[CMLHope] Kareem Abdul Jabbar...100% cancer free?

2011-02-04 Thread alohajody
JAL has just announced he is 100% cured. Isn't he on Gleevec? Am I to understand that he is 100% molecular clean? Is he going to stop taking Gleevec now that he is "cured?" anyone know? I thought the only "known" cure for CML was a BMT...I've been told not to stop taking Gleevec no matter how low

[CMLHope] Re: Procrit

2008-09-23 Thread alohajody
Hi Greenie, No, It's Mary Beth Rios out of MD Anderson in Houston. She's been right by my side since 1998 when I started with my first clinical trial of HHT/Ara-c...she has a daughter who lives in Chicago though..going to med school, I think! ;) I hate snow and cold too...my bones hurt WAY too

[CMLHope] Re: Procrit

2008-09-23 Thread alohajody
Thanks, Trey for the link...my Onc and I did discuss, and although he said "no one was sure" about CML and procriteven my 23 yr old son said it was a no brainer..."mom, why would you even risk taking Procrit now with the warning..just learn to live/cope with the tiredness" I guess I can put u

[CMLHope] Procrit

2008-09-23 Thread alohajody
Hi everyone, Has been a long time since I've posted, but read frequently. Just a quick history...was diagnosed in 1997...have been on Gleevec since 1999...am currently on 800mg day since I can't remember..2002?? anyway..besides memory loss..:)...feel pretty good..no really bad side effects..just