Re: [TMIC] RE: tmic-digest Digest V2008 #158
What is ITP? One thing that comes and goes is a dull pain under my left rib cage. I have asked my doctor about this and have never got an answer. Linda in Pa **Planning your summer road trip? Check out AOL Travel Guides. (http://travel.aol.com/travel-guide/united-states?ncid=aoltrv000316)
Re: [TMIC] RE: tmic-digest Digest V2008 #158
ITP is a disorder of the blood that affects the immune system. ITP stands for immune thrombocytopenic purpua. It occurs when your body destroys its own platelets in the same way it would destry harmful invaders susch as bacteria.Usually when bacteria are dected the body makes antibodies which then coat the bacteria, helping the immune system to destroy them. In itp the body mistakenly produces antibodies against its own platelets. The spleen is the organ in which invading bacteria coated with antibodies are destroyed because one of the functions of the spleen is to filter the blood. When antibodies mistakenly coat platelets, these platelets are also destroy in the spleen. Therefore the spleen in my case will have to be removed. From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] CC: tmic-list@eskimo.com Subject: Re: [TMIC] RE: tmic-digest Digest V2008 #158 Date: Sat, 5 Apr 2008 07:57:37 EDT What is ITP? One thing that comes and goes is a dull pain under my left rib cage. I have asked my doctor about this and have never got an answer. Linda in Pa **Planning your summer road trip? Check out AOL Travel Guides. (http://travel.aol.com/travel-guide/united-states?ncid=aoltrv000316)
Re: [TMIC] RE: tmic-digest Digest V2008 #158
thank you for your words of ecouragment ; It is truly helpful. To all of us who have TM please have your platelet count done. It is part and parcel of TM I am certainly not saying that you will get ITP my surgeon; who is cute as a button; informs me that my case is a surprise happening ; Another curve ball thrown at me; Please don't fret' I will hit the ball out of the park. hopefully the bases will be loaded and the top of the ninth inning; I love you all and am grateful to have you with me; please don't forget to pray for Jude; She is my inspiration and strenth as are all of you who have TM From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Subject: Re: [TMIC] RE: tmic-digest Digest V2008 #158 Date: Sat, 5 Apr 2008 13:04:25 EDT WOW, I KNOW WHAT IT IS LINDA BUT NEVER KNEW ANYONE THAT HAD IT. I HOPE ALL GOES WELL. YOU DO NOT HAVE TO WORRY ABOUT YOUR SPLEEN NOT BEING THERE. I KNOW MANY PATIENTS AND SOME FRIENDS WHO DO NOT HAVE A SPLEEN FOR OTHER REASONS. BUT WHITH TM AND WHY THEY REMOVE IT YOU WILL BE MONITORED CAREFULLY. I WISH YOU THE BEST AND MAY GOD BLESS YOU TIAD PAM **Planning your summer road trip? Check out AOL Travel Guides. (http://travel.aol.com/travel-guide/united-states?ncid=aoltrv000316)
[TMIC] RE: tmic-digest Digest V2008 #158
Spasms vs Spastic : Spasm: is a sudden, involuntary contraction of a muscle, a group of muscles, or a hollow organ, or a similarly sudden contraction of an orifice. It is sometimes accompanied by a sudden burst of pain, but is usually harmless and ceases after a few minutes. Spasmodic muscle contraction may also be due to a large number of medical conditions, however, including the dystonias. Spastic: The term generally originates from spasticity, a medical condition characterized by hypertonia, or a high degree of muscle tightness. Spasticity underlies spastic diplegia and many other forms of cerebral palsy. Spasms come and go.. being spastic, like your leg means that the muscle DOES not know how to relax at all, when put into action, so to speak. Like when your MD held your leg up and it stays there and/or slowly lowers without you doing any of the work. The baclofen will help with this and can improve your walking ability (if you are able to walk). The most COMMON side effects persist or become bothersome: Constipation; dizziness; drowsiness; fatigue; headache; nausea; sleeplessness. Your body will become accustomed to this and you start at a low dose in any case, and titrate up slowly to be able to adjust. Meloxicam is for your arthritis... it's an NSAID (nonsteroidal anti-inflammatory