Yes sedation is the best way to go. My first one was a nightmare. It felt like the doctor had his knee in my back trying to get it done. He said the marrow was so compacted. Now I get sedated every time I get one. I don't remember it and I am a little sore for a few days after. SuzanAllyson Morris
Your experience is probably more typical than atypical. My experience
is similar to yours. I am hoping to change from Gleevec to dasatinib
as soon as it becomes available, probably this coming June. The
anecdotal evidence strongly suggests that dasatinib is just as
effective as Gleevec (even mo
My white blood cell count has been 1.4 before- 2.7 is "high" for me (sometimes).
From: Sandy Johnson <[EMAIL PROTECTED]>Reply-To: CMLHope@googlegroups.comTo: "cmlhope@googlegroups.com" Subject: [CMLHope] white countsDate: Thu, 27 Apr 2006 05:09:49 -0700 (PDT)
Have any of you had just you
Sandy- Tell Randy to get knocked out! I do what Anjana's husband doessedation. It is great, I do not remember a thing and am a little sore when i wake-up. It posed some health insurance problems at first, but we got it all worked out.
Sedation BMB are the way to go..
From:
-- Forwarded message --*The Access Project's Web-based Medical Debt Story Bank*The Access Project, a national health care policy resource center, is
collecting stories from people with medical debt. Medical debt is aproblem that affects insured people, as well as the uninsured. An
Just a few more things that has just as much potassium if not more is Apricots, Advocados, Cantalope, Prunes, Grapes, Rasins, and Broccoli. The heart specialist told me about these due to my very low potassium all the timejohnd <[EMAIL PROTECTED]> wrote: Hi, my name is John. I am 46 this month and
Hi Sandy,
I was diagnosed in Dec 03 and have had 6 BMB's since then. My first
three were EXCRUCIATING. i had trouble sleeping a week (and more)
before the procedure was to happen & the thought of it sent chills
through my spine.
i talked to the doctor about it and they gave me 100mg of demorral-
Hi, my name is John. I am 46 this month and I was diagnosed in Feb of
02 (on my oldest 16th birthday). Have been on 400 mg since March of 02
and went to 600 mg in Oct. of 04 and finally reach complete remission
in April of 05. I too have many of the side effects that you mentioned
and this is w
My WBC went to 2.6 after 2 months on 400mg Gleevec. My Onc was not
concerned at that point, but my anc was 1.5. That was my lowest point,
and within 5 weeks my WBC was 3.6 and anc 2.1 without additional
medications. For Randy's anc to be half what my count was, when we had
the same WBC, either h
You are not whining, your quality of life has been significantly
diminished by these side effects and you're fed up with it. My husband
has CML and has many of your side effects, although not quite as bad,
and I think they can really wear on you when you have to deal with them
day in and day out.
Have any of you had just your white blood counts go real low 2.7,anc0.7 while all of Randy's other counts seem to be going up to almost low normal.This is why they are talking BMB to see what is going on.Recheck on Monday.Thanks, Sandy
Yahoo! Mail goes everywhere you do. Get it on your phone.
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Hi Sandy,
My husband hates BMBs as well, in fact, he just postponed his yearly
BMB and I have to gently coax him again to have it done for his own
good. Roy asks for sedation during the BMB and that helps him not feel
the pain during the BMB. I am wondering if that may be an option for
Randy.
Hi,
My husband has been on Gleevec 400mg for 4 years and his side-effects
are also there, for him, he has whitening of skin, fragile skin,
diarrhea, complete loss of taste. The latter is hard for him as he
cannot enjoy his meals. Getting off Gleevec has never occurred to him
because he tells
Hi,
I was on 400mg and then 800 mg Glivec (I'm in the UK), and I had some
of the side effects you mention, and I do sympathise with you.
Diarrhoea - I used to get it worse late evening/early night-time, and
these bouts lasted for an hour or two. I tried to analyse what I'd
eaten which may have ca
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