[CMLHope] PAIN

2008-03-21 Thread educatorsusan
I believe in my gut that the pain is real. Since I am one of the lucky ones to have had most of the side effects of Gleevec, I think that I am pretty good at diagnosing. The problem is is that none of us are willing to go off Gleevec to tell you definitely that Gleevec is the culprit or not. Fo

[CMLHope] Re: Back pain and Body pain while sleeping - On Gleevec

2008-03-21 Thread r doshi
Thank You all for replying to my message. I really appreciate it. I did talk to my Oncologist and he thinks the pain is not related to Gleevec as most people gets side effect when they start Gleevec but after sometime side effects go away. I did not have any of this pain when I started Gleevec in

[CMLHope] Re: Back pain and Body pain while sleeping - On Gleevec

2008-03-21 Thread Skip Duffie
HELLO ALL I do not post much, but in this case I thought I would. If you are having pain in the back, standing or sleeping, I would suggest you talk to your Doctor. I had pain in my back which I thought was not related to my drugs (Nilotinib) in fact it was.. The first time I became very sick and

[CMLHope] Re: Back pain and Body pain while sleeping - On Gleevec

2008-03-21 Thread Barb in AZ
Hello Rakesh, I wanted to reply to your post because I had similar symptoms on gleevec.I was diagnosed 5/2001 and on 400 mg gleevec as well. Even on a reduced dosage to 300 mg I had the same thing. I was a little anemic as you are. The pain was shoulder, spine and lower back. I could never get c

[CMLHope] Re: Back pain and Body pain while sleeping - On Gleevec

2008-03-21 Thread nvr2old2rck
I experience this same situation,,as I am up at 2 am writing this, But unlike you, I have had this all over achey pain that gets worse at night or sometimes just wham hits up at night, I have been on gleevec since 2004. I finally gave in and take a low dose pain med twice a day,,,and as long as