[CMLHope] Re: Anyone Having Short Term Memory Loss?

I, too, have short term memory loss. After reading here that it is noted to be a side-effect of Gleevec, I just tell my husband and others that piece of information. I find that once I stop thinking of what I can't remember, the name comes to me. It would be harder if you are teaching, thoug

[CMLHope] Re: Medicare Part D

Hi Jeanie, I soon will be signing up for Medicare Part D. Can you be more specific as to how much of the Gleevec Medicare pays for and how much the copay is? I understand the "gap" concept as my parents have been there with my dad's expensive heart medications. I will appreciate any informa

[CMLHope] Re: CML HAS GONE INTO ACCELERATED PHASE

uck to you and Jeanie, Dee Hedman --- On Tue, 9/16/08, C.M. Houtz <[EMAIL PROTECTED]> wrote: > From: C.M. Houtz <[EMAIL PROTECTED]> > Subject: [CMLHope] Re: CML HAS GONE INTO ACCELERATED PHASE > To: CMLHope@googlegroups.com > Date: Tuesday, September 16, 2008, 3:46 PM &g

[CMLHope] Re: Drug Interaction Checker

Patrick, thank you very much for the site to the "Drug Interaction Checker!" It is very easy to use. Have a good day...the sun is shining here in Duluth, MN, for the second day in a row! Dee Hedman --- On Sat, 5/3/08, patrick <[EMAIL PROTECTED]> wrote: > From: patric

[CMLHope] Re: Zavie Lottie Group-Skip

You do have quite a story! I was only diagnosed in July 2002 and started right away on Gleevec, and it has served me well. I am very grateful! Best of luck to you!! Dee Hedman Duluth, MN Summer usually is the third week in July up here! --- Gay Bratton <[EMAIL PROTECTED]>

[CMLHope] Re: Hand cramping

I also get cramping in my hands and feet. When I do my Pilates, my feet almost always cramp up. I try to pull my toes back toward my leg and that usually helps! Dee --- fxsage <[EMAIL PROTECTED]> wrote: > > I can also confirm the cramping. Mine occurs > in the hands, my back > and sides. T

[CMLHope] Re: Getting to hot and face turning red

I have that or if I get stressed...my face turns red. Also if I apply mosturizer or anything to my face, my face turns red. Dee Hedman --- [EMAIL PROTECTED] wrote: > In a message dated 11/8/2007 12:13:11 P.M. > Pacific Standard Time, > [EMAIL PROTECTED] writes: > I have just

[CMLHope] Re: Sprycel Hope

Matt, I am so happy for you and your fantastic report! Dee Hedman --- loewen1 <[EMAIL PROTECTED]> wrote: > > Dear Matt, > > Congratulations. There certainly is reason for > hope and reason to plan for > the future. > > Never give up! > > Susan

[CMLHope] Re: Bruising

I can certainly respond to the bruising question. Currently, I have 3 large bruises on my thigh that are two or so weeks old. We got a new wooden bed which has sharp corners on the foot board and I bumped into it several times until I learned to avoid it. Also, my lower legs have lots of scars

[CMLHope] Re: A Friend loses her battle

Dear Suzieq, Thank you for sharing your great sadness over the soon to be loss of your dear friend and prayer partner, Arlene. My prayer has been sent up in thankfulness for her life on earth and for God's healing grace for her family and for you, her friend. Sincerely, Dee H. --- Suzieq <[EM

[CMLHope] Re: JUST HAD BLOOD WORK DONE

Your blood work sounds good. I just want to suggest that you can call your pharmacist and have him check to see if there is an interaction between Gleevec and your tetracycline. My pharmacist is so good about checking things for me and also over-the-counter cold-meds, etc. Enjoy your day! De

[CMLHope] Re: FLYING HIGH...

I'm so sorry about your brother Ron's death. May time heal your sorrow. --- Christine Finsand <[EMAIL PROTECTED]> wrote: > our prayers and peace to you. > > - Original Message - > From: > [EMAIL PROTECTED] > > To: > CMLHope@googlegroups.com

[CMLHope] Re: New Diagnosis????

od work so you could have it to refer to and compare to future blood counts. Good luck to you. Dee Hedman dx. July 2002 --- "2007.jane.s" <[EMAIL PROTECTED]> wrote: > > My family doctor has told me that I "may have" > CML. I am seeing a Dr. > MOSHE TA

[CMLHope] Re: Gleevec and Macular Edema

ema. Good luck, Norm. I hope you will be able to find out more about this issue with your eyes. Our eyes are so precious, and it's something that we all may take for granted until we have problems with them. Dee Hedman - Original Message From: Norm <[EMAIL PROTECTED]> To: C

