Hey Skip, where have you been hiding. I have really missed you. Glad to be hearing from you again.
I have been going through some difficult times with the hemodialysis and am starting a new kind called peritneal that can be done at home but that will take about a month before I can do that. You are the longest CML person that is still kicking that I know of. I don't know if I hold second place going on 23 years this May 21st which was the day I received my bone marrow transplant. May 21st was the actual day that I was born and on May 21st was my bone marrow transplant forty five years later. Been looking for you on Echolink and Skype. Don't be a stranger. Take care and 18's along with 73's my friend Marty On Sat, Feb 25, 2012 at 7:25 PM, Skip Duffie <skipd_2...@yahoo.com> wrote: > Hello Victoria and Marty > Guess I am one who is just resting, There are, in the CML community, > people > that say, "living so close to people who have CML, one becomes burnt out". > Not sure if this is the case here. Some others are fighting health > problems > on many fronts, I do read all the posts but as you say "they are few and > far > between". In my case I have had CML for over 35 years, whenever I > see a new case on here, I feel for them but let them know it is treatable. > Be safe all > SkipD > > > ------------------------------ > *From:* Martin Gartenberg <wa2...@gmail.com> > *To:* cmlhope@googlegroups.com > *Sent:* Saturday, February 25, 2012 4:26:33 PM > > *Subject:* Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages > in 2 Topics > > Hi Victoria, > > Sometimes some among us just decides to take a break. Sometimes others > become depressed at what they are reading about others. There could be a > host of reasons that people are not posting as they once did. > > If your talking about the "pioneers" then that is probably what I am. I > had CML more then 22 years ago. This May it will be my 23rd year. I had a > bone marrow transplant 22 years ago when the procedure was relatively new > and there wasn't a lot of information about it. At that time there were no > TKI's available so I had no other choice of getting onto a blind trial of > Alpha Interferon or the transplant. > > If I were to go into that trial basis I could not be guaranteed if I would > be receiving it or just a placebo. Since my white blood count was over > 486,000 at the time and I was about to go into blast chrises I opted for > the transplant because I had a suitable donor, my sister. > > So, there you have it, and just try to remember that sometimes people just > like to keep to themselves unless that are comfortable about discussing > their own problems with others, many of which are strangers to them. > > I always end any of my posts with the numbers 18. Those numbers 18 > symbolizes life. > > 18's to you, > > Marty > > On Sat, Feb 25, 2012 at 9:58 AM, Victoria Reiter <vkrei...@gmail.com>wrote: > > It IS strange that no one, or very few, CMLers are posting. Have we > become fatigued with focusing on our chronic condition and its > side-effects? How many of us have decided just to get on with our lives > and to live as fully as we can, trusting that Gleevec or the other > inhibitors will keep us going? I think we may have forgotten how dismayed > (euphemism) each of us was when we were first diagnosed and how glad we > were to find this website and the information and support we received from > it. Perhaps there are other, newer CML websites meant to provide > information without demanding any personal, emotional involvement on the > part of the reader. No doubt pioneers eventually get tired. Maybe that's > what's at work here. > > On Sat, Feb 25, 2012 at 5:50 AM, <cmlhope@googlegroups.com> wrote: > > Today's Topic Summary > Group: http://groups.google.com/group/cmlhope/topics > > - FINALLY RELIEF FROM > CRAMPS<https://mail.google.com/mail/html/compose/static_files/blank_quirks.html#135b42244878824f_group_thread_0>[1 > Update] > - No > posts<https://mail.google.com/mail/html/compose/static_files/blank_quirks.html#135b42244878824f_group_thread_1>[1 > Update] > > FINALLY RELIEF FROM > CRAMPS<http://groups.google.com/group/cmlhope/t/538b0e9d8515a9e8> > No posts <http://groups.google.com/group/cmlhope/t/dbc4f55a359a3eaa> > You received this message because you are subscribed to the Google Group > cmlhope. > You can post via email <cmlhope@googlegroups.com>. > To unsubscribe from this group, send<cmlhope+unsubscr...@googlegroups.com>an > empty message. > For more options, visit <http://groups.google.com/group/cmlhope/topics>this > group. > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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