[CMLHope] Chat Reminder - Tuesday May 10, 2011 - 9:00 PM

2011-05-10 Thread Zavie Miller
dose that they have the obligation to continue treating the patient if the dose has to be increased. Please take the time to sign this petition. Zavie Miller CML ZERO CLUB Number 102 Sorry to intrude, but I'd like a favour Below is a email I've just sent to my MP (Jim Dowd). P

[CMLHope] FW: My Bone Marrow Cancer drug.

2011-05-10 Thread Zavie Miller
s too expensive and if they came up with the money for the initial dose that they have the obligation to continue treating the patient if the dose has to be increased. Please take the time to sign this petition. Zavie Miller CML ZERO CLUB Number 102 Sorry to intrude, but I'd like a favour

[CMLHope] Chat Reminder - April 26, 2011 - 10:00 PM Eastern - Using Skype

2011-04-26 Thread Zavie Miller
Chat Reminder - April 26, 2011 - 10:00 PM Eastern - Using Skype Photos - Sorry, none tonight -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHop

[CMLHope] Invitation to view Zavie Miller's Picasa Web Album - Apr 12, 2011 - Chat Reminder

2011-04-12 Thread Zavie Miller
m/lh/sredir?uname=zavie.miller&target=ALBUM&id=5 594854884702146689&authkey=Gv1sRgCIz_wLbhxsKR2QE&feat=email> Apr 12, 2011 - Chat Reminder Apr 12, 2011 by Zavie Miller <https://picasaweb.google.com/lh/sredir?uname=zavie.miller&target=ALBUM&id=5 59485488470

[CMLHope] Chat Reminder - Tuesday April 12, 2011 - 9:30 PM - Using Skype

2011-04-12 Thread Zavie Miller
Chat Reminder - Tuesday April 12, 2011 - 9:30 PM - Using Skype Photos - To come later. Too busy today to set them up. Zavie -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed

[CMLHope] Chat Reminder - Tuesday April 5, 2011 - 9:00 PM Eastern

2011-04-05 Thread Zavie Miller
Chat Reminder - Tuesday April 5, 2011 - 9:00 PM Eastern Photos -Go To the link below -Leaving Florida -Soulcarving - Film debut for Ben McKinnon - https://picasaweb.google.com/zavie.miller/20110405CMLChatReminder900PMEaster nUsingSkype5# -- [CMLHope]

[CMLHope] Chat Reminder - March 29, 2011 - 9:30 PM

2011-03-29 Thread Zavie Miller
Chat Reminder - March 29, 2011 - 9:30 PM Photos - CMLers in Delray, Florida - BBQ at a Friends - Great Sunset https://picasaweb.google.com/zavie.miller/20110329ChatReminder# -- [CMLHope] A support group of http://cmlhope.com

Re: [CMLHope] How do I get a post on the board to the group?

2011-03-26 Thread Zavie Miller
roup of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this gro

Re: [CMLHope] HELP!

2011-03-26 Thread Zavie Miller
his group at > http://groups.google.com/group/CMLHope Hi Kelly, Here are Dr. Druker's coordinates. Dr. Brian Druker druk...@ohsu.edu 503-494-5596 My best advice to you is to see him on consultation ASAP. You situation requires the help of a CML pro. There are others who can help. Zavie Dr. M

[CMLHope] Chat Reminder - Tuesday March 22, 2011 - 9:30 PM

2011-03-22 Thread Zavie Miller
Chat Reminder - Tuesday March 22, 2011 - 9:30 PM Photos - Turtles - Market - St. Paddy's Day Party - Friends https://mail.google.com/mail/?shva=1#inbox/12ede89c9e5617a9 I may be late getting on tonight, but hang in there. Zavie -- [C

[CMLHope] Chat Reminder - Tuesday March 8, 2011 - 9:00 PM Eastern

2011-03-08 Thread Zavie Miller
Chat Reminder - Tuesday March 8, 2011 - 9:00 PM Eastern Photos - In and around WPB, FL https://mail.google.com/mail/?shva=1#inbox/12e97d8bd5e1f16c -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscr

