your own body. This may not be good advice but it has worked for me.
Good luck
Perk in Texas
On Saturday, July 28, 2018 at 8:26:52 AM UTC-5, Ragavan wrote:
>
> I was taking 50mg Dasatinib per day. An year back it was increased to
> 75mg. For the last few months breathing difficult
Lee,
You can get on disability and collect a monthly check from Social Security.
While you can apply by yourself without a lawyer, they will probably
decline you and it could take years. I recommend contacting Smith and Heard
in San Antonio, TX. They got my disability very quickly and you do no
Bristol-Myers-Squibb (the manufacturers of Sprycel) have a patient
assistance program where they will pay a large chunk of the costs of the
medication. No one can afford what it costs, as Medicare only pays a
percentage.
James in Texas
On Wednesday, September 14, 2016 at 10:04:52 AM UTC-5, Pe
on dasatinib (Sprycel) for 8 years until I had the heart and lung
problem. It had very little side effects until recently.
On Thursday, August 11, 2016 at 11:49:42 AM UTC-5, perk wrote:
>
> I was placed on Sprycel in 2008. While this treatment contained my WBC, it
> caused fluid
I was placed on Sprycel in 2008. While this treatment contained my WBC, it
caused fluid retention around my heart and lungs. My onc was to try a
ferone treatment. Has anyone had any experience with this form of
treatment. It is an injection and he said common side effects were flu-like
symptoms
When I was first diagnosed, I was put on Gleevec and I broke out in a
severe rash, as well as many other uncomfortable side effects. I was then
put on Sprycel and while it has some of the same side effects, it is
manageable and tolerable. I have lived with it for 7 years. Now there are
other op
My wife and I have insurance through the Healthcare Marketplace (Obama
care) where they pay most of the premium amount. Without any notification,
they stopped paying and the insurance company dropped us, even though I
paid our amount. My wife found out by trying to have a prescription
refilled
I am on Sprycel and had to have a pleural effusion. My onc said it was
related to the Sprycel. He cut the dosage and I haven't had anymore trouble
with it but he has me take an xray on my routine visits now.
On Wednesday, February 12, 2014 11:32:53 AM UTC-6, peg wrote:
>
> Hey Jeanie,
>
> I am t
When I was on Gleevec, I was very sensitive to hot foods, both hot
temperatures like coffee and spicy foods such as jalapenos. I had a real
affection for chocolate chip cookies, too. I would eat some everyday. Now I
am on Sprycel and I am not as sensitive to those foods. I still like the
cookie
I did not get along well with Gleevec at all. It had many undesirable side
effects but it really made my skin break out. I have a little skin
irritations from Sprycel but I can control it with topical lotions. It
seems to keep the CML under control without the side effects. I had a
pleural eff
It seems Gleevec is the first line of defense for CML and is used for other
cancers as well. I experienced most the side effects everyone else does but
also had severe skin irritations and rashes all over my body. While it
brought my WBC counts to a normal range, I just couldn't stand it any mor
I am wishing all the CML Warriors a healthy and happy holiday season. While
I seldom post, I receive great inspiration and knowledge from people
experiencing many of the same things I expereience and it helps me
mentally, physically, and spiritually to hear your stories. I often
recommend to an
I am on Sprycel too and had my first bout with pleural effusion. What
can I do for it?
Perk in TX
On Feb 28, 12:54 pm, Tom Dunham wrote:
> Hi...have been on 100 mg Sprycel for 18 months. Developed pleural
> effusion...now on 70 mgwill keep u posted. Hang in there! Tom in KY
>
Yes, I had a much worse time when I was on Gleevec with skin
irritations. I have a topical cream my onc prescribed and have found a
humidifier helps some. I feel I get along much better with the Sprycel
but I still have skin irritations and very dry skin.
On Dec 20, 10:34 am, Carol Bennett wrote:
The way it was explained to me is that since CML affects the
chromosomes, it is by definition genetic but there is no evidence to
support the notion that it is heredic. It is more like normal
chromosones becoming fused together creating the mutated
"Phillidelphia chromosone" It is more like a "flu
I recently switched from Gleevec to Sprycell and found the side
effects to be similar but much less than Gleevec. Perhaps, this is
different for everyone, but I seem to get along much better with
Sprycell. My Onc explained that Gleevec is accepted as the first line
of defense, as it has been around
can still enjoy guacamole, ice coffee, and
cerveza.
Keeping it cool,
Perk.
On Oct 28, 4:29 pm, icandoall...@aol.com wrote:
> Hi to all, I think a glass of wine would never hurt anyone.
> Not having it and missing it would be worse.
> Good luck,
> Jeanie<3
>
> In a message date
avoid hot teas and coffee, but enjoy them on ice.
Looking good in Texas,
Perk
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I cleaned around my eyes with "No Tears" baby shampoo and it helped
the eye edema. I've been taking Gleevec for a year now and find living
with the minor inconveniences a much better alternative than dying
from CML. Even with the "green apple trots" (diarrhea), I just think
of all the constipated
and feel my body is more accepting of it now than a year
ago. I even joke about the skin problems and lower voice as "just
going through puberty".
Perk in Texas
On May 29, 4:41 am, ratbone wrote:
> some of you many know the reference here, that is rick james. no
> matter. this
My urologist recently said he has noticed an elevation in PSA count in
his patients who were in treatment for CML or CLL, even though the
prostate is supposedly the only organ which generates the PSA enzime.
It does not mean there is cancer of the prostate. My oncologist said
once your are maligna
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