drug) The most COMMON side effects persist or become bothersome: Constipation; diarrhea; dizziness; gas; headache; heartburn; nausea; stomach upset; trouble sleeping. FYI www.drugs.com for when you want to look up drugs. Marieke Date: Fri, 4 Apr 2008 08:34:27 -0700 From: [EMAIL PROTECTED] Subject: tmic-digest Digest V2008 #158 To: [EMAIL PROTECTED] --Forwarded Message Attachment-- tmic-digest Digest Volume 2008 : Issue 158 Today's Topics: [TMIC] med question - meloxicam and [ randy rankin [EMAIL PROTECTED] ] [TMIC] RE: tmic-digest Digest V2008 [ marieke dufresne [EMAIL PROTECTED] ] --Forwarded Message Attachment-- Date: Thu, 3 Apr 2008 17:02:03 -0700 From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: [TMIC] med question - meloxicam and baclofen Ok - what's the scoop on these drugs. Have any of you all taken them? Did they help? Where there any significant side effects? I was sent to a bone doc. to have a look. He wants me to try baclofen for spasms, (i didn't know that I was having them - everyone else says that I'm not have spasms - I'm so confussed on the term spasms. - first neuro talked about my legs being spastic because they wouldn't move - he pick them up and the right leg would stick in mid area lol - he'd have to push it back down. When I mentioned spasm later, everyone would look at me oddly and say that I wasn't having spasms. Now this guy is giving me meds for spasms and says that my right leg shows signs of spasticity) He said my vert was great - mild degeneration in mid T and at L-5 S-1 - which I already knew about. The 'arthritis' is genetic/ getting older he said - but it is unusual for my age. He said my 2001 car accident didn't have anything to do with it - but my chiro told me in 01 that it would come in time because it almost always shows up in a few years after a major collision. Anyway - what's the scoop on all these meds. before I decide to go ahead and take them I just wanted find out if it is worth the time. You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost.--Forwarded Message Attachment-- Date: Fri, 4 Apr 2008 02:56:50 + From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: [TMIC] RE: tmic-digest Digest V2008 #156 re: Gaylon Nurisng School Hi, I am Marieke, 32 yrs old, TM since 2004 (hit me at T1, so I was totally paralyzed from mid-chest down). I now walk with a cane and a long (full, KAFO) brace. I take meds 4x a day, for spasticity, neuro pain, low BP, bowels, bladder... AND I will be graduating from nursing school in 5 weeks! I have 4 weeks of clinical left (16 days) and a week of exams and then a few weeks off then I start work (cross your fingers I have an interview next week). I will not lie, nursing school is hard, freaking hard! Not just because of the course work, but because of TM and what it's left me with (or without) I get physically exhausted and basically have NO energy for anything else. Especially now that I have had 4 days a week of clinical... My back hurts, my leg (good side) hurts, more so after the 4 days of 8 hr shifts on my feet. While it's true you can choose where you want to work when you are done, you still have to be able to get through school and it's requirements in clinical (skills as well as required hours). When I started I had no idea if I would be able to get through ONE day of clinical a week the first year, let alone 2 days (in 2nd year) and 4 days in 3rd! BUT I made it... somehow... not sure how! LOL If you think that you can get through the clinical days your
RE: [TMIC] RE: tmic-digest Digest V2008 #158
no I contacted tm at the ripr old age of 21. I have had two relapses since then. I am now 60 years young ' have had tmsince 2001. It is progressive. I now have contacted ITP and have to undergo Iv immunglobulin five days a week five hours a day; prior to having my spleen removed on April 29th of this month. Life is full of surprises From: jrushton [EMAIL PROTECTED] To: Gerry Surette [EMAIL PROTECTED] Subject: RE: [TMIC] RE: tmic-digest Digest V2008 #158 Date: Fri, 4 Apr 2008 16:03:42 -0500 (Central Daylight Time) Gerry, you were also a nurse??? Jeanne ---Original Message--- From: Gerry Surette Date: 4/4/2008 2:50:57 