[CMLHope] Chat Reminder - Tuesday March 01, 2011 10:00 PM - Using Skype

2011-03-01 Thread Zavie Miller
Chat Reminder - Tuesday March 01, 2011 10:00 PM - Using Skype Photos - Two outings https://picasaweb.google.com/lh/sredir?uname=zavie.miller&target=ALBUM&id=5579176476476432337&authkey=Gv1sRgCOmyqZeJnILl2AE&feat=email https://picasaweb.google.com/lh/sredir?uname=zavie.miller&target=ALBUM&id=5578

[CMLHope] Invitation to view Zavie Miller's Picasa Web Album - Chat Reminder - February 15, 2011 - 9:00 PM - Using Skype

2011-02-15 Thread Zavie Miller
ttps://picasaweb.google.com/lh/sredir?uname=zavie.miller&target=ALBUM&id=5 573973361898727233&authkey=Gv1sRgCO-juN_smM_7Ow&feat=email> Chat Reminder - February 15, 2011 - 9:00 PM - Using Skype Feb 15, 2011 by Zavie Miller Old Friends Meet at Syd's in Deerfield, FL Harriet &

[CMLHope] Chat Reminder - February 15, 2011 - 9:00 PM Eastern - Using Skype

2011-02-15 Thread Zavie Miller
Chat Reminder - February 15, 2011 - 9:00 PM Eastern - Using Skype Photos - To come later Zavie -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To po

Re: [CMLHope] pcr count increased last visit

2011-02-10 Thread Zavie Miller
there as a 1 log or greater change and then ask to be retested. It looks like your doctor is right on top of it. I can say don't worry, but if I had a 1 log increase I would ask to be retested. Zavie Zavie Miller (age 72) Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No m

[CMLHope] Chat Reminder - Tuesday February 8, 2011 - 9:30 PM = Using Skype

2011-02-08 Thread Zavie Miller
Chat Reminder - Tuesday February 8, 2011 - 9:30 PM = Using Skype Photos - Go to the following web site to view them https://picasaweb.google.com/zavie.miller/ChatReminder20110208# Our home in WPB,FL Making Cancer History Symposium - MDACC Norton Art Gallery - 70th Birthday -- [CMLHope] A s

[CMLHope] RE:

2011-02-07 Thread Zavie Miller
YOUR MACHINE IS STILL INFECTED. ZAVIE _ From: Halff Phast [mailto:halfph...@yahoo.com] Sent: February-07-11 11:31 AM To: highhop...@yahool.com; janet.ruzy...@mol.gov.on.ca; jam_92...@yahoo.com; CMLHope@googlegroups.com; zmil...@sympatico.ca; cheryl.simon...@medsummit.com; r..

[CMLHope] Chat Reminder - Tuesday February 1, 2011 - Using Skype - 10:00 PM Eastern

2011-02-01 Thread Zavie Miller
Chat Reminder - Tuesday February 1, 2011 - Using Skype - 10:00 PM Eastern Photos - Susan Komen Run For The Cure - West Palm Beach - FL - Just too many photos. Click on the URL to see them all. https://picasaweb.google.com/zavie.miller/ChatReminder02?feat=email# -- [CMLHope]

[CMLHope] Chat Reminder - Tuesday January 11, 2011 - 9:00 PM Eastern

2011-01-11 Thread Zavie Miller
Chat Reminder - Tuesday January 11, 2011 - 9:00 PM Eastern -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLH

[CMLHope] Invitation to view Zavie Miller's Picasa Web Album - 20101228 - Chat Reminder

2010-12-28 Thread Zavie Miller
edir?uname=zavie.miller&target=ALBUM&id=55 55912039485395537&authkey=Gv1sRgCM368-i3s7KFGA&feat=email> 20101228 - Chat Reminder Dec 28, 2010 by Zavie Miller Chat Reminder - Tuesday December 28, 2010 - 9:00 PM - Using Skype 5.0 Photos - 231210 - Montreal - Jewish Cemetery Visit -

cmlhope@googlegroups.com

2010-12-20 Thread Zavie Miller
Wishing you, your family and friends a Happy Winter Solstice. It's a day early because I'd also like to remind you of the Lunar Eclipse that happens tonight. It is best seen in North America. I love the Winter Solstice because it marks the date when the days start getting longer. Best w

