Fwd: [TMIC] try this

2012-07-27 Thread Bridget Skinner
I believe I didn't send this to the whole group when I replied. And if I
did, I apologize for sending it again. I was concerned about using the
Aspercreme Heat Pain Relieving Gel because of my inability to feel heat but
my husband had a good idea -- just try it on one little spot and if it
bothers me than its an easy wipe off. Well it didn't

---
I take 80mg a day of Baclofen and still have problems although it REALLY
helps me. 20mg 4x a day. Doc is going to keep me at that. So, I thought I
would just get used to what it isn't taking care of. Went to CVS this
evening and purchased the Fast Acting Therapy Aspercreme Heat Pain
Relieving Gel Hopefully this is the right kind. (little nervous since I
can't feel heat) But I am so excited to see if this works. I will use it
tonight and let y'all know how it worked for me.

Please, if anyone has tried it and has problems with topical pain or the
inability to feel heat let me know if it makes a difference.

THANK YOU

Forwarded conversation
Subject: [TMIC] try this


From: *jeff bernier* jeffsmokeea...@yahoo.com
Date: Thu, Jul 26, 2012 at 10:16 AM
To: tmic-list@eskimo.com, msersl...@yahoogroups.com


for those of you with problems with spastisity heres a trick i learned.i
have a baclofen pump and take 5 mg clonipin daily and still get spasms in
my legs.i have found that aspercream hot for arthritis works outstanding,i
had heard this from another person with ms and it worked.
--
From: *john snodgrass* jcs...@yahoo.com
Date: Thu, Jul 26, 2012 at 10:28 AM
To: tmic-list@eskimo.com tmic-list@eskimo.com


i had heard of using hot muscle rub but never tried it but i might now.

thanks Jeff

  --
*From:* jeff bernier jeffsmokeea...@yahoo.com
*To:* tmic-list@eskimo.com; msersl...@yahoogroups.com
*Sent:* Thursday, July 26, 2012 11:16 AM
*Subject:* [TMIC] try this

for those of you with problems with spastisity heres a trick i learned.i
have a baclofen pump and take 5 mg clonipin daily and still get spasms in
my legs.i have found that aspercream hot for arthritis works outstanding,i
had heard this from another person with ms and it worked.



--
From: *Janice Nichols* jan...@centurytel.net
Date: Thu, Jul 26, 2012 at 10:32 AM
To: jeff bernier jeffsmokeea...@yahoo.com, tmic-list@eskimo.com,
msersl...@yahoogroups.com


  Thanks.I take baclofen and it works most every nite, but then I have
the occasional problem nite. Will try aspercream.
Janice


 *From:* jeff bernier jeffsmokeea...@yahoo.com
*Sent:* Thursday, July 26, 2012 10:16 AM
*To:* tmic-list@eskimo.com ; msersl...@yahoogroups.com
*Subject:* [TMIC] try this

  for those of you with problems with spastisity heres a trick i learned.i
have a baclofen pump and take 5 mg clonipin daily and still get spasms in
my legs.i have found that aspercream hot for arthritis works outstanding,i
had heard this from another person with ms and it worked.

--
From: ** em...@telephonelady.com
Date: Thu, Jul 26, 2012 at 12:43 PM
To: jeff bernier jeffsmokeea...@yahoo.com, tmic-list@eskimo.com,
msersl...@yahoogroups.com


**
Do you put it directly on the muscles that are spasing?
Sent from my Verizon Wireless BlackBerry
--
*From: * jeff bernier jeffsmokeea...@yahoo.com
*Date: *Thu, 26 Jul 2012 08:16:02 -0700 (PDT)
*To: *tmic-list@eskimo.com; msersl...@yahoogroups.com
*Subject: *[TMIC] try this

for those of you with problems with spastisity heres a trick i learned.i
have a baclofen pump and take 5 mg clonipin daily and still get spasms in
my legs.i have found that aspercream hot for arthritis works outstanding,i
had heard this from another person with ms and it worked.

--
From: *Bridget Skinner* ibridg...@gmail.com
Date: Thu, Jul 26, 2012 at 7:59 PM
To: Janice Nichols jan...@centurytel.net


I take 80mg a day of Baclofen and still have problems although it REALLY
helps me. 20mg 4x a day. Doc is going to keep me at that. So, I thought I
would just get used to what it isn't taking care of. Went to CVS this
evening and purchased the Fast Acting Therapy Aspercreme Heat Pain
Relieving Gel Hopefully this is the right kind. (little nervous since I
can't feel heat) But I am so excited to see if this works. I will use it
tonight and let y'all know how it worked for me.

Please, if anyone has tried it and has problems with topical pain or the
inability to feel heat let me know if it makes a difference.

