Re: [TMIC] Sjogren's (Amended)
*Hi Linda, * ** *Sjogrens was one of the diseases considered whenever I was still in the diagnostic process, before they had received the results of my NMO IgG test. MS was not considered as a possibility at that time, the reason being that my paralysis and optic nerve involvement was bilateral, which is not typical for MS attacks. This also allowed them to quickly eliminate the possibility of stroke. Diseases considered included Sjogren's, Lupus, ADEM (Quickly eliminated because there was not yet any brain involvement.), Sarcoid, and Vasculitis. Once all of my clinical results were complete, including the NMO IgG, it was a done deal.* ** *As an aside, my neuro opth thinks that I have now developed Sjogrens in addition to NMO, though I had a negative SS-A, Ro, SS-B and La with no Rheumatic Factor. My eyes are so dry right now, that I have scratches on the cornea. Same deal going on with the mouth. I have to see her every six months for a complete workup due to NMO, so I'll no doubt find out more at that visit. * ** *Stay warm!* *Gracie * Grace, thanks for posting this Sjogrens site. I have to say, of all the info I have read, this is the ONLY place that has actually mentioned Transverse Myelitis - up to 1% with Sjogrens! My doctor explained it to me when I got TM, but I had no idea what he was talking about - still sitting there in a fog with a totally numb body. I kind of feel like the doctor explained it to me again today, except today I actually know what he was talking about! I don't know, maybe ignorance was bliss at that time... Regina, did you read the articles and were you a bit surprised? Linda - Original Message - *From:* Grace M. grace...@gmail.com *To:* regina...@sbcglobal.net *Cc:* tmic-list@eskimo.com *Sent:* Thursday, January 07, 2010 4:23 PM *Subject:* Fwd: [TMIC] Sjogren's (Amended) *Hi Regina, * ** *They've actually identified the autoimmune antibody that is a marker for Devic's NMO. Although one can have a concurrent diagnosis of NMO AND Sjogren's (Which is extremely rare.), I don't think that they are related with the exception that both are autoimmune diseases, at leat I have not yet read anything to that effect in the literature. * ** *No Regina, the optic damage that occurs in Devic's NMO is limited to the optic nerve and disk. It is much more destructive that the ON which is encountered in MS, and permanent blindness is a relatively common occurence. * ** *Did your doctor not explain to you that Sjogren's can affect parts of the body other than the eyes?* ** * Sjogren's Subtypes Primary Sjogren's Disease VS Sjogren's Syndrome Apr 24, 2006 http://www.suite101.com/daily.cfm/2006-04-24 Elaine Moorehttp://www.suite101.com/profile.cfm/daisyelaine This article describes the clinical and diagnostic differences between primary and secondary Sjogren's syndrome. Sjogren's disease is a chronic autoimmune disease that occurs as a localized syndrome primarily causing mouth and eye dryness (sicca syndrome) or as a systemic disease affecting multiple organs. Sjogren's is suspected of affecting about 2-3 million Americans, 90 percent of them women. Frequently, the condition remains unrecognized and untreated, and when treated, the average diagnosis is reported to take 3.5 years. Women in their fourth decade of life are most likely to be affected. The complaint most often listed at the time of diagnosis is mouth dryness. In Sjogren's syndrome, white blood cells known as lymphocytes invade the exocrine glands. The exocrine glands produce needed moisture for lubricating and bathing the body's organs. Continued at: http://autoimmunedisease.suite101.com/article.cfm/sjogrenssubtypes Grace *
[TMIC] Sjogren's
Linda, Ever since I was diagnosed with Sjogren's, I had had to use eye drops often and regularly. I wonder if it causes more than just dry eyes. You say that you are glad that you didn't know the condition could lead to TM. I wouldn't even have known what TM was. But as I noted earlier, I read on a doctor's report that the central nervous system could be affected. Lupus was another problem the rhumatologist warned me about. I'm also wondering if Devic's and Sjogren have anything in common since the eyes are affected. The optic nerve and the lacrimal glands are close together, aren't they? Grace, you would know. Janice, I'm beginning to sound like you with questions; you're rubbing off on me. Take care, R
Re: [TMIC] Sjogren's