[CMLHope] Chat Reminder - Tuesday December 07, 2010 - 9:30 PM - Using Skype 5

2010-12-07 Thread Zavie Miller
ember-07-10 7:19 PM To: Zavie Miller Subject: Talpaz Dear Giora, Zavie, Pat, Erin, was great seeing you in Orlando - so much enjoyed it! You should see this http://patientpower.info/video/provocative-questions-for-cml-patients-and-th eir-doctors "Provocative Questions For CML Patients

[CMLHope] RE: [cml 2]

2010-11-01 Thread Zavie Miller
This attachment contains a virus. My virus protector reported the following. Kaspersky Internet Security 2010 Access denied The requested URL could not be retrieved While trying to retrieve the URL: http://rs108l34.rapidshare.com/files/ 428259996/surprise.exe The following thre

[CMLHope] Chat Reminder - Tuesday August 03, 2010 - 9:30 PM - Using Skype

2010-08-03 Thread Zavie Miller
Skype contacts. My Skype address is Zavie Miller. To get Skype on your system, simply go to skype.com and click on Get Skype. It's a simple installation. Zavie -- [CMLHope] A support group of http://cmlhope.com - You received this me

[CMLHope] # 1341

2010-07-22 Thread Zavie Miller
*YAHOOO!!! YIPPEEE!!!* *Number 1341 in the Zero Club* *Zavie * Fan, Maybe you could tell us a little bit about your self. Fen is 19 (young for CML) and lives in China. Zavie -- Zavie Miller (age 72) Ottawa, Canada dxd AUG/99 4.4 log reduction -- [CMLHope] A support group of http

[CMLHope] Chat Reminder June 22nd 2010

2010-06-22 Thread Zavie Miller
Hi Everyone, You'll be chatting without me this evening, as I am currently still in Europe. I spent the weekend at the New Horizons meeting in Austria, and am now in Amsterdam visiting my daughter. I'll be back as normal next week. Best regards, Zavie Zavie Miller (age 70) 67 Shore

[CMLHope] Chat Reminder - Tuesday June 8, 2010 - 9:30 PM

2010-06-08 Thread Zavie Miller
Chat Reminder - Tuesday June 8, 2010 - 9:30 PM -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroup

[CMLHope] CML Presentation in Montreal - Friday May 28, 2010 - 7:00 PM - Dr. Elias Jabbour

2010-05-27 Thread Zavie Miller
nne...@lls.org> carole.mur...@lls.org Zavie Miller (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction

[CMLHope] Chat Reminder - Tuesday May 4, 2010 - 9:30 PM - Using Skype

2010-05-04 Thread Zavie Miller
Chat Reminder - Tuesday May 4, 2010 - 9:30 PM - Using Skype Photos - Tulips in Full Bloom -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group.

Re: [CMLHope] BMB's - still necessary or "the way we have always done it"?

2010-04-19 Thread Zavie Miller
uot;CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > -- Zavie Miller (age 71) 67

Re: [CMLHope] Pleural effusion on dasatinib

2010-03-18 Thread Zavie Miller
go off and stay off all meds. It is very exciting. You don't have to be at PCRU to participate. I would write him, explain your history and ask him if you would qualify for the trial. Zavie *Zavie Miller (age 71)* *67 Shoreham Avenue* *Ottawa, Canada, K2G 3X3* *dxd AUG/99* *INF OCT/99

Re: [CMLHope] CML Combo/Trials...The cure we have been waiting for?

2010-03-18 Thread Zavie Miller
, if > possible. Thanks so much for your info. > > Karyn > > - Original Message - > From: "Zavie Miller" > To: "cmlh...@googlegroups. com" > Sent: Thursday, March 18, 2010 11:26:07 AM GMT -07:00 U.S. Mountain Time > (Arizona) > Subjec

[CMLHope] CML Combo/Trials...The cure we have been waiting for?

