Re: [CMLHope] 15th CML Anniversary Today

2012-08-06 Thread Donald Donofrio
That is good news.  My wife started her 13th year in May and is also on Gleevec.   Don Donofrio From: Virginia Garner vgar...@doglover.com To: cmlhope@googlegroups.com Sent: Mon, August 6, 2012 2:32:03 PM Subject: [CMLHope] 15th CML Anniversary Today Today I

Re: [CMLHope] Re: loss of effectiveness of gleevec and sprycel

2012-03-14 Thread Donald Donofrio
@googlegroups.com Sent: Wed, March 14, 2012 6:50:20 AM Subject: [CMLHope] Re: loss of effectiveness of gleevec and sprycel I just had very successful Spinal Stenosis surgery at The Mayo Clinic. I was out in less than 24 Hrs., and am now pain-free! Frank On Mar 13, 6:42 am, Donald Donofrio donalddonof

Re: [CMLHope] loss of effectiveness of gleevec and sprycel

2012-03-13 Thread Donald Donofrio
My wife has been on Gleevec since we went to Detroit in phase three of testing. She takes 200 mg. daily.  My name is Don    Don Donofrio From: robert goodrich cinem...@yahoo.com To: cmlhope@googlegroups.com cmlhope@googlegroups.com Sent: Mon, March 12, 2012

Re: [CMLHope] Re: loss of effectiveness of gleevec and sprycel

2012-03-13 Thread Donald Donofrio
May 1 will start my wife's 13th year with CML and gleevec.  Her readings are normal and she returns to the doctor every 5 weeks.  her problem is she has spinal sinuous and has to us a walker.  The CML is in remission.   Don Donofrio From: Frank

[CMLHope] Fw: toon

2011-04-29 Thread Donald Donofrio
  Don Donofrio - Forwarded Message From: johndon...@aol.com johndon...@aol.com To: jjet...@aol.com Sent: Fri, April 22, 2011 11:35:36 PM Subject: toon Subj: toon -- [CMLHope] A support group of http://cmlhope.com - You received this

[CMLHope] Gleevac

2011-01-26 Thread Donald Donofrio
They raised my wife's gleevac for $75.00 to $168.00.  Did anyone have theirs raised and are you on another pill or what can be done about this? Thanks, don Don Donofrio -- [CMLHope] A support group of http://cmlhope.com - You received this

[CMLHope] Face

2010-10-13 Thread Donald Donofrio
My wife has C.M.L. for 11 years and is on 400mg. of Gleevac.  Lately when she gets up in the morning her face is swollen and sometime her eyes are almost shut.  Any one have this problem?  If so what did you do for it?  thanks, Don Don Donofrio -- [CMLHope] A support group of

Fw: [CMLHope] Face

2010-10-13 Thread Donald Donofrio
Don Donofrio --- On Wed, 10/13/10, Donald Donofrio donalddonof...@sbcglobal.net wrote: From: Donald Donofrio donalddonof...@sbcglobal.net Subject: [CMLHope] Face To: c...@yahoogroups.com, CMLHOPE@googlegroups.com Date: Wednesday, October 13, 2010, 10:14 AM My wife has C.M.L. for 11

[CMLHope] face

2010-05-18 Thread Donald Donofrio
My wife has been getting up in the morning and her face is swollen and her eyes almost shut.  Do any of you have the same problem or an answer.  Thanks.  Don Don Donofrio -- [CMLHope] A support group of http://cmlhope.com - You received this

[CMLHope] Re: Gleevec

2009-01-20 Thread Donald Donofrio
My wife have been on Gleevec sine phase three of the trials. She is doing fine except she has had a weight loss of 35 pounds and has a lot of diarrhea. Don Donofrio --- On Mon, 1/19/09, dstuede...@aol.com dstuede...@aol.com wrote: From: dstuede...@aol.com dstuede...@aol.com Subject: [CMLHope]

[CMLHope] Re: !3 Yr Old Son Diagnosed in August

2008-11-07 Thread Donald Donofrio
Mr wife takes Gleevac. May started her 10th year.  Don Don Donofrio --- On Tue, 11/4/08, John Penrose [EMAIL PROTECTED] wrote: From: John Penrose [EMAIL PROTECTED] Subject: [CMLHope] Re: !3 Yr Old Son Diagnosed in August To: CMLHope@googlegroups.com Date: Tuesday, November 4, 2008, 6:50 AM

[CMLHope] Itch

2008-05-15 Thread Donald Donofrio
My wife started her 10 year with CML. She now has an itch with no rash. Anyone have the same and what is being done to relieve the itch. Thanks, don Don Donofrio --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com

[CMLHope] Re: 5th Anniversity Dave

2008-03-02 Thread Donald Donofrio
We went to Detriot,Mi. for phase trhee of gleevec. My wife has CML for 8 years. She is doing well but the side effects sometimes are very hard on her. Don [EMAIL PROTECTED] wrote: Hi Jeanie, I started Gleevec (STI571) the first week in February 2000 in a study out of

[CMLHope] Re: RESULTS OF FLOW CYTOMETRY REPORT please explain?

2008-02-05 Thread Donald Donofrio
My wife takes 4 megs of Gleevec and she has a rash. Did you or have you gotten a rash. Thank you, Don She has had CML for 9 years [EMAIL PROTECTED] wrote:Hi Kathy, thanks for the uplifting; I am happy with that report, but I have gotten those reports before with no bad cells found

[CMLHope] Re: a 4 or 5 year trend of losing negative statis while on Glee...

2008-02-04 Thread Donald Donofrio
My wife has a bad rash all over her body. She takes 400 of gleevac. what did you do for the rash? [EMAIL PROTECTED] wrote: Hi all again, I should let you know that I started at 4 pills a day, but back then they didn't know a hole lot about STI571 (Gleevic). I got the rash and

[CMLHope] Re: a 4 or 5 year trend of losing negative statis while on Glee...

2008-02-04 Thread Donald Donofrio
My wife has a bad rash all over her body. She takes 400 of gleevac. what did you do for the rash? [EMAIL PROTECTED] wrote: Hi all again, I should let you know that I started at 4 pills a day, but back then they didn't know a hole lot about STI571 (Gleevic). I got the rash and

[CMLHope] Itchy

2008-01-13 Thread Donald Donofrio
Itchy discolored areas all over my body. Does any else have this problem. Don Donofrio --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to

[CMLHope] itchy

2008-01-13 Thread Donald Donofrio
I have discolored areas which are itchy beneath the skin. Does anyone have this problem. Thanks Don Donofrio --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message