Suzie, I wish you the very best of luck.
18's
Marty
On Wed, Aug 29, 2012 at 9:47 AM, Sheila Watson wrote:
> My take on the stopping of the drugs after being negative for several
> years, I think that is up to the person and their doctor. I, personally,
> did not feel comfortable in completely
I was diagnosed on Dec. 11, 2000also 2 wks before Christmas!! Some dates
just stick in your mind, huh?
I started on 400mg of Gleevec daily.. reached complete cytogenic remission
after 6 mo. Reduced to 300 mg daily and have been doing well
for the past almost 12 years. (After 6 yr I developed
Richard and Marty, and the group
Marty, I did not know about your Christmas gift I also was two weeks before
Christmas,except 1977,
Richard my survival had nothing to do with me I just went along for the ride
I would to take some credit but I cannot. If I had any part in it, it was
after I
Thank you Tom. Very helpful. Just 20 a day and it holds you in pcru?
wow!!! this gives me hope. I am going from 50 to 40 this week...will
test in two months to see how I am doing...never considered 20 sprycel
as being able to hold me. I will hold hope for that in my future...Beth
-Origina
BK...I am on 20mg Sprycel and it seems to be working well in controlling
the CML. I do have many of the side effects you list...Peripheral
Neuropathy, memory issues and fatigue. I have had a neurological exam to
confirm
the neuropathy which is extending up my legs from the feet. So far,
Tom, what are your side effects from the sprycel. do you or anyone else
out there have muscle fatigue, muscle deterioration, elevated cpk
levels ( creatine /kinase)..trying to see if others feel as I do.
Thanks for responding..I am glad you are doign well on sprycel. What
dose do you take? low
Carolyn, Have you had plural efusion before? Since you have been on a
low dose of sprycel for years, has this happened before to you? ARe you
on a diuretic on a regular basis? I am on sprycel as well, have been
for the last two years. concerned about swelling, but manage it through
diuretic and
How are you feeling since you went to 200. What difference then when on
400 . I have been on 400 since april 2003
And been pcr negative 3 months after that up to present day . been
thinking about talking to my doctor about dropping to 200 . haven't
really had many issue with gleevec , just se
My take on the stopping of the drugs after being negative for several
years, I think that is up to the person and their doctor. I, personally,
did not feel comfortable in completely quitting Gleevec after being on
400mgs. since February 2004. What I did ask my Doctor was if we could
lower the do
HI Richard, I found out that I had CML two weeks before Xmas of 1998.
Went on Interferon for 3 months, that almost killed me. After that about 2 to
3 month later Chicago called me and put me into a study at Northwestern.
STI571. Their were 8 of us from the Chicago area, I was the only one
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