2010-03-18 Thread Zavie Miller
he same time to help ourselves and the CML community world wide. Please consider doing your part. Regards, Jerry Zavie - Zavie Miller (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102

Re: [CMLHope] Finally made it to 00.00 after 6 years

2010-03-18 Thread Zavie Miller
MLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope -- Zavie Miller (age 71) 6

Re: [CMLHope] Re:

2010-03-03 Thread Zavie Miller
gt; You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit thi

[CMLHope] Beep! It's Your Medicine Nagging You

2010-03-03 Thread Zavie Miller
ts to take medicine. http://online.wsj.com/article_email/SB10001424052748703431604575095771390040 944-lMyQjAxMTAwMDAwMjEwNDIyWj.html Zavie Miller (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/

Re: [CMLHope] Shortness of breath on sprycel

2010-02-11 Thread Zavie Miller
; I'm in remission, I just don't know what kind...if you know what I mean. > But I am a Zero Club Member! > > Thanks!!! > Lenda > > Original Message - > From: "Zavie Miller" > To: cmlhope@googlegroups.com > Sent: Thursday, February 11, 2010 12:1

Re: [CMLHope] Shortness of breath on sprycel

2010-02-11 Thread Zavie Miller
oups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > -- Zavie Miller (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF

Re: [CMLHope] Group Chats

2010-02-03 Thread Zavie Miller
Hi Marcie, The chat is done using Skype and not the telephone. If you have Skype on your system, simply tell me yout Skype address and I will contact you. My Skype address is 'Zavie Miller'. If you don't have Skype on your system, it is a simple download and install by going to s

[CMLHope] Novartis changes CEO amid record results

2010-01-26 Thread Zavie Miller
http://www.swissinfo.ch/eng/business/Novartis_changes_CEO_amid_record_result s_.html?cid=8165546 Zavie Miller (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log

Re: [CMLHope] nilotinib (tasigna) itch, rash

2010-01-23 Thread Zavie Miller
rom this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > -- Zavie Miller (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Glee

Re: [CMLHope] Single 400 Gleevec pill

2009-12-29 Thread Zavie Miller
send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > -- Zavie Miller (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd A

Re: [CMLHope] Feeling a little selfish

2009-12-24 Thread Zavie Miller
Hi Tom, All you need to join the Zero Club is to reach CCR. 0/20 does it for a BMB and 0.1 does it for a PCR test, So, 0.05 puts you into the club. *YAHOOO!!! YIPPEEE!!! Number 1292 in the Zero Club Zavie* On Sat, Dec 19, 2009 at 1:16 PM, wrote: > Zaviehope all is well with you! What doe

Re: [CMLHope] Feeling a little selfish

2009-12-18 Thread Zavie Miller
ubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope -- Zavie Miller (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 t

[CMLHope] # 1287

2009-12-18 Thread Zavie Miller
Of the 37 side effects, I probably had 34, but after 10 months, I began to feel much better and am in "total remission". My one year anniversary on Gleevec is January 28, 2010. I will pray for you as I do all the CML Warriors. Sandy Byrd -- Zavie Miller (age 71) 67 Shoreham Ave

[CMLHope] Petition for Trial of R1507 in GIST

2009-12-01 Thread Zavie Miller
Dear Friends and family, This is an important petition. I have become involved with GIST because the same drug (Gleevec) which keeps my Chronic Myeloid Leukemia in remission also works for GIST patients. Like for CML, Gleevec doesn't work in all cases and there are new drugs that do work. R15

[CMLHope] Skip Duffie

2009-11-21 Thread Zavie Miller
over. This has helped dramatically and we will see what the future brings. Dr. Marin doesn't think he should be subjected to any of the CML drugs. Skip has had CML for over 32 years. Zavie Zavie Miller (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00,

[CMLHope] Re: Novartis drug TasignaR meets primary endpoint in pivotal trial against GlivecR as first-line treatment in chronic myeloid leukemia patients

2009-11-03 Thread Zavie Miller
when a patient achieves CCR. Zavie Zavie Miller (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log redu

[CMLHope] Novartis drug TasignaR meets primary endpoint in pivotal trial against GlivecR as first-line treatment in chronic myeloid leukemia patients

2009-10-20 Thread Zavie Miller
http://www.pipelinereview.com/index.php/2009102030206/Small-Molecules/Novart is-drug-Tasigna-meets-primary-endpoint-in-pivotal-trial-against-Glivec-as-fi rst-line-treatment-in-chronic-myeloid-leukemia-patients.html Zavie Miller (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99

[CMLHope] Re: Chat Reminder - Tuesday August 25, 2009 - 9:00 PM

2009-09-07 Thread Zavie Miller
Hi Maggy, To participate in the CML Chat you need to be on Skype. If you don't have Skype on your system it is very easy to install. Just go to Skype.com and download and install the software. My user name is Zavie Miller. Contact me at any time and I will explain how it works. You will