[CMLHope] Re: Chat Reminder - Saturday 9:00 AM Eastern

Nice photos, Zavie! We are finally having some snow in Duluth, MN. Lake Superior has been frozen over at this end, and people have been having great fun ice fishing,skating, biking to work, playing pick-up hockey games, and ice-boating. The ice is so smooth and clear that a small shipwreck was

[CMLHope] Re: Newcomer

Welcome to the group, Doug! As far as the BMT goes, I do have a young friend in her mid-30's who has been recovering from a BMT for a little over a year. I do not know how usual that is. I hope that you find a sibling match. That would be wonderful. Dee dx.7/02/2002 --- HMOKeefe <[EMAIL PRO

[CMLHope] Re: Age 79, my father passed away,

Dear Joe, I am so sorry to hear about your father's death. Hang on to your happy memories to help ease the pain of his parting from you. Very sincerely, Dee Hedman dx. July 2, 2002 Duluth, MN --- Joseph Cancemi <[EMAIL PROTECTED]> wrote: > Cytarabine was given to relieve b

[CMLHope] Re: 3 Year Anniversary with CML & Counting

Anjana, I agree! You are certainly an asset to all in our group. Thank you, Dee H. --- [EMAIL PROTECTED] wrote: > Anjana, > As usual thank you for responding so quickly to > my email, and for being so > informative. > Thank you for the attachments and also the > link. > Roy is so lucky to h

[CMLHope] INDIA: Church leaders urge Novartis to drop legal case on medicines in India

I thought this might be of interest to all of you fellow CMLers: [Ecumenical News International] Archbishop Desmond Tutu has put his weight behind a campaign to get the Swiss pharmaceutical company Novartis to drop a law suit against the Indian government to challenge the patent law of the worl

[CMLHope] Re: MY Perpheral Blood PCR

Congratulations, Annie on your 0.00 result on your PCR test. I can't advise you on what to do for your gleevec dosage, except make a "pro's and con" chart. --- Annie <[EMAIL PROTECTED]> wrote: > > Oh Susan - what WONDERFUL news! Negative > Nesting Testing > wow. :-) > > Always

[CMLHope] Re: Best location for east coast to try a mini transplant for elderly paitient

No, I haven't Joe...but good luck in your search. --- Joseph Cancemi <[EMAIL PROTECTED]> wrote: > I have tried Harvard but my father is too > old(age 79). I am thinking Ohio State, MD > Anderson or all the way to City of Hope in LA. > > Anyone had any experience with an elderly > paitient, gle

[CMLHope] Re: Macular Edema

ivitis; unlikely: > glaucoma, papilledema, retinal hemorrhage, > photosensitivity, abnormal > vision, and increased intraocular pressure. > Periorbital edema and > epiphora are the two most common ocular > side-effects related to > imatinib mesylate therapy. Clinical > characte

[CMLHope] Macular Edema

000. I will be anxious for my appointment tomorrow to hear what the retina specialist says about it. Maybe, I will be lucky and it will disappear after awhile like my heart congestion did! Has anyone had similar trou

[CMLHope] Re: No diagnosis, but looking for others' experiences...

Daniel, I was diagnosed with CML in 2002 after having my annual physical. My platelets were high, but not my white blood cells. I came back the next week for another blood test...just to see if the first one had been a fluke, but my platelet count was even higher. The next week I went to an

[CMLHope] Gleevec and Vit D

it's lowering the amount of vitamin D in one's system. Was there actually an article or study that I could access...and send to my family doc and oncologist? Thanks for your help! Dee Hedman dx. July 2002 PCR - no sign of negative cells

[CMLHope] Re: Anyone got any answers

> I haven't been on the > > proper dose. She told me to resume the > 400mgs daily and that if my wc > > and anc got low again they would do shots to > bring it up. I am > > scheduled to have another bmb done at Mayo on > the 27th of this month > > and she said they would redraw the FISH > agai

[CMLHope] Re: 6 new messages in 5 topics - digest

I guess I may have missed something along the way. Why is gleevec radiation? --- IAintFinishedYet <[EMAIL PROTECTED]> wrote: > Hey Tony: (my 2 cents) don't know the effect > our gold has on Sperm; but several brother > survivors have fathered children. My X (not a > survivor) took Zinc for ener

[CMLHope] Re: Update from Dane Tessler

Dear Dane, I am so happy about your wonderful bone marrow test results. You have certainly paid your dues...but not all are so fortunate as you are with no sign of disease after transplant. Enjoy! Dee H. --- Dane <[EMAIL PROTECTED]> wrote: > > Hello allhave not posted much lately, but

