[CMLHope]

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[CMLHope] health care in US

Thany( you didn't show your name!!) so I used part of your email address. Your English is exceedingly good!! I am sorry for your diagnosis & remember all too well how overwhelming the news was!! My husband was diagnosed 3 years ago in Nov 2004. It has been a very hard journey for

[CMLHope] Coumadin

my hubby had a knee replaced right after Christmashe had to take Coumadin for almost 2 months after the surgery to prevent blood clots Really, the main concern was that his Red blood cell count dropped SO low that his anemia became more pronounced. So, though he was going to physical

[CMLHope] Terry in Texas

just wanted folks to know that Terry is doing great from the knee replacement surgery however, he is having blood in his stool & is feeling "poorly"..he is taking Coumadin & the oncologist is hoping that maybe between the family doctor & surgeon visits we are going to take Terry to tomo

[CMLHope] Terry in Texas

Terry was still doing poorly from all over body pain after Thankgiving. He has had xrays on his elbows & ankles and nothing significant. Xrays & MRI on his knees did show that he had no cartiledge left & our family doc was amazed that Terry was able to be upright especially considering h

[CMLHope] Sprycel, babies, joint pain

Terry is on a medical study, and officially he is supposed to wear condoms since they don't know what Sprycel "might" do to seminal fluid and how the woman's body will react to the possible changes. I wrote the other day how Terry has been doing VERY well as to side effects compared to t

[CMLHope] Sprycel, also Allopurinol

my dh, Terry, has been on Dasatinib (he is on medical study) since basically April 1st, and it is night & day difference for him compared to the suffering he had taking Gleevec. The side effects from Gleevec were going to kill him long before the leukemia would have. That sounds harsh,

[CMLHope] causes of CML

first, Terry has had various minor dental work done, fillings, etcdidn't seem to concern our dentist at all that Terry has CML   Terry did smoke some as an older teenand a "bit" during his young adulthood.when we were young married, he would smoke some at work...but never, ever at

[CMLHope] Katy & no Gleevec

Katy,   my dh, Terry, was literally falling apart due to all the side effects from Gleevec and the CML...they were killing him, long before the leukemia would have gotten him.   After another long hospital stay, Terry was taken off Gleevec.  The scary thing for us was that they didn't do anyt

[CMLHope] Fwd: benzene

this is a link I copied from AOL...so it may not be clickable, so go to 8/25 of USA Today & you can easily find itbut it has to do with class action lawsuits, soft drink companies, specifically Coca Cola & benzene.   Interesting reading http://www.usatoday.com/money/industries/food/20

[CMLHope] Sprycel Patient Assistance

Spring - Sprycel-Lash Group.Patient Assistance Benefits Investigation   1-877-477-7923   you MUST talk to this group first to be "added" to the assistance program before they will accept the application that Rob sent the PDF file for earlier.   If you DO have insurancethis is how

[CMLHope] Dasatinib - Irene

Irene...   I had contacted Bristol Meyer Squibb back in April before Dasatinib was approved by FDA to ask about patient assistance.   The girl I talked to was fairly sure it would be in their Patient Assistance program just like Gleevec was available through Novartis.    This means that you

[CMLHope] Gleevec & heart issues

well, I can only share Terry's experience.   He was having heart palpitations in mid February & was admitted to the hospital.   Luckily, his heart seems fine & they even did a vein scan on his legs, etc.   However, this was basically the last straw of side effects that were basically going t

[CMLHope] Dasatinib & purchasing Gleevec

my hubby did extremely poorly on Gleevec, to the point of hospital stay & the oncologist finally taking him off treatment.   Dasatinib has been the complete opposite for Terry.he even has worked a full 40 hours the past week.   wowis really as simple as we can say.   Terry has still

[CMLHope] San Antonio

Mary Jean & Gay   we live in north Texas & have only met one other lady in our area who is currently in remission   we will hopefully be in San Antonio around July 29 through Aug 1st for a small vacation if you would like to meet up..we will want to eat at Casa Rio on the Riverwalk a coup

[CMLHope] nerve type pain

my dh, Terry, experiences great pain throughout his body. On Gleevec, it was at times excrutiaing and required pain meds such as Vicodin. Unfortunately, pain meds would interfere with his work, so most often, he did without that comfort measure. he experienced a "holiday" from pain when he

[CMLHope] muscles

with Terry, he had severe bone/muscle pain...but instead of "hard" muscles...his deterioratedhe has no "muscle" now...just all "flab".   That was one of the first tip-offs to me that there was something wrong with him.   I was rubbing his upper arm & was so used to his "big, strong" arms

[CMLHope] chlorine pools

dh Terry had severe side effects with Gleevec during the 14 months that he took itbut though he bruised easily, his skin never seemed "thin".   No one warned us about a potential problem, so Terry did swim in chlorine pools quite a bit last summer.   Never seemed to have a problem or ras

[CMLHope] Happy Birthday to Richard T.

I think I understood that your birthday will be May 7th??   if so, and regardless when...   Happy Birthday to you   Happy Birthday to you   Happy Birthday to you, Richard   Happy Birthday to you   From Terry & Lora Gleaton...very grateful for the support & patient answering of our newbie q

[CMLHope] healthcare aid

Rob & others.   we make too much money to qualify for other government aid   Medicaid income limit is $350 for Terry to qualify...we make about $1600 to $2200 (in Feb, we only earned $1000 due to Terry in the hospital).they do cover our children, but that varies from month to month dependi

[CMLHope] update on Terry in Texas

  Howdy!   I have been SO exhausted that I just haven't been on the computer much to write & update folks on Terry's condition.   Terry did return to work last week, and with taking Synthroid, for his non functioning thyroid and he seems to be much better ...more physically active & social.

[CMLHope] update..Terry in Texas

well, all I can say is that we have gone through severe ups & downs.   a bmb in early Novresults weren't totally upsetting or surprising...basically, still Phila chromosomes to contend with...Terry then was then upped to 800mg on Gleevec for over 2 months.another blood workup in