PM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] RE: tmic-digest Digest V2008 #158 HI; this is Gerry: I am proud of you; I have been following your progress. with your daily clinical days being on your feet 10 to 12 hiours . I know how you must be feeling. been there done that. don't have the tee shirt though. I am going to have my spleen removed on the 29th of april, at the montreal general hospital. would you by any chance be doing your clinical days at that hospital? if so it would be an honor and privilege to meet you. You are an inspiraation ; I have done what you are doing with your life; I know it is hard but the rewards; as far as I am concerned ; are worth it. please keep in touch sincerely gerry From: marieke dufresne [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: [TMIC] RE: tmic-digest Digest V2008 #158 Date: Fri, 4 Apr 2008 19:10:59 + Spasms vs Spastic : Spasm: is a sudden, involuntary contraction of a muscle, a group of muscles, or a hollow organ, or a similarly sudden contraction of an orifice. It is sometimes accompanied by a sudden burst of pain, but is usually harmless and ceases after a few minutes. Spasmodic muscle contraction may also be due to a large number of medical conditions, however, including the dystonias. Spastic: The term generally originates from spasticity, a medical condition characterized by hypertonia, or a high degree of muscle tightness. Spasticity underlies spastic diplegia and many other forms of cerebral palsy. Spasms come and go.. being spastic, like your leg means that the muscle DOES not know how to relax at all, when put into action, so to speak. Like when your MD held your leg up and it stays there and/or slowly lowers without you doing any of the work. The baclofen will help with this and can improve your walking ability (if you are able to walk). The most COMMON side effects persist or become bothersome: Constipation; dizziness; drowsiness; fatigue; headache; nausea; sleeplessness. Your body will become accustomed to this and you start at a low dose in any case, and titrate up slowly to be able to adjust. Meloxicam is for your arthritis... it's an NSAID (nonsteroidal anti-inflammatory drug) The most COMMON side effects persist or become bothersome: Constipation; diarrhea; dizziness; gas; headache; heartburn; nausea; stomach upset; trouble sleeping. FYI www.drugs.com for when you want to look up drugs. Marieke Date: Fri, 4 Apr 2008 08:34:27 -0700 From: [EMAIL PROTECTED] Subject: tmic-digest Digest V2008 #158 To: [EMAIL PROTECTED] --Forwarded Message Attachment-- tmic-digest Digest Volume 2008 : Issue 158 Today's Topics: [TMIC] med question - meloxicam and [ randy rankin [EMAIL PROTECTED] ] [TMIC] RE: tmic-digest Digest V2008 [ marieke dufresne [EMAIL PROTECTED] ] --Forwarded Message Attachment-- Date: Thu, 3 Apr 2008 17:02:03 -0700 From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: [TMIC] med question - meloxicam and baclofen Ok - what's the scoop on these drugs. Have any of you all taken them? Did they help? Where there any significant side effects? I was sent to a bone doc. to have a look. He wants me to try baclofen for spasms, (i didn't know that I was having them - everyone else says that I'm not have spasms - I'm so confussed on the term spasms. - first neuro talked about my legs being spastic because they wouldn't move - he pick them up and the right leg would stick in mid area lol - he'd have to push it back down. When I mentioned spasm later, everyone would look at me oddly and say that I wasn't having spasms. Now this guy is giving me meds for spasms and says that my right leg shows signs of spasticity) He said my vert was great - mild degeneration in mid T and at L-5 S-1 - which I already knew about. The 'arthritis' is genetic/ getting older he said - but it is unusual for my age. He said my 2001 car accident didn't have anything to do with it - but my chiro told me in 01 that it would come in time because it almost always shows up in a few years after a major collision. Anyway - what's the scoop on all these meds. before I decide to go ahead and take them I just wanted find out if it is worth the time. You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost.--Forwarded