[CMLHope] Chat Reminder - Tuesday August 25, 2009 - 9:00 PM

2009-08-24 Thread Zavie Miller
Chat Reminder - Tuesday August 25, 2009 - 9:00 PM Photos - No Photos today - I'm away for a few days. Will post when I get back. John and Tracy will moderate. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com --

[CMLHope] Re: Long-term PCRU

2009-08-07 Thread Zavie Miller
had also tried him on Tasigna with the same effects > they > > > were so bad he wasn't able to get out of bed.what kind of life was > that? > > We > > > trust the doctors that he is seeing and know that everyone has > different > > > opinions. > >

[CMLHope] Re: gleevec dosages

2009-08-07 Thread Zavie Miller
ec or just let things run its course. I wish all of you the very best > that life can offer, and I thank you for reading this long post. My on-line > name is boopshin. Stupid isn't it. > Love to all. Bev > > > > > > > -- Zavie Miller (age 69) 67 Shoreham Aven

[CMLHope] Scientists who developed Novartis CoartemR and GlivecR receive 2009 ''European Inventor of the Year'' awards

2009-05-14 Thread Zavie Miller
http://www.prdomain.com/companies/N/Novartis/newsreleases/200951471389.htm For those on my chat list (BCC), take the time to read this news release. It will give you a glimpse of a pharmaceutical company that does the right thing. Zavie Zavie Miller (age 70) 67 Shoreham Avenue Ottawa, Canada

[CMLHope] Re: Trouble with Prescription

2009-04-15 Thread Zavie Miller
..they say that that seems to help with the fatigue as > > well as the muscle aches and bone pain. Just don't give up on > > life.you keep going each day. And, if you need a restthen lay > > down for a bit and take it. The first year I was on Gleevec, I spent &g

[CMLHope] Re: Eye bleeding

2009-02-22 Thread Zavie Miller
eye bleeding? > > Kothai > > > > -- Zavie Miller (age 69) 67 Shoreham Avenue Ottawa, Canada, dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club PCRU 5/02 at RVH (suspect) 2.8 log reduction Sep/05 3.0 log re

[CMLHope] Re: Pregnant & off Gleevec, 2 years in remission

2009-02-13 Thread Zavie Miller
hankful that I > have gotten this far in the pregnancy and am still PCRU. I can only > hope it continues to the end! > > Lori > > > -- Zavie Miller (age 69) 67 Shoreham Avenue Ottawa, Canada, dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/

[CMLHope] Re: Latest BCR-ABL Test Results

2008-12-21 Thread Zavie Miller
ime after reaching > > this goal. My graph looks like a roller > > coaster ride. (hehehe) I'm working on five years next > > month.Yippee!!! > > > > God bless and please have a very Merry Christmas everyone! > > > > Keep Looking Up, >

[CMLHope] Re: what's the importance of BCR ABL Mutation Analysis?

2008-09-17 Thread Zavie Miller
is result, > sometimes Sprycel work for T315I or the other Mutations. And it's > better that in every status, I try Sprycel. > > > > But I want to know more about the importance of this test. > > God Bless Everybody > Being Happy > Hoosha > > > > &

[CMLHope] Re: Medical Articles 9/17

2008-09-17 Thread Zavie Miller
dnesday, September 17, 2008, 12:24 PM > > > Medical Articles 9/17 <http://cmlhope.com/?p=1986> > > > > > -- Zavie Miller (age 69) 67 Shoreham Avenue Ottawa, Canada, dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP

[CMLHope] Chat Reminder - Tueday 9:00 PM Eastern

2008-08-18 Thread Zavie Miller
I will be away on Tuesday. We are taking our grand niece for vist to Niagara Falls. John and Tracey will handle the chat. Zavie Chat Reminder - Tueday 9:00 PM Eastern Photos - Ottawa Folk Festival --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope

[CMLHope] Re: FISH Results

2008-07-12 Thread Zavie Miller
27;t know the results for a couple weeks. Any > comments would be greatly appreciated. > > Thanks. > Donna, wife of Jim > DXD 6/25/99 > Gleevec 100 mg/day > > > -- Zavie Miller (age 69) 67 Shoreham Avenue Ottawa, Canada, dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FE

