I checked out a few posts good to see a few I remember. I hope everyone is
doing well.
I was dx 1998 sone was 15mths he is now 19 turning 20 at the end of the
year I have just past my 18yr of CML.
Im since on Glivec 400mg and still in remission ( with a few problems as to
be expected.
I will ha
Hi Shannon and great to hear from you. So happy Gleevec is working. It quit
working for me after 5 years as you probably remember.
I am now on one of the new generation of drugs called Ponatinib. It is working
for me for one year now.
You are still a young chick. Keep fighting and taking p
Thanks for the encouragement. I may write him but not confident he would have
any different answers. Dr. Jessica Altman is completely on top of things for
me. I"ve been to two other specialists at Nwestern to dig into
causesnothing unusual except cavernous malformations turns up. Have checke
Susan, as always, I have you and Roy in my prayers. Please let us know how your
test turns out.
I just got out of hospital because my red cells bottomed out and I became very
sick. So some transfusions and several days later, just came home. I will be
undergoing more tests, might have gallblad
Hi Susan and Marcie
Prayers for both of you. Sorry for your hospital stay but we need them when we
get sick. I hope you find the root of your problems.
I had my gallbladder out many years ago. That's some bad pain. Good luck.
Susan good luck off meds. Hang in there and fight. Blessings
So sorry to hear about a hospital stay. These are not places we want to hang
outlow red cells does not sound good, but I'm sure you have great docs. Was
that low a gradual thing or quick? Seems they should or could have caught it
before you bottomed out if it was gradual.
I sure hope it tu
Marcie,
I'm hoping for some quiet time for you and your hubby. Not exactly dull, but
peaceful!
Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and
shall have wonderful peace." Ps.37:11
On Thursday, March 24, 2016 'Marcie Goodman' via CMLHope
wrot
Thank you so much, Jeanie!!! You are special to us all. How's the sideache and
any more tests about it specifically?
18"s,
Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and
shall have wonderful peace." Ps.37:11
On Thursday, March 24, 2016 'Icando
Hi Susan and thanks so much.
My side pain is still bad but tests show nothing. Just treating the pain. I
read something about an MS hug. My side pain has a lot of similarities to
that.
I think the tkis caused this as it got worse when I had to go on Tasigna.
My Creatine was up but it seems
Hi Richard,
I just got my pacemaker and will go to the hospital this Monday morning to
have my staples removed. What a difference that pacemaker has on me. No
more a-fibs but the ones that are still there are very mild and the doctor
tells me I shouldn't worry and not to be concerned.
18's,
Mart
Hi. Marcie.Did your platelets also bottom out with your red cells?A year ago
April I lost almost every single platelet, and also needed 6 blood transfusions
in a week. The specialists had blamed it on my lupus. I recovered and strangely
lost a LOT of hairbut I have been very well since then.
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