[CMLHope] Re: insurance

2010-03-18 Thread Sean
Probably not the best forum for this but ... Is the insurance through your husband's work? Are you in the United States? If so, then divorce is typically considered a "qualifying event" for COBRA status. COBRA (Consolidated Omnibus Budget Reconciliation Act) passed in 1986 allows for continuation

[CMLHope] Re: Pleural effusion on dasatinib

2010-03-18 Thread Sean
Hi All, Thanks for all the solid input. I appreciate it. Zavie, I will definitely consider your suggestion. My doc is Dr. Ron Paquette at UCLA - he's a great doctor, very knowledgeable, and has been involved in a variety of trials. I've been with him since day one. I was a student at UCLA when I

Re: [CMLHope] Pleural effusion on dasatinib

2010-03-18 Thread Zavie Miller
Hi Sean, First a big *YAHOOO!!! YIPPEEE* *Number 1309 in the Zero Club* *Zavie* Hi Sean, Attaining PCRU is definitely not worth it. This is the opinion of the CML experts. Maintaining a 3 log reduction over time guarantees that you will never relapse with your CML. Maintaining a 2 log reductio

Re: [CMLHope] CML Combo/Trials...The cure we have been waiting for?

2010-03-18 Thread Zavie Miller
Hi Karen, My understanding is that it would involve PCR (from blood) testing on a monthly basis. To participate in the trial it will require an initial visit to Ann Arbor and then on an annual basis. What is very exciting about this trial is that it is not a Big Pharma sponsored trial. Zavie On

[CMLHope] Re: CML Combo/Trials...The cure we have been waiting for?

2010-03-18 Thread Christine
Karyn, Email Dr. Talpaz with your questions: mtal...@med.umich.edu Please include these words in your subject line “CML Combo Trials”. Christine On Mar 18, 3:48 pm, kary...@comcast.net wrote: > Hi Jerry, > > This is very exciting news - thank you for posting it for us!! I do have one > questi

[CMLHope] Re: If it's not broke, why fix it?

2010-03-18 Thread Suzieq
I agree with you, it seems like people are jumping right to the newer drugs...not giving the Gleevec time. I've been on it since being diagnosed Jan. of '04. I've been PCRU only two times, but out of the five different doctors I've had, not one has ever suggested doing anything different and I

Re: [CMLHope] CML Combo/Trials...The cure we have been waiting for?

2010-03-18 Thread karyndd
Hi Jerry, This is very exciting news - thank you for posting it for us!! I do have one question about the trial - would it require bmbs or aspirations? I would like to know exactly what they would require at each 3 month visit, if possible. Thanks so much for your info. Karyn - Original

Re: [CMLHope] Finally made it to 00.00 after 6 years

2010-03-18 Thread Martin Gartenberg
Dear Jeanie, This comes from number 1 in Zavies Zero Club to number 1380 in Zavies Zero Club. I am very happy to hear of your ZERO. Well done! By the way, Zavie and his wife Ida came to visit with Shelly and myself and he presented me with my very own Zavie Zero Club Hat after all of these years

[CMLHope] CML Combo/Trials...The cure we have been waiting for?

2010-03-18 Thread Zavie Miller
Jerry Posted this on his CMLNEWDRUG.COM website. CML Combo/Trials...The cure we have been waiting for? by Jerry Mayfield Yesterday (March 17, 2010), I met with Dr. Talpaz about his Combo trials. The purpose of this post is to share information about these trials with you all. First, I want to s

Re: [CMLHope] Finally made it to 00.00 after 6 years

2010-03-18 Thread Myvety2k
HEY, HEY FOR JEANIE FROM Greenie In a message dated 3/18/2010 6:04:06 A.M. Central Daylight Time, zmil...@sympatico.ca writes: YAHOOO!!! YIPPEEE!!! Number 1308 in the Zero Club Zavie Another turtle crosses the finish line. Well done!!! On Thu, Mar 4, 2010 at 1:18 PM, <_icandoall..

Re: [CMLHope] Re: Gleevec initial response for pediatric CML

2010-03-18 Thread lisalongkennedy
Dear Thomas, My daughter's oncologist assured us that the optimal response on Gleevec was to have the counts return to normal after three weeks. My daughter was diagnosed very early and her wbc was only 37,000 at diagnosis, and yet her wbc did not return to the normal range right away. So th

Re: [CMLHope] Finally made it to 00.00 after 6 years

2010-03-18 Thread Zavie Miller
*YAHOOO!!! YIPPEEE!!!* *Number 1308 in the Zero Club* *Zavie* ** *Another turtle crosses the finish line.* ** *Well done!!! * On Thu, Mar 4, 2010 at 1:18 PM, wrote: > Hi all, > I finally made it to 00.00 after 6 long years. > I am truly a turtle hehe. > I am doing really well on Sprycel with

[CMLHope] Re: Gleevec initial response for pediatric CML

2010-03-18 Thread Thomas Chang
Lisa, Thanks so much for your post. Knowing that there are those of you out there, who experienced the hardship we are going through now but came out of it after having success on Gleevec, brings us a lot of confidence and hope. We are hopeful that Gleevec will work for our daughter Emily too in t