[CMLHope] Re: Chat Reminder - 9:00 PM DST - Tuesday

2008-07-10 Thread Zavie Miller
writing > on the side. Great pictures, they always are. > > > > greenie > > > > -- > Gas prices getting you down? Search AOL Autos for fuel-efficient used > cars<http://autos.aol.com/used?ncid=aolaut000507> > . &g

[CMLHope] Re: My son Status

2008-06-23 Thread Zavie Miller
as 5% in april - so his LMC is under control. > Now I'm fighting to keep his young mind ok - not easy job for a young boy > (19 y) that can't do the same things as the others cause of the side > effects > But I'm always keeping goingnever give up! > Ricardo. >

[CMLHope] Re: Status

2008-06-03 Thread Zavie Miller
dal). Am seeing a > psychiatrist and therapist due to this but they are not much help even > though I am on Wellbutrin and Klonopin to try to control the symptoms. > These practitioners are highly esteemed in my opinion and it is > through no fault on their part that the veil of blackn

[CMLHope] Chat Reminder - Tuesday 9:00 PM Eastern

2008-05-20 Thread Zavie miller
Chat Reminder - Tuesday 9:00 PM Eastern Photos - Last weekend of the Tulip Festival --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to t

[CMLHope] Re: what time of the day do you take you gleevec?

2008-05-11 Thread Zavie Miller
at's for Dinner Tonight? Get new twists on family favorites at > AOL Food <http://food.aol.com/dinner-tonight?NCID=aolfod000301>. > > > > -- Zavie Miller (age 69) 67 Shoreham Avenue Ottawa, Canada, dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleev

[CMLHope] Re: Question on Tuesday chat

2008-03-27 Thread Zavie Miller
Hi Roderick, You will need Skype on your system. If you don't have it, it is a simple download and instal. Go to Skype.com download it and run it. My Skype address is Zavie Miller. Once you are on, just call me and we will give it a try. We normally chat on Tueday evening, but once I se

[CMLHope] Re: Pain medications while taking Gleevec

2007-12-07 Thread Zavie Miller
t; top > money > wasters<http://money.aol.com/top5/general/ways-you-are-wasting-money?NCID=aoltop000302>of > 2007. > > > > -- Zavie Miller (age 69) 67 Shoreham Avenue Ottawa, Canada, dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since

[CMLHope] RE: [cml 2] Chat Reminder - Tuesday 9:00 PM - Eastern

2007-11-27 Thread Zavie Miller
Chat Reminder - Tuesday 9:00 PM - Eastern I'm in Amsterdam now and won't be able to join the chat. 3:00 AM Eastern is a little early for my bones. Zavie [Non-text portions of this message have been removed] --~--~-~--~~~---~--~~ [CMLHope] A support group

[CMLHope] Re: fatigue

2007-10-27 Thread Zavie Miller
t; Hang in there & God bless you and all my brothers and sisters on CML Hope. > Frank > Kendall Pk. N.J. > > > > -- > See what's new at AOL.com <http://www.aol.com/?NCID=AOLCMP0030001170>and > Make > AOL Your Homep

[CMLHope] Chat Reminder - Tuesday 9:00 PM Eastern

2007-10-23 Thread Zavie miller
Chat Reminder - Tuesday 9:00 PM Eastern --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to

[CMLHope] Re: Jeanie

2007-10-15 Thread Zavie Miller
t; amount. No increase in ring sideroblasts. > We love when Anjana and Trey comment on e-mail as well as others. You all > have so much good anowledge. We have been reading the CML hope line for 2 > 1/2 years and have learned so much . Thank you all. Would you please > comment on Jerome

[CMLHope] Re: lost of appetite

2007-10-15 Thread Zavie Miller
months and she has lost weight, > she is still PCRU > > > > -- Zavie Miller (age 69) 67 Shoreham Avenue Ottawa, Canada, dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club PCRU 5/02 at RVH (suspect) 2.8 log r

[CMLHope] Re: Chat Reminder - Tuesday 9:00 PM - Eastern

2007-09-24 Thread Zavie Miller
-Original Message- > From: CMLHope@googlegroups.com [mailto:[EMAIL PROTECTED] On > Behalf Of Zavie miller > Sent: Monday, September 24, 2007 12:16 PM > To: [EMAIL PROTECTED]; CMLHope@googlegroups.com > Subject: [CMLHope] Chat Reminder - Tuesday 9:00 PM - Eastern > >C