THANK YOU


Re: [TMIC] try this

2012-07-27 Thread Bridget Skinner
*Sorry I twitched and hit the send button too early. Anyway, it didn't
bother me at all. I used it knees to toes. Made all the difference in the
world. When I have taken my baclofen and still hurt this is the way to go.
 You would think morphine and norco would take care of these sensations but
they take care of other types of pain - not spastisity or nerve pain. Thank
you for the tip. It's nice to use something that I can pick up something at
the store that really works and I don't need to see a doc first.
*
On Fri, Jul 27, 2012 at 8:26 AM, Bridget Skinner ibridg...@gmail.comwrote:

 *I believe I didn't send this to the whole group when I replied. And if I
 did, I apologize for sending it again. *



 *I was concerned about using the Aspercreme Heat Pain Relieving Gel
 because of my inability to feel heat but my husband had a good idea -- just
 try it on one little spot and if it bothers me than its an easy wipe off.
 Well it didn't *

 ---
 I take 80mg a day of Baclofen and still have problems although it REALLY
 helps me. 20mg 4x a day. Doc is going to keep me at that. So, I thought I
 would just get used to what it isn't taking care of. Went to CVS this
 evening and purchased the Fast Acting Therapy Aspercreme Heat Pain
 Relieving Gel Hopefully this is the right kind. (little nervous since I
 can't feel heat) But I am so excited to see if this works. I will use it
 tonight and let y'all know how it worked for me.

 Please, if anyone has tried it and has problems with topical pain or the
 inability to feel heat let me know if it makes a difference.

 THANK YOU

 Forwarded conversation
 Subject: [TMIC] try this
 

 From: *jeff bernier* jeffsmokeea...@yahoo.com
 Date: Thu, Jul 26, 2012 at 10:16 AM
 To: tmic-list@eskimo.com, msersl...@yahoogroups.com


 for those of you with problems with spastisity heres a trick i learned.i
 have a baclofen pump and take 5 mg clonipin daily and still get spasms in
 my legs.i have found that aspercream hot for arthritis works outstanding,i
 had heard this from another person with ms and it worked.
 --
 From: *john snodgrass* jcs...@yahoo.com
 Date: Thu, Jul 26, 2012 at 10:28 AM
 To: tmic-list@eskimo.com tmic-list@eskimo.com


 i had heard of using hot muscle rub but never tried it but i might now.

 thanks Jeff

--
 *From:* jeff bernier jeffsmokeea...@yahoo.com
 *To:* tmic-list@eskimo.com; msersl...@yahoogroups.com
 *Sent:* Thursday, July 26, 2012 11:16 AM
 *Subject:* [TMIC] try this

 for those of you with problems with spastisity heres a trick i learned.i
 have a baclofen pump and take 5 mg clonipin daily and still get spasms in
 my legs.i have found that aspercream hot for arthritis works outstanding,i
 had heard this from another person with ms and it worked.



 --
 From: *Janice Nichols* jan...@centurytel.net
 Date: Thu, Jul 26, 2012 at 10:32 AM
 To: jeff bernier jeffsmokeea...@yahoo.com, tmic-list@eskimo.com,
 msersl...@yahoogroups.com


   Thanks.I take baclofen and it works most every nite, but then I
 have the occasional problem nite. Will try aspercream.
 Janice


  *From:* jeff bernier jeffsmokeea...@yahoo.com
 *Sent:* Thursday, July 26, 2012 10:16 AM
 *To:* tmic-list@eskimo.com ; msersl...@yahoogroups.com
 *Subject:* [TMIC] try this

   for those of you with problems with spastisity heres a trick i
 learned.i have a baclofen pump and take 5 mg clonipin daily and still get
 spasms in my legs.i have found that aspercream hot for arthritis works
 outstanding,i had heard this from another person with ms and it worked.

 --
 From: ** em...@telephonelady.com
 Date: Thu, Jul 26, 2012 at 12:43 PM
 To: jeff bernier jeffsmokeea...@yahoo.com, tmic-list@eskimo.com,
 msersl...@yahoogroups.com


 **
 Do you put it directly on the muscles that are spasing?
 Sent from my Verizon Wireless BlackBerry
 --
 *From: * jeff bernier jeffsmokeea...@yahoo.com
 *Date: *Thu, 26 Jul 2012 08:16:02 -0700 (PDT)
 *To: *tmic-list@eskimo.com; msersl...@yahoogroups.com
 *Subject: *[TMIC] try this

 for those of you with problems with spastisity heres a trick i learned.i
 have a baclofen pump and take 5 mg clonipin daily and still get spasms in
 my legs.i have found that aspercream hot for arthritis works outstanding,i
 had heard this from another person with ms and it worked.

