[CMLHope] Re: Cam Williams

I am cross posting this request as I really want to "target" all the groups. I am asking everyone to pray for Cam Williams, like you've never prayed before. He has 50% blast cells even after his second transplant. You may, or may not, remember that Cam and Coralee are a very special young cou

[CMLHope] Medical Articles 8/23

Medical Articles 8/23 --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To

[CMLHope] Re: My PCR

Hi Jeanie:  I get my PCR every 6 months.  That is supposed to be the new protocol.  I do not get the BMA anymore.  I was getting it every 3 months before that, and the BMA's every 3 months before that.  When I was in clinical trial for the Gleevec, I had my BMA done in NY.  The pain was just too

[CMLHope] Re: Cannot work anymore

Suzzie, I was suppose I was one of the lucky ones. I experienced almost no side effects on Gleevec and it did not interfere with my work life at all. In fact I continued to lead a normal life. I was on it for three years before it stopped working for me. Doug ?-Original Message- ?From:

[CMLHope] Re: In the beginning

Kelly: I still have left side pain (spleen)..not as bad as in the beginning...but it does flare up occasionally. Sometimes, it's a steady ache...sometimes it's worse. One of my doctors told me that sometimes parts of the spleen will die off once it has swelled as bad as mine was.th

[CMLHope] Re: Cannot work anymore

Suzzie, I am so sorry you are suffering from the dreaded side effects of gleevec. I did too and they were cyclic and increased in severity with time. I took a break ( with my oncologist and Dr. Druker's approval) and started back on 300mg. I did that for a year and still, they returned and were

[CMLHope] Re: In the beginning

WowDoug..this is an amazing story..Congratulations, glad that the BMT worked so well for you. Suzieq --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message bec

[CMLHope] Re: ***SPAMTAGPTD: [CMLHope] Cannot work anymore

Hi Suzzie: I wasn't working at the time I got the CML, but couldn't have worked anyway. I was retired already. I was started on Interferon and it made me so sick that for 3 days a week, I was in bed. Usually by Thurs. I was okay, but then they didn't give me the shots on the weekend, so at the

[CMLHope] Re: Cannot work anymore

Hi Suzzie, I have not stopped my part time work, but I can tell you that I often think about going on disability. I have been on 400 mgs of Gleevec since Dec. 03 and have had a good response, although I think I have and continue to struggle with just about every possible side-effect at some tim

[CMLHope] Re: In the beginning

Thank you all so much for your responses. Sometimes I think this stuff is all a dream. In May of 2007 I went to my doc for a regular checkup. I had her check me for everything - including diabetes, and a request for a colonoscopy (2 uncles had colon cancer) because I knew something was wrong - I j

[CMLHope] Cannot work anymore

This is a message for everyone. How many of you had to stop work because of the side effects of Gleevec, plus the depression etc. I myself had to stop working, and people do not understand what your going through if your doing well on your medication. I am just curious how many besides me, just

[CMLHope] Re: Insomnia

I also use two benadryl every night before bed and it has helped me tremendously.. chris in Minn - Original Message - From: [EMAIL PROTECTED] To: CMLHope@googlegroups.com Sent: Friday, August 22, 2008 5:44 PM Subject:

[CMLHope] Re: In the beginning

Kelly mine were not that high either, although I felt tired all the time that was what got me into the Dr Office. -Original Message- From: CMLHope@googlegroups.com [mailto:[EMAIL PROTECTED] On Behalf Of kellyelise Sent: Wednesday, August 20, 2008 9:15 AM To: CMLHope Subject: [CMLHope] In

[CMLHope] Re: My PCR

Hi there Suzzie, So happy to hear about your PCR results. I don't know why, but my Onc won't give me PCR test every three months like we are suppose to have. I have talked to him about it, but he seems strange with it. The last time I ask him for a PCR he ordered a blood flow test. I am goin

[CMLHope] Re: In the beginning who was put in the hospital?

Hi all, While reading all the in the beginning series, I didn't see anyone that had been put in the hospital in the beginning; I was. My question is, why are some patients put in the hospital and others are not? My onc gave me no choice on my first visit to him. He said you have to go to the ho

[CMLHope] Re: In the beginning

Hi all, I am now below the normal range for Hemg counts. Also my neutrophils were up. Always something righ? Blessings, Jeanie<3 In a message dated 8/22/2008 7:15:21 P.M. Pacific Daylight Time, [EMAIL PROTECTED] writes: CML causes fatigue for a couple reasons. First, although t

[CMLHope] Re: Insomnia

Hi Patrick and all, Yes, I tried Ambien and it did put me to sleep but it gave me nightmares. I think I will try the Benadryl. I think it has the same ingredient that the OTC sleep remedies have. Some of those give me nervous legs. Thanks for all the advice on sleep. Blessings all, Jeanie<3 I