[CMLHope] Re: Preparation H

Jennifer, My eye lids especially around the corner by my nose are very puffy in the morning. Actually, the congestion from my eyes drips out and feels kind of caustic or dries crusted on my eye-lid or below and can feel like it's burned. Does this sound familiar? Do you think the Arbonne eye c

[CMLHope] Re: Telephone Call With Novartis

Thank you for doing that, Rob. I, for one, know that I contacted Novartis when my heart failure developed, and they in turn contacted my oncologist. Dee --- Rob <[EMAIL PROTECTED]> wrote: > I wanted to let all of you know that I had a > conference call with Novartis > today regarding the newly

[CMLHope] Re: Gleevec May Cause Serious Heart Damage

ck so wonder if that has anything to do with my heart?! When I go in for my annual physical in August, I will discuss this with my primary care physician. Has anyone else had any heart issues after being on Gleevec for several years? Dee Hedman, dx. July 2002 --- kneesrbad2 <[EMAIL PROTECTED

[CMLHope] Re: work to hard

Hi Tony! I am thinking that you may feel better after you have been on gleevec for awhile longer, and it has helped rid your system of more of those Ph+ cells. Make sure you drink enough water every day and get rest when you can. Good luck to you, Dee --- tony <[EMAIL PROTECTED]> wrote: > >

[CMLHope] Re: Mom is homeTrey

My thoughts are with you all! Take care, Dee Hedman dx. 7/2002 - in remission --- [EMAIL PROTECTED] wrote: > Thanks for the information. Unfortunately she > was rushed back to the > hospital this morning as she suffered a another > seizure in the house. I am sure >

[CMLHope] Re: Tiredness.........................

Dov, Here is the post. Hope it helps! Date:Wed, 24 May 2006 21:48:59 -0500 From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> Add to Address Book Add Mobile Alert To: cmlhope@googlegroups.com Subject: [CMLHope] Resources for coping with Chronic illness -- Forwarded mess

[CMLHope] Re: Another milestone

Congratulations and thank you for your work with America's children. Now for a much deserved rest and recreation! Dee Hedman --- Rob <[EMAIL PROTECTED]> wrote: > > Congratulations on your retirement. > > Rob > > Gay Bratton wrote: > > I just wan

[CMLHope] Re: Tiredness.........................

Maybe it is something about Minnesotaall that fresh air! In the past year it seems like I have not had the stamina that I had before. I get tired walking about 6 blocks, my legs are weak when walking up a flight of stairs. My counts were lower when I went in for my last check up so maybe th

[CMLHope] Re: Good News from Houston!

Dane, I wish you the best in your battle with Graft Versus Host disease. I know someone else who is going throught this struggle as well. It is not for the faint of heart! Sincerely, Dee Hedman, dx. 7/2002 FISH PCR - no sign of BCR-ABL cells 4/2006 --- "Dane T." <[EMAIL PROT

[CMLHope] Re: Heart failure

Dear Dianne and Group, Almost two years ago I had episodes of heart failure, but last years a was retested and I showed no signs of it. I am thinking it was the Gleevec...possibly congestion from the drug. I am happy that I have "out-grown it". Dee Hedman diagnosed July 2002

[CMLHope] Re: Chills

I also get chilled alot and then after awhile I get warm for a short time and then I get cold again. I normally wear several layers and I alternate between taking them off or putting them on! Dee in Duluth, MN --- Christine Finsand <[EMAIL PROTECTED]> wrote: > I get cold and chills all the tim

[CMLHope] Re: Paying for Gleevec

This January with a change in our prescription coverage, Rx America would only cover $1400 a prescription plus our co-pay. The prescription for 30 pills got rejected so my pharmacist sent in an order for 15 pills. That was filled so I receive two prescriptions/month and pay two co-pays. I don't

[CMLHope] Re: Orphan Drug Designation Granted by the U.S. FDA for Ceflatonin(R)

thanks, Rob, for keeping us up-to-date on new developments! I appreciate it. --- Rob <[EMAIL PROTECTED]> wrote: > -- > Posted by Rob to CML Newswire: Medical And > Technical News On Chronic > Myelogenous Leukemia >

[CMLHope] Tom's great results

Barb, I'm so happy to read that Tom's BMB indicated that he's Philadelphia chromosome free. I know it's taken a big effort to get to this point! __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.co

[CMLHope] Cost of Gleevec

ells. My oncologist said that apparently an increased % was nothing to be concerned about unless it was 2 or 3 times the amount of the previous number. Any thoughts on that? Thanks for your help! Dee Hedman in Duluth, MN (warmest January on record!) ___