 --
 From: *Bridget Skinner* ibridg...@gmail.com
 Date: Thu, Jul 26, 2012 at 7:59 PM
 To: Janice Nichols jan...@centurytel.net


 I take 80mg a day of Baclofen and still have problems although it REALLY
 helps me. 20mg 4x a day. Doc is going to keep me at that. So, I thought I
 would just get used to what it isn't taking care of. Went to CVS this
 evening and purchased the Fast Acting Therapy Aspercreme Heat Pain
 Relieving Gel Hopefully this is the right kind. (little nervous since I
 can't feel heat) But I am so excited to see if this works. I will use it
 tonight

Re: [TMIC] try this

2012-07-27 Thread Janice Nichols
Guys, this is really encouraging!!I am going to try it too.
Janice


From: Bridget Skinner 
Sent: Friday, July 27, 2012 10:07 AM
To: tmic-list@eskimo.com ; msersl...@yahoogroups.com 
Subject: Re: [TMIC] try this

Sorry I twitched and hit the send button too early. Anyway, it didn't bother me 
at all. I used it knees to toes. Made all the difference in the world. When I 
have taken my baclofen and still hurt this is the way to go.  You would think 
morphine and norco would take care of these sensations but they take care of 
other types of pain - not spastisity or nerve pain. Thank you for the tip. It's 
nice to use something that I can pick up something at the store that really 
works and I don't need to see a doc first.   


On Fri, Jul 27, 2012 at 8:26 AM, Bridget Skinner ibridg...@gmail.com wrote:

  I believe I didn't send this to the whole group when I replied. And if I did, 
I apologize for sending it again. 

  I was concerned about using the Aspercreme Heat Pain Relieving Gel because of 
my inability to feel heat but my husband had a good idea -- just try it on one 
little spot and if it bothers me than its an easy wipe off. Well it didn't 


  ---
  I take 80mg a day of Baclofen and still have problems although it REALLY 
helps me. 20mg 4x a day. Doc is going to keep me at that. So, I thought I would 
just get used to what it isn't taking care of. Went to CVS this evening and 
purchased the Fast Acting Therapy Aspercreme Heat Pain Relieving Gel 
Hopefully this is the right kind. (little nervous since I can't feel heat) But 
I am so excited to see if this works. I will use it tonight and let y'all know 
how it worked for me. 

  Please, if anyone has tried it and has problems with topical pain or the 
inability to feel heat let me know if it makes a difference. 

  THANK YOU

  Forwarded conversation
  Subject: [TMIC] try this
  

  From: jeff bernier jeffsmokeea...@yahoo.com
  Date: Thu, Jul 26, 2012 at 10:16 AM
  To: tmic-list@eskimo.com, msersl...@yahoogroups.com



for those of you with problems with spastisity heres a trick i 
learned.i have a baclofen pump and take 5 mg clonipin daily and still get 
spasms in my legs.i have found that aspercream hot for arthritis works 
outstanding,i had heard this from another person with ms and it worked. 


  --
  From: john snodgrass jcs...@yahoo.com
  Date: Thu, Jul 26, 2012 at 10:28 AM
  To: tmic-list@eskimo.com tmic-list@eskimo.com



  i had heard of using hot muscle rub but never tried it but i might now.


  thanks Jeff


--
  From: jeff bernier jeffsmokeea...@yahoo.com

  To: tmic-list@eskimo.com; msersl...@yahoogroups.com 
  Sent: Thursday, July 26, 2012 11:16 AM
  Subject: [TMIC] try this


for those of you with problems with spastisity heres a trick i 
learned.i have a baclofen pump and take 5 mg clonipin daily and still get 
spasms in my legs.i have found that aspercream hot for arthritis works 
outstanding,i had heard this from another person with ms and it worked. 





  --
  From: Janice Nichols jan...@centurytel.net
  Date: Thu, Jul 26, 2012 at 10:32 AM
  To: jeff bernier jeffsmokeea...@yahoo.com, tmic-list@eskimo.com, 
msersl...@yahoogroups.com



  Thanks.I take baclofen and it works most every nite, but then I have the 
occasional problem nite. Will try aspercream.
  Janice


  From: jeff bernier 
  Sent: Thursday, July 26, 2012 10:16 AM
  To: tmic-list@eskimo.com ; msersl...@yahoogroups.com 
  Subject: [TMIC] try this

for those of you with problems with spastisity heres a trick i 
learned.i have a baclofen pump and take 5 mg clonipin daily and still get 
spasms in my legs.i have found that aspercream hot for arthritis works 
outstanding,i had heard this from another person with ms and it worked. 


