Hello Shiela
I will definately keep your son and his wife and family in my prayers
and hope the situation improves quickly!.
My 22 year old son,Steven. was diagnosed with a wbc of 179 000 in March
this year. What is the range that would be close to stroke range? Its
not really a pertinent quest
Just wanted to welcome those newly dx with CML. But, I do have a question
about being put right on Gleevec after dx. I had to wait at least two to
three weeks waiting on the genetics test for the Philadelphia Cromosone to
be found before the doctor would put me on Gleevec. I was put on
Hydr
Rosie:
When I first started on Gleevec I felt like I was coming down with the
flu. I had chills and aches and pains and really felt terrible
especially in the evenings. If I remember right it lasted a couple
months. Gleevec's side effects kind of cycle and change daily it seems
like.
Mary K
Rosie, there are many of us who have been through exactly what you are
about to go through. I can tell you that there is more information on
CML, Gleevec and all its side affects, right here with this group. I am
50 diao'd in October 2004 and have always been on 800 mg of Gleevec.
Stay close to t
I posted a couple of weeks ago about worrying if I was becoming
resistant to gleevec and some of you responded, I just want you to know
that I greatly appreciate all of you. This is a great group, I think
sometimes I would've lost my mind if I wasn't able to read other'
experiences, thinking I was
I am hoping this post to the postings..please let me know. I have been
trying and never see my comments or questions.
Lisa Dx 12-21-02
800 mg
Gleevec
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[CMLHope]
A support group of http://cmlhope.com
Hi Suzan,
You are # 918 in the Zero Club.
Hope you get the new drug soon and it resolves the side effects.
Zavie
On 6/6/06, Suzan Collins <[EMAIL PROTECTED]> wrote:
Hi all
I just celebrated my 2nd anniversary on June 4th. I went into complete remission in March this year. I am in Zavie's
Hi everyone. I am trying this to see if I can post.
Hugs to all.
Judy in Calgary
Hugs,
Judy P. in Calgary
__
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com
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When my mom had her lung embolisms they never mentioned anything about high platelets.
Gayle
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[CMLHope]
A support group of http://cmlhope.com
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You received this message because you are subs
Thanks so much for your best wishes.
Gayle
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[CMLHope]
A support group of http://cmlhope.com
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You received this message because you are subscribed to the Google Groups "CMLHope" group.
To
Thank you for that information. This is going to be a big learning experience for our family.
Today they took the catheter out of her neck as her platelets seem to have stablilized at about 650,000 for the past two days, still too high but the medication seems to be kicking in.
Has anyone here h
Thank you so much for your wishes for my mom. She is 73.
Gayle
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[CMLHope]
A support group of http://cmlhope.com
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You received this message because you are subscribed to the Google Groups "
Thank you for that article link. She is being treated by a prominent blood specialist at Columbia Presbyterian Hospital in New York so that is not a concern.
Gayle
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[CMLHope]
A support group of http://cmlhope.com
--
Thank you guys for all the information! Annie, I was just reading your
blog earlier today! What a coincidence. Thanks again everyone!
Caron
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[CMLHope]
A support group of http://cmlhope.com
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I have to say I am impressed by the support that every one give. I
just got back my bone marrow results and it confirmed that I am in the
chronic phase. Right now I am not feeling to great but I am not sure
if it the Gleevec or I am coming down with something. Everyone at work
it not feeling
Thanks Barb for your very encouraging email. I try to stay positive.
It seems I go through bouts of worry. Usually when it's time for me to
go to the doctor for my next round of tests.
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[CMLHope]
A support group of http://cmlhope.com
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Hello Caron
Sorry about your diagnosis, but glad you have found this board. Between
this one and the Asian Support Board, I have learned SO much! They
have kept me sane.
My 22 year old son, Steven, was diagnosed with CML in March this year.
He immediately started 400mg Gleevec and apart from be
Anjana;
His plt are fine 169. He will be released tomorrow.
Let's see what he does next. ( ha)
Mary
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[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are
My daughter (age 10) was
diagnosed with CML in May 2005. She has had a happy, healthy year.
She has very occasional nausea and some eye puffiness. Other than
that, she feels terrific and recently won several ribbons at a regional
track meet. Keep your chin up. Most people with CML feel w
Dear Mary,
I know only a few patients having deep vein thrombosis. Does Joe
have a higher than normal platelet count? DVT is not very common in
CML but I know a few patients who have had it.
Best Wishes,
Anjana
caregiver to Roy
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[CMLHope
Hi Gayle,
Some patients I know who had high platelet counts took a drug called
Anagrelide (Agrylin) to control the platelet counts. So, this is
something to discuss with the doctor if the platelet counts are still a
bit high on Gleevec. I am sure Gleevec will work very well for your
Mom. Pla
Welcome to the group.RobOn 6/8/06, caronpea <[EMAIL PROTECTED]> wrote:
Hello Everyone! My name is Caron and I am new to the board. I was diagnosed onJune 2, 2006 with CML and I'm 43 yrs. old. My doctor has started meout at 400ml of Gleevec, and I started on this yesterday.
For those of
Welcome to the group. I hope your mother will soon be much better. Gleevec works extremely well and she should see really good results once she is started.RobOn 6/8/06,
disneyprincess <[EMAIL PROTECTED]> wrote:
My mother was diagnosed with CML last week. She is into her 2nd weekin the hospital du
Gayle,
Welcome. You will get lots of good information from this group. You did
not mention your Mother's age. Many people here have had good results on
Gleevec, including me. I have been on a trial since 1999 and have
continually decreasing counts of Ph+ cells. It is not a cure, but for most
Caron-
Welcome. I am 29 and was diagnosed when I was 27. It took about 2 weeks for me to have side effects from 800mg of Gleevec, which I still currently take. I had a slue of side effects and still have some that continue to linger. All in all, none of my side effects were or are that debil
I'm not agre with this kind of post . I don't need garbage in this
discussion group .
Emile
# 527 Zavie's Club
- Original Message -
From: "happypaulwong" <[EMAIL PROTECTED]>
To: "CMLHope"
Sent: Thursday, June 08, 2006 4:14 AM
Subject: [CMLHope] Is it YOUR DREAM
>
>
> Can you imagin
Hello Everyone!
My name is Caron and I am new to the board. I was diagnosed on
June 2, 2006 with CML and I'm 43 yrs. old. My doctor has started me
out at 400ml of Gleevec, and I started on this yesterday.
For those of you taking Gleevec and have had side effects, How
long was it bef
Hi Gayle,Welcome to the group.My husband has CML. His White counts were real high at dx,he was giving hydroxy at first and than on gleevec.His platelets also went over one million.It took a few weeks to get that under control.How old is your mother?Randy is 55. This is a good group to be in,every o
Welcome Gayle, and we all wish the best for your mother.
Many of us started with high platelets, which is common in CML
patients. For me, it was the first sign that I was developing CML.
The doctors are using hydroxyurea, which does treat the CML to some
degree, not just the platelet problem. Y
My mother was diagnosed with CML last week. She is into her 2nd week
in the hospital due to a very high platelet count which they can't seem
to get under control. I joined this group to gather information about
cml and I am sure once she is out of the hospital she will join as
well. They aren't
Can you imagine having
- More time to spend with your family and friends?
- Freedom to work when, where, and with whom you choose?
- The ability to vacation whenever you want?
- More income than bills at the end of the month?
- A life without debt?
- Tax deductions on items you pay for anyway?
-
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