks 
Jeanne

hugs,
Linda (Eagle,ID)
  - Original Message - 
  From: jrushtonmailto:jrush...@columbiaenergyllc.com 
  To: tmicmailto:tmic-list@eskimo.com 
  Sent: Friday, July 17, 2009 8:05 AM
  Subject: [TMIC] New onset of TM - little girl


  Prayers, please, again for a little girl by the name of Colby 
from here in Dayton who is in the Children's Hospital in Spokane with the new 
onset of TM.  They did give her the steroids and now want to put her on chemo!  
Mom just called me and I said to call Dr. Kerr and beg to talk to him or one of 
his associates and to please have her doctors do the same before they start the 
chemo.  She will let us know what happens.  Gunny, can you help with this, 
maybe open some doors for her and her family? Jeanne 
 
   
   
   
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