  --
  From: em...@telephonelady.com
  Date: Thu, Jul 26, 2012 at 12:43 PM
  To: jeff bernier jeffsmokeea...@yahoo.com, tmic-list@eskimo.com, 
msersl...@yahoogroups.com



  Do you put it directly on the muscles that are spasing?

  Sent from my Verizon Wireless BlackBerry

--

  From: jeff bernier jeffsmokeea...@yahoo.com 
  Date: Thu, 26 Jul 2012 08:16:02 -0700 (PDT)
  To: tmic-list@eskimo.com; msersl...@yahoogroups.com
  Subject: [TMIC] try this

for those of you with problems with spastisity heres a trick i 
learned.i have a baclofen pump and take 5 mg clonipin daily and still get 
spasms in my legs.i have found that aspercream hot for arthritis works 
outstanding,i had heard this from another person with ms and it worked. 


  --
  From: Bridget Skinner ibridg...@gmail.com
  Date: Thu, Jul 26, 2012 at 7:59 PM
  To: Janice Nichols jan...@centurytel.net



  I take 80mg a day of Baclofen and still have problems although it REALLY 
helps me. 20mg 4x a day. Doc

Re: [TMIC] try this

2012-07-27 Thread Roger Terese Pratt
I had a terrible cramp in my shin last night in the middle of the night as a 
result of my water exercises earlier in the day.  I tried this and it worked 
great! Roger in Kennewick, WA



 From: Janice Nichols jan...@centurytel.net
To: Bridget Skinner ibridg...@gmail.com; tmic-list@eskimo.com; 
msersl...@yahoogroups.com 
Sent: Friday, July 27, 2012 9:04 AM
Subject: Re: [TMIC] try this
 

Guys, this is really encouraging!!    I am 
going to try it too.
Janice
  
From: Bridget Skinner 
Sent: Friday, July 27, 2012 10:07 AM
To: tmic-list@eskimo.com ; msersl...@yahoogroups.com 
Subject: Re: [TMIC] try this
  Sorry 
I twitched and hit the send button too early. Anyway, it didn't bother me at 
all. I used it knees to toes. Made all the difference in the world. When I have 
taken my baclofen and still hurt this is the way to go.  You would think 
morphine and norco would take care of these sensations but they take care of 
other types of pain - not spastisity or nerve pain. Thank you for the tip. It's 
nice to use something that I can pick up something at the store that really 
works and I don't need to see a doc first.   


On Fri, Jul 27, 2012 at 8:26 AM, Bridget Skinner ibridg...@gmail.com wrote:

I  believe I didn't send this to the whole group when I replied. And if I did, 
I  apologize for sending it again. 
 
I  was concerned about using the Aspercreme Heat Pain Relieving Gel because of 
my  inability to feel heat but my husband had a good idea -- just try it on one 
 little spot and if it bothers me than its an easy wipe off. Well it didn't 


---
I  take 80mg a day of Baclofen and still have problems although it REALLY 
helps  me. 20mg 4x a day. Doc is going to keep me at that. So, I thought I 
would just  get used to what it isn't taking care of. Went to CVS this evening 
and  purchased the Fast Acting Therapy Aspercreme Heat Pain Relieving Gel  
Hopefully this is the right kind. (little nervous since I can't feel heat) But 
 I am so excited to see if this works. I will use it tonight and let y'all 
know  how it worked for me.  
 
Please,  if anyone has tried it and has problems with topical pain or the 
inability to  feel heat let me know if it makes a difference. 
 
THANK  YOU
 
Forwarded  conversation
Subject: [TMIC] try  this


From: jeff bernier jeffsmokeea...@yahoo.com
Date: Thu, Jul 26, 
  2012 at 10:16 AM
To: tmic-list@eskimo.com, msersl...@yahoogroups.com

 


for those of you with problems  with spastisity heres a trick i learned.i have 
a baclofen pump and take  5 mg clonipin daily and still get spasms in my 
legs.i have found that  aspercream hot for arthritis works outstanding,i had 
heard this from  another person with ms and it  worked. 
--
From: john snodgrass jcs...@yahoo.com
Date: Thu, Jul 26, 2012 at 
  10:28 AM
To: tmic-list@eskimo.com tmic-list@eskimo.com



i had heard of using hot muscle rub but never tried it but i might  now.


thanks Jeff
 


 From: jeff bernier jeffsmokeea...@yahoo.com
To: tmic-list@eskimo.com; msersl...@yahoogroups.com 
Sent: Thursday, July 26, 2012 11:16  AM
Subject: [TMIC] try  this

 
for those of you with problems  with spastisity heres a trick i learned.i have 
a baclofen pump and take  5 mg clonipin daily and still get spasms in my 
legs.i have found that  aspercream hot for arthritis works outstanding,i had 
heard this from  another person with ms and it  worked. 