*Hi Regina, * ** *They've actually identified the autoimmune antibody that is a marker for Devic's NMO. Although one can have a concurrent diagnosis of NMO AND Sjogren's (Which is extremely rare.), I don't think that they are related with the exception that both are autoimmune diseases, at leat I have not yet read anything to that effect in the literature.* ** *dDd you doctor not explain to you that Sjogren's can affect parts of the body other than the eyes?* ** * Sjogren's Subtypes Primary Sjogren's Disease VS Sjogren's Syndrome Apr 24, 2006 http://www.suite101.com/daily.cfm/2006-04-24 Elaine Moorehttp://www.suite101.com/profile.cfm/daisyelaine This article describes the clinical and diagnostic differences between primary and secondary Sjogren's syndrome. Sjogren's disease is a chronic autoimmune disease that occurs as a localized syndrome primarily causing mouth and eye dryness (sicca syndrome) or as a systemic disease affecting multiple organs. Sjogren's is suspected of affecting about 2-3 million Americans, 90 percent of them women. Frequently, the condition remains unrecognized and untreated, and when treated, the average diagnosis is reported to take 3.5 years. Women in their fourth decade of life are most likely to be affected. The complaint most often listed at the time of diagnosis is mouth dryness. In Sjogren's syndrome, white blood cells known as lymphocytes invade the exocrine glands. The exocrine glands produce needed moisture for lubricating and bathing the body's organs. Continued at: http://autoimmunedisease.suite101.com/article.cfm/sjogrenssubtypes Grace *
Fwd: [TMIC] Sjogren's (Amended)
*Hi Regina, * ** *They've actually identified the autoimmune antibody that is a marker for Devic's NMO. Although one can have a concurrent diagnosis of NMO AND Sjogren's (Which is extremely rare.), I don't think that they are related with the exception that both are autoimmune diseases, at leat I have not yet read anything to that effect in the literature. * ** *No Regina, the optic damage that occurs in Devic's NMO is limited to the optic nerve and disk. It is much more destructive that the ON which is encountered in MS, and permanent blindness is a relatively common occurence. * ** *Did your doctor not explain to you that Sjogren's can affect parts of the body other than the eyes?* ** * Sjogren's Subtypes Primary Sjogren's Disease VS Sjogren's Syndrome Apr 24, 2006 http://www.suite101.com/daily.cfm/2006-04-24 Elaine Moorehttp://www.suite101.com/profile.cfm/daisyelaine This article describes the clinical and diagnostic differences between primary and secondary Sjogren's syndrome. Sjogren's disease is a chronic autoimmune disease that occurs as a localized syndrome primarily causing mouth and eye dryness (sicca syndrome) or as a systemic disease affecting multiple organs. Sjogren's is suspected of affecting about 2-3 million Americans, 90 percent of them women. Frequently, the condition remains unrecognized and untreated, and when treated, the average diagnosis is reported to take 3.5 years. Women in their fourth decade of life are most likely to be affected. The complaint most often listed at the time of diagnosis is mouth dryness. In Sjogren's syndrome, white blood cells known as lymphocytes invade the exocrine glands. The exocrine glands produce needed moisture for lubricating and bathing the body's organs. Continued at: http://autoimmunedisease.suite101.com/article.cfm/sjogrenssubtypes Grace *
Re: [TMIC] Sjogren's
Sorry about that! By the way, I do not know what Sjogrens entails - can someone help me? Janice From: Regina Rummel Sent: Thursday, January 07, 2010 4:34 PM To: tmic-list@eskimo.com Subject: [TMIC] Sjogren's Linda, Ever since I was diagnosed with Sjogren's, I had had to use eye drops often and regularly. I wonder if it causes more than just dry eyes. You say that you are glad that you didn't know the condition could lead to TM. I wouldn't even have known what TM was. But as I noted earlier, I read on a doctor's report that the central nervous system could be affected. Lupus was another problem the rhumatologist warned me about. I'm also wondering if Devic's and Sjogren have anything in common since the eyes are affected. The optic nerve and the lacrimal glands are close together, aren't they? Grace, you would know. Janice, I'm beginning to sound like you with questions; you're rubbing off on me. Take care, R
Re: [TMIC] Sjogren's
