[CMLHope] Re: understanding test results

2006-10-12 Thread Zavie Miller
YAHOOO!!!  YIPPEEE!!! Number 1005 in the Zero Club Zavie   On 10/10/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: This will be my second post, tho I've been reading the posts since Iwas dxd in May 05.  I'm feeling discouraged, and even afraid.  My local doctor knew little about cml, so I went t

[CMLHope] Re: Charlie Horses or Muscle Spasms

2006-10-12 Thread PFOUNDO
Carolyn,   Why are you still on the Gleevec if you have had a BMT?  Did the graft not take?   Pat --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you a

[CMLHope] Re: Charlie Horses or Muscle Spasms

2006-10-12 Thread PFOUNDO
To Katy, I am one of those who had the muscle spasms, cramps whatever you want to call them.  The first one I had was my chest right around the ribs, but I did not know that it was a spasm at the time.  I thought I was having a heart attack and drove myself to the hospital because there was n

[CMLHope] Charlie Horses or Muscle Spasms

2006-10-12 Thread c aldous
Katy- I read in one of your emails about you getting charlie horses in your back and abdomen.  I've been on Gleevec for years now, and occasionally have had nausea, but have suffered the most with what I call muscle spasms.  I get them all over, but the worst are in the back and abdomen.  I

[CMLHope] Re: Abdominal Charley Horses..

2006-10-12 Thread PFOUNDO
To all, About the cramps.I was getting them terribly every day especially when I wanted to stretch in the morning.  I was taking calcium pills and potassium to get rid of them.  And yes it must be the Gleevec because I have been on Sprycel for 8 days now and the cramps disappeared about 5

[CMLHope] Re: Abdominal Charley Horses..

2006-10-12 Thread Holly Baker
Hi, I have had this problem for at least 3 years. What has helped is potassium(bananas for me), exercise, especially walking, and losing weight. Whenever I give up any of them the charleyhorses come back and I have to walk them off each time until I get back on track. Hope this helps. My docto

[CMLHope] Report on Endocrine tests re potential bone loss

2006-10-12 Thread mburwen
This is the third and final installment of this story. To recap, three successive quarterly blood tests showed a below normal phosphorous count. Since recent studies have tied this parameter to bone loss, my hemo/onc sent me to an endocrinologist, Dr. Chiu, who has a lot of experience treating p

[CMLHope] Re: 7 new messages in 5 topics - digest

2006-10-12 Thread IAintFinishedYet
Hey Group: (FYI) Re: CHF & Gleevec, I know I had 2 heart attacks in 2004 because I went to the ER and I shudder to think of the other 5xs that I took Maalox and laid down. I always thought 'another darn gold side effect' or 'I'm stressed because of the nasty divorce I'm going through'.    I take

[CMLHope] Re: 7 new messages in 5 topics - digest

2006-10-12 Thread IAintFinishedYet
Hey Group: (FYI) Re: CHF & Gleevec, I know I had 2 heart attacks in 2004 because I went to the ER and I shudder to think of the other 5xs that I took Maalox and laid down. I always thought 'another darn gold side effect' or 'I'm stressed because of the nasty divorce I'm going through'.    I take

[CMLHope] Re: Swollen Glands

2006-10-12 Thread katybug45
  Yep Chrissy.it is called a cold/flu...lolI have had it since yesterday morning! I have been absolutely miserable, my darling adorable kissable lil granddaughter who is only 8 months old spent the night with me a couple of nights ago then my 10 month old nephew night before last,

[CMLHope] Re: Swollen Glands

2006-10-12 Thread Chrissy
Thank you Pat! It is such a relief to hear that! Chrissy --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope"

[CMLHope] Re: Swollen Glands

2006-10-12 Thread PFOUNDO
Chrissy, Yes, it is perfectly normal to have swollen glands when your body is fighting something in the sinuses or ears or throat even when you have CML.    Pat --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com --

[CMLHope] Swollen Glands

2006-10-12 Thread Chrissy
Has anyone had swollen glands recently? I think I have a cold, but it is so aggravating, because it seems like the symptoms just want to linger around and not actually DO anything. I just feel a little horrible, not totally horrible (yet). I'm just wondering if it's normal to have swollen gland

[CMLHope] gleevec and heart problems

2006-10-12 Thread ICANDOALLTTC
Gleevec Linked to Heart Failure in Some CML Patients - CME Teaching Brief® - M --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to

[CMLHope] heart problems gleevec

2006-10-12 Thread ICANDOALLTTC
But, Dr. Force and colleagues reported today in the online issue of Nature Medicine, 10 CML patients treated with Gleevec at the M.D. Anderson Cancer Center in Houston developed congestive heart failure, although they had normal heart function when they began taking the drug. Studies in mic

[CMLHope] heart problems and gleevec

2006-10-12 Thread ICANDOALLTTC
Gleevec is a wonderful drug and patients with these diseases need to be on it," he says. "We're trying to call attention to the fact that Gleevec and other similar drugs coming along could have significant side effects on the heart and clinicians need to be aware of this. It's a potential pr

[CMLHope] Re: Who Likes The Dentist?

2006-10-12 Thread Dov
Terry, my first thought was pretty much the same as yours. Warm regards. David (Dov) --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to

[CMLHope] Fwd: Check out http://www.cbsnews.com/stories/2006/10/11/eveningnews/main2083...

2006-10-12 Thread Ss5726
  --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHop

[CMLHope] Re: Who Likes The Dentist?

2006-10-12 Thread Terry Dailey
Hey David,   I know it had to be rough going back to work that soon after 9/11. The deodorizer was in bulk that was purchased, the ironic thing, (not to sound prejudice) was the merchant was middle eastern which threw me for a loop at first, but after his explaination, I did let the transaction go