--
From: Janice Nichols jan...@centurytel.net
Date: Thu, Jul 26, 2012 
  at 10:32 AM
To: jeff bernier jeffsmokeea...@yahoo.com, tmic-list@eskimo.com, 
msersl...@yahoogroups.com

 
 
Thanks.    I take baclofen and it works most  every nite, but then I have the 
occasional problem  nite. Will try aspercream.
Janice
  
From: jeff bernier 
Sent: Thursday, July 26, 2012 10:16 AM
To: tmic-list@eskimo.com ; msersl...@yahoogroups.com 
Subject: [TMIC] try this
  
for those of you with problems  with spastisity heres a trick i learned.i have 
a baclofen pump and take  5 mg clonipin daily and still get spasms in my 
legs.i have found that  aspercream hot for arthritis works outstanding,i had 
heard this from  another person with ms and it  worked. 
 --
From: em...@telephonelady.com
Date: Thu, Jul 26, 
  2012 at 12:43 PM
To: jeff bernier jeffsmokeea...@yahoo.com, tmic-list@eskimo.com, 
msersl...@yahoogroups.com


 
Do you put it directly on the muscles that are spasing?

Sent from my Verizon Wireless BlackBerry


 
From: jeff bernier jeffsmokeea...@yahoo.com 
Date: Thu, 26 Jul 2012 08:16:02 -0700 (PDT)
To: tmic-list@eskimo.com; msersl...@yahoogroups.com
Subject: [TMIC] try this
 
for those of you with problems  with spastisity heres a trick i learned.i have 
a baclofen pump and take  5 mg clonipin daily and still get spasms in my 
legs.i have found that  aspercream hot for arthritis works outstanding,i had 
heard this from

Re: [TMIC] try this

2012-07-27 Thread john snodgrass
this is good news!

and found this out as far as a definition of one of the nice things we suffer 
with:

Clonus (from the Greek for violent, confused motion) is a series of 
involuntary, rhythmic, muscular contractions and relaxations. Clonus is a sign 
of certainneurological conditions, particularly associated with upper motor 
neuron lesions involving descending motor pathways, and in many cases is, 
accompanied by spasticity (another form of hyperexcitability).[1] Unlike small, 
spontaneous twitches known as fasciculations (usually caused by lower motor 
neuronpathology), clonus causes large motions that are usually initiated by 
a reflex. Studies have shown clonus beat frequency to range from 3- 8 Hz 
(Hertz) on average, and may last a few seconds to several minutes depending on 
the patient’s condition.[1] 


(i called it the jerks)

{º¿º}
   ~


 From: Janice Nichols jan...@centurytel.net
To: Bridget Skinner ibridg...@gmail.com; tmic-list@eskimo.com; 
msersl...@yahoogroups.com 
Sent: Friday, July 27, 2012 12:04 PM
Subject: Re: [TMIC] try this
 

Guys, this is really encouraging!!    I am 
going to try it too.
Janice
  
From: Bridget Skinner 
Sent: Friday, July 27, 2012 10:07 AM
To: tmic-list@eskimo.com ; msersl...@yahoogroups.com 
Subject: Re: [TMIC] try this
  Sorry 
I twitched and hit the send button too early. Anyway, it didn't bother me at 
all. I used it knees to toes. Made all the difference in the world. When I have 
taken my baclofen and still hurt this is the way to go.  You would think 
morphine and norco would take care of these sensations but they take care of 
other types of pain - not spastisity or nerve pain. Thank you for the tip. It's 
nice to use something that I can pick up something at the store that really 
works and I don't need to see a doc first.   


On Fri, Jul 27, 2012 at 8:26 AM, Bridget Skinner ibridg...@gmail.com wrote:

I  believe I didn't send this to the whole group when I replied. And if I did, 
I  apologize for sending it again. 
 
I  was concerned about using the Aspercreme Heat Pain Relieving Gel because of 
my  inability to feel heat but my husband had a good idea -- just try it on one 
 little spot and if it bothers me than its an easy wipe off. Well it didn't 


---
I  take 80mg a day of Baclofen and still have problems although it REALLY 
helps  me. 20mg 4x a day. Doc is going to keep me at that. So, I thought I 
would just  get used to what it isn't taking care of. Went to CVS this evening 
and  purchased the Fast Acting Therapy Aspercreme Heat Pain Relieving Gel  
Hopefully this is the right kind. (little nervous since I can't feel heat) But 
 I am so excited to see if this works. I will use it tonight and let y'all 
know  how it worked for me.  
 
Please,  if anyone has tried it and has problems with topical pain or the 
inability to  feel heat let me know if it makes a difference. 
 