[CMLHope] Bone Marrow Donation

2007-09-16 Thread Zavie miller
http://sportsillustrated.cnn.com/2007/writers/aditi_kinkhabwala/09/14/914/in dex.html Villanova and coach Talley have got their priorities right. What an inspiration. Zavie Zavie Miller (age 69) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00

[CMLHope] Re: Sprycel Hope

2007-09-12 Thread Zavie Miller
*YAHOOO!!! YIPPEEE!!!* *Number 1095 in the Zero Club* *Zavie* On 9/12/07, Zavie Miller <[EMAIL PROTECTED]> wrote: > > > > -- Forwarded message -- > From: Matt V <[EMAIL PROTECTED]> > Date: Sep 12, 2007 9:44 AM > Subject: [CMLHope] Sprycel Hope >

[CMLHope] Re: New website-CMLkids

2007-09-06 Thread Zavie Miller
On 9/6/07, Tony Lanoue <[EMAIL PROTECTED]> wrote: > > > Does anyone have Dr druker's E mail .Tony. Dr. Brian Druker > 503-494-5596 > 503-494-3688 FAX > [EMAIL PROTECTED] > --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com

[CMLHope] Chat Reminder - Saturday - 9:00 AM

2007-08-24 Thread Zavie miller
Chat Reminder - Saturday - 9:00 AM --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this gr

[CMLHope] Re: Introduction

2007-07-29 Thread Zavie Miller
o the Gleevec. Zavie Zavie Miller (age 68) 67 Shoreham Avenue Ottawa, Canada, dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club PCRU 5/02 at RVH (suspect) 2.8 log reduction Sep/05 3.0 log reduction Jan/06 PCRU 11/06 at The O

[CMLHope] Chat Reminder - Tuesday - 9:00 PM Eastern

2007-07-03 Thread Zavie Miller
Chat Reminder - Tuesday - 9:00 PM Eastern I'm arriving from Amsterdam at 9:00 PM so I will only join the chat later on. Had a great visit with my daughter on the way to/from the Novartis New Horizons CML/GIST conference in Bad Nauheim, Germany. Zavie --~--~-~--~~~

[CMLHope] Chat Reminder - Tuesday - 9:00 PM Eastern

2007-06-26 Thread Zavie miller
Chat Reminder - Tuesday - 9:00 PM Eastern Photo: Another family has moved in --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google

[CMLHope] Re: Do any of you ever consider BMT or SCT?

2007-06-19 Thread Zavie Miller
etails here: > > http://www.caringbridge.net/visit/douglashanson > > Doug > At Day0 > > > ------ > *From:* CMLHope@googlegroups.com [mailto:[EMAIL PROTECTED] *On > Behalf Of *Zavie Miller > *Sent:* Tuesday, June 19, 2007 12:11 AM > *To:* CMLHope@googlegroups.com > *Subject

[CMLHope] Re: Do any of you ever consider BMT or SCT?

2007-06-18 Thread Zavie Miller
gt; At any rate, thank you both. > I wish all of us the same Zavie, a long and healthy life. That is the > goal for all of us eh? > Barb > > On Jun 17, 9:19 pm, "Zavie Miller" <[EMAIL PROTECTED]> wrote: > > Hi Barb, > > > > From everything that I have

[CMLHope] Re: Do any of you ever consider BMT or SCT?

2007-06-17 Thread Zavie Miller
as she grows up. Zavie Zavie Miller (age 69) 67 Shoreham Avenue Ottawa, Canada, dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club PCRU 5/02 at RVH (suspect) 2.8 log reduction Sep/05 3.0 log reduction Jan/06 PCRU 11/06 at

[CMLHope] Re: News from ASCO

2007-06-03 Thread Zavie Miller
ive at least for > five years." > > Moreover, even with evidence of dasatinib's efficacy, the durability > of the treatment effect is unknown. "We still don't know when-or if-it > will be possible to stop treatment," said Dr. Smith. "With imatinib, > we

[CMLHope] L & lLS Reminder / Chat reminder

2007-05-08 Thread Zavie miller
LLS tonight at 6:00 PM Eastern - hurry Leukemia, Lymphoma & Myeloma: Advances in Clinical Trials 1-877-407-8037\LLS is conference ID Chat at 9:00 PM Eastern Zavie --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com -