Thanks, Grace.Now I at least know what you are dealing with.You would think TM is enough to deal with. Hope it disappears! Janice From: Grace M. Sent: Thursday, January 07, 2010 5:19 PM To: regina...@sbcglobal.net Cc: tmic-l...@eskimo.net Subject: Re: [TMIC] Sjogren's Hi Regina, They've actually identified the autoimmune antibody that is a marker for Devic's NMO. Although one can have a concurrent diagnosis of NMO AND Sjogren's (Which is extremely rare.), I don't think that they are related with the exception that both are autoimmune diseases, at leat I have not yet read anything to that effect in the literature. dDd you doctor not explain to you that Sjogren's can affect parts of the body other than the eyes? Sjogren's Subtypes Primary Sjogren's Disease VS Sjogren's Syndrome Apr 24, 2006 Elaine Moore This article describes the clinical and diagnostic differences between primary and secondary Sjogren's syndrome. Sjogren's disease is a chronic autoimmune disease that occurs as a localized syndrome primarily causing mouth and eye dryness (sicca syndrome) or as a systemic disease affecting multiple organs. Sjogren's is suspected of affecting about 2-3 million Americans, 90 percent of them women. Frequently, the condition remains unrecognized and untreated, and when treated, the average diagnosis is reported to take 3.5 years. Women in their fourth decade of life are most likely to be affected. The complaint most often listed at the time of diagnosis is mouth dryness. In Sjogren's syndrome, white blood cells known as lymphocytes invade the exocrine glands. The exocrine glands produce needed moisture for lubricating and bathing the body's organs. Continued at: http://autoimmunedisease.suite101.com/article.cfm/sjogrenssubtypes Grace
Re: [TMIC] Sjogren's (Amended)
Grace, thanks for posting this Sjogrens site. I have to say, of all the info I have read, this is the ONLY place that has actually mentioned Transverse Myelitis - up to 1% with Sjogrens! My doctor explained it to me when I got TM, but I had no idea what he was talking about - still sitting there in a fog with a totally numb body. I kind of feel like the doctor explained it to me again today, except today I actually know what he was talking about! I don't know, maybe ignorance was bliss at that time... Regina, did you read the articles and were you a bit surprised? Linda - Original Message - From: Grace M.mailto:grace...@gmail.com To: regina...@sbcglobal.netmailto:regina...@sbcglobal.net Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Thursday, January 07, 2010 4:23 PM Subject: Fwd: [TMIC] Sjogren's (Amended) Hi Regina, They've actually identified the autoimmune antibody that is a marker for Devic's NMO. Although one can have a concurrent diagnosis of NMO AND Sjogren's (Which is extremely rare.), I don't think that they are related with the exception that both are autoimmune diseases, at leat I have not yet read anything to that effect in the literature. No Regina, the optic damage that occurs in Devic's NMO is limited to the optic nerve and disk. It is much more destructive that the ON which is encountered in MS, and permanent blindness is a relatively common occurence. Did your doctor not explain to you that Sjogren's can affect parts of the body other than the eyes? Sjogren's Subtypes Primary Sjogren's Disease VS Sjogren's Syndrome Apr 24, 2006http://www.suite101.com/daily.cfm/2006-04-24 Elaine Moorehttp://www.suite101.com/profile.cfm/daisyelaine This article describes the clinical and diagnostic differences between primary and secondary Sjogren's syndrome. Sjogren's disease is a chronic autoimmune disease that occurs as a localized syndrome primarily causing mouth and eye dryness (sicca syndrome) or as a systemic disease affecting multiple organs. Sjogren's is suspected of affecting about 2-3 million Americans, 90 percent of them women. Frequently, the condition remains unrecognized and untreated, and when treated, the average diagnosis is reported to take 3.5 years. Women in their fourth decade of life are most likely to be affected. The complaint most often listed at the time of diagnosis is mouth dryness. In Sjogren's syndrome, white blood cells known as lymphocytes invade the exocrine glands. The exocrine glands produce needed moisture for lubricating and bathing the body's organs. Continued at: http://autoimmunedisease.suite101.com/article.cfm/sjogrenssubtypeshttp://autoimmunedisease.suite101.com/article.cfm/sjogrenssubtypes Grace