THANK  YOU
 
Forwarded  conversation
Subject: [TMIC] try  this


From: jeff bernier jeffsmokeea...@yahoo.com
Date: Thu, Jul 26, 
  2012 at 10:16 AM
To: tmic-list@eskimo.com, msersl...@yahoogroups.com

 


for those of you with problems  with spastisity heres a trick i learned.i have 
a baclofen pump and take  5 mg clonipin daily and still get spasms in my 
legs.i have found that  aspercream hot for arthritis works outstanding,i had 
heard this from  another person with ms and it  worked. 
--
From: john snodgrass jcs...@yahoo.com
Date: Thu, Jul 26, 2012 at 
  10:28 AM
To: tmic-list@eskimo.com tmic-list@eskimo.com



i had heard of using hot muscle rub but never tried it but i might  now.


thanks Jeff
 


 From: jeff bernier jeffsmokeea...@yahoo.com
To: tmic-list@eskimo.com; msersl...@yahoogroups.com 
Sent: Thursday, July 26, 2012 11:16  AM
Subject: [TMIC] try  this

 
for those of you with problems  with spastisity heres a trick i learned.i have 
a baclofen pump and take  5 mg clonipin daily and still get spasms in my 
legs.i have found that  aspercream hot for arthritis works outstanding,i had 
heard this from  another person with ms and it  worked. 


--
From: Janice Nichols jan...@centurytel.net
Date: Thu, Jul 26, 2012 
  at 10:32 AM
To: jeff bernier jeffsmokeea...@yahoo.com, tmic-list@eskimo.com, 
msersl...@yahoogroups.com

 
 
Thanks.    I take baclofen and it works most  every nite, but then I have the 
occasional problem  nite. Will try aspercream.
Janice
  
From: jeff bernier 
Sent: Thursday, July 26, 2012 10:16 AM
To: tmic-list@eskimo.com ; msersl...@yahoogroups.com 
Subject: [TMIC] try this
  
for those of you with problems  with spastisity heres a trick i learned.i have 
a baclofen pump and take  5 mg clonipin daily and still get spasms in my 
legs.i have found that  aspercream hot for arthritis works outstanding,i had 
heard this from  another person with ms and it  worked. 
 --
From: em...@telephonelady.com
Date: Thu

Re: [TMIC] try this

2012-07-27 Thread Bridget Skinner
Wow, you just answered so many of my questions. I have a neurologist
appointment that took a month to get, on August 1. I have been so worried
and sometimes afraid to go to sleep because usually when these twitches, or
my head jerking or whatever is going on happens when I wake up. Whether in
the middle of the night or in the morning but is usually MUCH worse if I
wake up in the middle of the night. I have even ended up in the ER when I
woke from a nap and had what my husband called convulsions. I could go on
and on but I know we are on a whole other topic. But, THANK
YOU...didn't know what all that was. Scary.

On Fri, Jul 27, 2012 at 2:31 PM, john snodgrass jcs...@yahoo.com wrote:

 this is good news!

 and found this out as far as a definition of one of the nice things we
 suffer with:

 *Clonus* (from the Greek for violent, confused motion) is a series of
 involuntary, rhythmic http://en.wikipedia.org/wiki/Rhythmic, muscular
 contractions http://en.wikipedia.org/wiki/Muscular_contraction and
 relaxations. Clonus is a sign of 
 certainneurologicalhttp://en.wikipedia.org/wiki/Neurological conditions,
 particularly associated with upper motor 
 neuronhttp://en.wikipedia.org/wiki/Upper_motor_neuron
  lesions http://en.wikipedia.org/wiki/Lesion involving descending motor
 pathways, and in many cases is, accompanied by 
 spasticityhttp://en.wikipedia.org/wiki/Spasticity (another
 form of hyperexcitability http://en.wikipedia.org/wiki/Hyperexcitability
 ).[1] http://en.wikipedia.org/wiki/Clonus#cite_note-Reference_2-0 Unlike
 small, spontaneous twitches known as 
 fasciculationshttp://en.wikipedia.org/wiki/Fasciculation (usually
 caused by lower motor 
 neuronhttp://en.wikipedia.org/wiki/Lower_motor_neuronpathology),
 clonus causes large motions that are usually initiated by a 
 reflexhttp://en.wikipedia.org/wiki/Reflex.
 Studies have shown clonus beat 
 frequencyhttp://en.wikipedia.org/wiki/Frequency to
 range from 3- 8 Hz (Hertz http://en.wikipedia.org/wiki/Hertz) on
 average, and may last a few seconds to several minutes depending on the
 patient’s 
 condition.[1]http://en.wikipedia.org/wiki/Clonus#cite_note-Reference_2-0


 (i called it the jerks)