[CMLHope] Re: more drugs that affect Gleevec

2007-05-03 Thread Zavie Miller
tests during treatment. > > There may be other drugs not listed that can affect Gleevec. Tell your > doctor about all the prescription and over-the-counter medications you use. > This includes vitamins, minerals, herbal products, and drugs prescribed by > other doctors. Do not sta

[CMLHope] Re: Chat Reminder

2007-05-02 Thread Zavie Miller
Hi Lori, At 9:00 PM Eastern time. You need Yahoo Messenger. Sign on and send me (Zavie Miller) a message. Zavie On 4/30/07, Zavie miller <[EMAIL PROTECTED]> wrote: > > Chat Reminder - Tuesday 9:00 PM > > Photo: Aroused Tomato > > > > > -- Zavie Miller (

[CMLHope] Chat Reminder

2007-04-30 Thread Zavie miller
Chat Reminder - Tuesday 9:00 PM Photo: Aroused Tomato --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group

[CMLHope] Chat Reminder - Saturday 9:00 AM - EDST

2007-03-23 Thread Zavie miller
Chat Reminder - Saturday 9:00 AM - EDST --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to th

[CMLHope] Re: rt-pcr

2007-03-20 Thread Zavie Miller
ever miss an email again! > Yahoo! > Toolbar<http://us.rd.yahoo.com/evt=49938/*http://tools.search.yahoo.com/toolbar/features/mail/>alerts > you the instant new Mail arrives.Check it out.> > -- Zavie Miller (age 68) 67 Shoreham Avenue Ottawa, Canada, dxd AUG/99 INF OCT/99 to FE

[CMLHope] Re: 5mos. on Gleevec FISH at 87%

2007-03-15 Thread Zavie Miller
crease to > 600mg simply to gain faster response. My Onc agreed, with the only > comment being that we would watch the blood counts closely. I later > went back to 400mg when my PCR became negative. > > --Trey > > > > > -- Zavie Miller (age 68) 67 Shoreham Avenue Ottaw

[CMLHope] Chat Reminder - Saturday 9:00 AM

2007-03-02 Thread Zavie miller
Chat Reminder - Saturday 9:00 AM Photo: Me acting as a paper towel dispenser at the SOGH soup kitchen. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are

[CMLHope] Re: Bone Marrow Test

2007-02-08 Thread Zavie Miller
ce. Has anybody else had this challenge and if so why? I did not > have any sedation so you can just imagine how I felt. But it is over > now thank goodness. > > > > > -- Zavie Miller (age 68) 67 Shoreham Avenue Ottawa, Canada, dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB

[CMLHope] Re: Fish Test NEG

2007-01-30 Thread Zavie Miller
> Joe's fish test came back NEG. > That's all I have . No paper work yet and no numbers. Will find out in > 2 weeks. > That's on 50mg of Sprycelll once a day. > Mary > other 1/2 of Joe > dx1996 > 120on Zavie's old list what now a new number?? > >

[CMLHope] Re: 7 new messages in 5 topics - digest

2007-01-30 Thread Zavie Miller
CRU; are you beginning another list of > survivors PCR Test~~"0" and PCRU Test~~"0"??? Just a thought from my 'gold' > brain (hehe). It's Fantastic. . .We've all 'come a long way'! > > > *"K"* > *"I AIN'T FINISH

[CMLHope] Chat Reminder - Tuesday 9:00 PM EDT

2007-01-30 Thread Zavie miller
Chat Reminder - Tuesday 9:00 PM EDT Photo - Ducks walking on water (frozen) --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google

[CMLHope] Re: need advice for rash

2007-01-28 Thread Zavie Miller
;t want to go out in public because I > am so self-conscious about this. I feel like a freak. Thanks. > > > > > -- Zavie Miller (age 68) 67 Shoreham Avenue Ottawa, Canada, dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #

[CMLHope] Re: PCR results

2007-01-13 Thread Zavie Miller
the latest one has dropped to a 2.6 I have an appt on Monday with my ONC, I was wandering what kind of ? I should ask. ThanksTony. PS Zavie if your out there send me an E mail I lost all my contact info a while back. I may be in the Ottawa are next week . > -- Zavie Miller (age 68) 67 S

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