Re: [CMLHope] Change from Sprycel to bosulif

2015-02-15 Thread Joyce Mesnarich
Thank you for your replies and prayers. Also, Susan, thanks for the encouraging words. Do you have any significant side effects? Joyce in IL On Feb 15, 2015, at 11:41 AM, 'Susan Zimmerman' via CMLHope wrote: > To Joyce and Wayne, > > I had been on gleevec 400 mg for 2 yrstook m

Re: [CMLHope] Re: Your hemoglobin counts

2015-02-15 Thread Richard H
I agree with totally. Since I am inly taking 300mg Gleevec I am presently experiencing a different set of various minor side effects. Everything so far is minor so no problem. If I start needing help maintaining my Hemoglobin I would certainly want to take. I think I was taking about 40,000

Re: [CMLHope] Change from Sprycel to bosulif

2015-02-15 Thread Marty Gartenberg
Hi Jeanie, I hate it when a doctor tells you that something is your last hope. In my opinion I think that you need to find yourself another more qualified Oncologist. It just brings back some memories of my own. When I was first diagnosed my doctor's associate came into my hospital room and right

Re: [CMLHope] Change from Sprycel to bosulif

2015-02-15 Thread 'Susan Zimmerman' via CMLHope
To Joyce and Wayne, I had been on gleevec 400 mg for 2 yrstook myself off due to brain bleeds against doc's orders. I was able to stay in cellular remission for over 7 years. Then I went to Northwestern Medical as my molecular was up to 23 on the bcr/abl test. It dropped the next month t

Re: [CMLHope] Change from Sprycel to bosulif

2015-02-15 Thread ICANDOALLTTC via CMLHope
I haven't taken bosulif yet and I tried to tell my onc about it but he was set on Ponatinib. He said that was my last hope. Maybe my mutant would work against bosulif also; just don't know. Good luck with it and my prayers are with you always. Blessings Love And Prayers Jeanie<3 In a mes

Re: [CMLHope] Re: Your hemoglobin counts

2015-02-15 Thread Marty Gartenberg
Hi Richard, Just because it didn't work (Procrit/Epogen) for you then that doesn't mean it won't work for you now. That should be discussed with your doctor. There are a lot of contributing factors so you can't really be sure until you have that discussion with your doctor. Possibly you weren't gi