 {º¿º}
~
   --
 *From:* Janice Nichols jan...@centurytel.net
 *To:* Bridget Skinner ibridg...@gmail.com; tmic-list@eskimo.com;
 msersl...@yahoogroups.com
 *Sent:* Friday, July 27, 2012 12:04 PM

 *Subject:* Re: [TMIC] try this

   Guys, this is really encouraging!!I am going to try it too.
 Janice


  *From:* Bridget Skinner ibridg...@gmail.com
 *Sent:* Friday, July 27, 2012 10:07 AM
 *To:* tmic-list@eskimo.com ; msersl...@yahoogroups.com
 *Subject:* Re: [TMIC] try this

 *Sorry I twitched and hit the send button too early. Anyway, it didn't
 bother me at all. I used it knees to toes. Made all the difference in the
 world. When I have taken my baclofen and still hurt this is the way to go.
 You would think morphine and norco would take care of these sensations but
 they take care of other types of pain - not spastisity or nerve pain. Thank
 you for the tip. It's nice to use something that I can pick up something at
 the store that really works and I don't need to see a doc first.
 *
 On Fri, Jul 27, 2012 at 8:26 AM, Bridget Skinner ibridg...@gmail.comwrote:

 *I believe I didn't send this to the whole group when I replied. And if I
 did, I apologize for sending it again. *



 *I was concerned about using the Aspercreme Heat Pain Relieving Gel
 because of my inability to feel heat but my husband had a good idea -- just
 try it on one little spot and if it bothers me than its an easy wipe off.
 Well it didn't *

 ---
 I take 80mg a day of Baclofen and still have problems although it REALLY
 helps me. 20mg 4x a day. Doc is going to keep me at that. So, I thought I
 would just get used to what it isn't taking care of. Went to CVS this
 evening and purchased the Fast Acting Therapy Aspercreme Heat Pain
 Relieving Gel Hopefully this is the right kind. (little nervous since I
 can't feel heat) But I am so excited to see if this works. I will use it
 tonight and let y'all know how it worked for me.

 Please, if anyone has tried it and has problems with topical pain or the
 inability to feel heat let me know if it makes a difference.

 THANK YOU

 Forwarded conversation
 Subject: *[TMIC] try this*
 

 From: *jeff bernier* jeffsmokeea...@yahoo.com
 Date: Thu, Jul 26, 2012 at 10:16 AM
 To: tmic-list@eskimo.com, msersl...@yahoogroups.com


   for those of you with problems with spastisity heres a trick i
 learned.i have a baclofen pump and take 5 mg clonipin daily and still get
 spasms in my legs.i have found that aspercream hot for arthritis works
 outstanding,i had heard this from another person with ms and it worked.
 --
 From: *john snodgrass* jcs...@yahoo.com
 Date: Thu, Jul 26, 2012 at 10:28 AM
 To: tmic-list@eskimo.com tmic-list@eskimo.com


   i had heard of using

[TMIC] try this

2012-07-26 Thread jeff bernier
for those of you with problems with spastisity heres a trick i learned.i have a 
baclofen pump and take 5 mg clonipin daily and still get spasms in my legs.i 
have found that aspercream hot for arthritis works outstanding,i had heard this 
from another person with ms and it worked.

Re: [TMIC] try this

2012-07-26 Thread john snodgrass
i had heard of using hot muscle rub but never tried it but i might now.

thanks Jeff



 From: jeff bernier jeffsmokeea...@yahoo.com
To: tmic-list@eskimo.com; msersl...@yahoogroups.com 
Sent: Thursday, July 26, 2012 11:16 AM
Subject: [TMIC] try this
 

for those of you with problems with spastisity heres a trick i learned.i have a 
baclofen pump and take 5 mg clonipin daily and still get spasms in my legs.i 
have found that aspercream hot for arthritis works outstanding,i had heard this 
from another person with ms and it worked. 

Re: [TMIC] try this

2012-07-26 Thread Janice Nichols
Thanks.I take baclofen and it works most every nite, but then I have the 
occasional problem nite. Will try aspercream.
Janice


From: jeff bernier 
Sent: Thursday, July 26, 2012 10:16 AM
To: tmic-list@eskimo.com ; msersl...@yahoogroups.com 
Subject: [TMIC] try this

  for those of you with problems with spastisity heres a trick i learned.i 
have a baclofen pump and take 5 mg clonipin daily and still get spasms in my 
legs.i have found that aspercream hot for arthritis works outstanding,i had 
heard this from another person with ms and it worked. 


Re: [TMIC] try this

2012-07-26 Thread emily
Do you put it directly on the muscles that are spasing?

