Re: [CMLHope] Checking in/ to all my CML friends

2015-04-02 Thread 'Susan Zimmerman' via CMLHope
Hi Joyce and Wayne, Enjoyed your encouragement for the people below. Just wanted you to know I'm also on 100 mg of bosulif since last April 30th, and doing quite well! Last test was done 3 months ago, but it was a fakeout as they got no results cuz it was botched. So I opted to wait 3 more

Re: [CMLHope] Today's Test

2015-04-02 Thread 'Susan Zimmerman' via CMLHope
Sorry to hear this Richard. I hope they will proceed to the next drug, (bosulif is working for me), and we have similar histories. It is so tough to fight the fatigue. I feel for ya! What are your bcr/abl numbers at last check because of the gleevec? Hoping they are good. Have a wonderful

[CMLHope] Marty

2015-04-02 Thread gene and guy Larcher
Dear Marty, Hope you feel a little better each day and that you get good news from the docs regarding your transplant. The letter you wrote to the donor's family was very warm and beautiful and full of gratitude. It will be of some solace to them in their loss. We are all rooting for you and

Re: [CMLHope] Marty

2015-04-02 Thread DAWN RODEGHIER
Sure wish you a speedy recovery, continue to send my prayers! Jim Rodeghier  On Thursday, April 2, 2015 7:48 PM, gene and guy Larcher wrote: Dear Marty, Hope you feel a little better each day and that you get good news from the docs regarding your transplant. The letter you wrote t

Re: [CMLHope] Today's Test

2015-04-02 Thread Richard H
All my doctors are jumping up and down because bcr/abl dropped from 17.9+% to 1.6+% international scale. I am also. The hemoglobin is the center of attention right now. We have added an otc iron table 65mg daily and that is helping with the fatigue. I will do a CBC the end of the month to c

Re: [CMLHope] Checking in/ to all my CML friends

2015-04-02 Thread Joyce Mesnarich
Hi, Susan We live on the western edge of IL, about 50 miles south of St Louis, MO, across the great Mississippi. So we are completely across the state of IL and half of IN away from you. But this group makes us close. Right? We don't know yet if bosulif is working for Wayne. He has an appoint

Re: [CMLHope] Today's Test

2015-04-02 Thread Joyce Mesnarich
Richard, So glad to hear your great news about you dropping bcr/abl! I'm sure they will get the hemoglobin thing worked out. Joyce in IL On Apr 2, 2015, at 11:28 PM, Richard H wrote: > All my doctors are jumping up and down because bcr/abl dropped from 17.9+% to > 1.6+% internation