Sent from my Verizon Wireless BlackBerry

-Original Message-
From: jeff bernier jeffsmokeea...@yahoo.com
Date: Thu, 26 Jul 2012 08:16:02 
To: tmic-list@eskimo.com; msersl...@yahoogroups.com
Subject: [TMIC] try this
for those of you with problems with spastisity heres a trick i learned.i have a 
baclofen pump and take 5 mg clonipin daily and still get spasms in my legs.i 
have found that aspercream hot for arthritis works outstanding,i had heard this 
from another person with ms and it worked.


[TMIC] try it this way

2012-01-25 Thread bobberino


- Original Message - 
From: Gary Thomas

To: john snodgrass ; transverse myelitis
Sent: Tuesday, January 24, 2012 9:58 PM
Subject: Re: [TMIC] 35 Things you probably don't know about TM


 John. This is a good list.  I would like to have it to copy without 
re-typing it .  It came out (at least in my email) scrunched together.  Is 
there a way to resend it in a better form.  Thanks. Gary
- Original Message - 
From: john snodgrass

To: transverse myelitis
Sent: Tuesday, January 24, 2012 10:47 PM
Subject: [TMIC] 35 Things you probably don't know about TM


seen this on facebook and didnt know if it was passed to this group or not. 
A list to share with Dr's and family to help inform them about our 
condition.

john



---
35 Things you probably don't know about TM

1. It is a cousin disorder to Multiple Sclerosis. 
http://www.hopkinsmedicine.org/neurology_neurosurgery/specialty_areas/project_restore/conditions/


2. Fairly rare disorder, only 2-5 people per million get it.

3. Approx. 1400 new cases a year in the U.S. 
http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyelitis.htm


4. Roughly 33,000 people with TM in U.S. 
http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyelitis.htm


5. Transverse myelitis occurs in adults and children, in both genders, and 
in all
races. 
http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyelitis.htm


6. Can be Acute (happening within hours) or Subacute (happening within days
or weeks)

7. The inflammation that causes such extensive damage to nerve fibers of the
spinal cord may result from viral infections, abnormal immune reactions, or
insufficient blood flow through the blood vessels located in the spinal 
cord.

Transverse myelitis also may occur as a complication of syphilis, measles,
Lyme disease, and some vaccinations, including those for chickenpox and
rabies.

8. Can be Idiopathic (no known cause)

9. Typically a one time occurrence but there are some that have recurrent 
TM.


10. 10% or better possibility of developing Multiple Sclerosis but the 
possibility is fairly low if there is a normal brain MRI at TM 
onset...http://www.ncbi.nlm.nih.gov/pubmed/18080852


11.Most symptoms of TM are identical to MS

12.Prevailing difference between TM and MS is that lesions are on spinal 
nerve in

TM and on Brain in MS.

13.Transverse myelitis is a neurological disorder caused by inflammation 
across

both sides of one level, or segment, of the spinal cord. This damage causes
nervous system scars that interrupt communications between the nerves in
the spinal cord and the rest of the body.

14. The inflammation and lesion created, is caused by the bodies own immune
system attacking the myelin coating of the spinal nerve.

15.The segment of the spinal cord at which the damage occurs determines 
which

parts of the body are affected. Nerves in the cervical (neck) region control
signals to the neck, arms, hands, and muscles of breathing (the diaphragm).
Nerves in the thoracic (upper back) region relay signals to the torso and 
some
parts of the arms. Nerves at the lumbar (mid-back) level control signals to 
the
hips and legs. Finally, sacral nerves, located within the lowest segment of 
the
spinal cord, relay signals to the groin, toes, and some parts of the legs. 
Damage
at one segment will affect function at that segment and segments below it. 
In
patients with transverse myelitis, demyelination usually occurs at the 
thoracic

level, causing problems with leg movement and bowel and bladder control,
which require signals from the lower segments of the spinal cord. 
http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyelitis.htm


16.About one-third of people affected with transverse myelitis experience 
good or

full recovery from their symptoms; they regain the ability to walk normally
and experience minimal urinary or bowel effects and paresthesias. Another
one-third show only fair recovery and are left with significant deficits 
such as

spastic gait, sensory dysfunction, and prominent urinary urgency or
incontinence. The remaining one-third show no recovery at all, remaining
wheelchair-bound or bedridden with marked dependence on others for basic
functions of daily living. 
http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyelitis.htm


17. Four classic features of transverse myelitis emerge: (1) weakness of the 
legs

and arms, (2) pain, (3) sensory alteration, and (4) bowel and bladder
dysfunction. 
http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyelitis.htm


18. Pain is the primary presenting symptom of transverse myelitis in
approximately one-third to one-half of all patients. The pain may be 
localized

in the lower back or may consist of sharp, shooting sensations that radiate
down the legs or arms or around the torso.