Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

Thanks Amy: It caught me off guard for a minute when I first saw it. But I realized it was a scam. Sheila On Sat, Jul 18, 2020 at 5:10 AM wrote: > cmlhope@googlegroups.com > > Google > Groups >

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 5 updates in 1 topic

Marty, I am glad to hear that. I was worrying over ya'll earlier today. My brother is still in Hudson (up above Tampa about 30 or 40 miles. I worry about him, but he is suppose to be going to a friend's home that is safer than his doublewide. Glad ya'll left. SuzieQ On Sat, Sep 9, 2017 at 5:

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 3 updates in 1 topic

Thank you, Marty. Will get one in the mail. Suzieq On Mon, Jun 30, 2014 at 5:13 AM, wrote: > Today's topic summary > > Group: http://groups.google.com/group/cmlhope/topics > >- Millie <#146ec439deb8c263_group_thread_0> [3 Updates] > > Millie

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 6 updates in 2 topics

Millie: I sent Jeanie an email message and am hoping she gets it. I saw that she lives in Florida, I think and I thought she lived in Arizona. Hah! Shows just how much I know. Anyway, I asked where she lived at down there as my mom is on the Gulf Coast and I was just down there in February for h

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 3 Messages in 1 Topic

My take on the stopping of the drugs after being negative for several years, I think that is up to the person and their doctor. I, personally, did not feel comfortable in completely quitting Gleevec after being on 400mgs. since February 2004. What I did ask my Doctor was if we could lower the do

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 16 Messages in 1 Topic

Hello fellow CML'ers: I get the posts just fine, just not as often as before. I'm glad to see all y'all seem to be doing good..enjoying your summer. We are so hot and dry here, it's unreal. I am expecting Governor Nixon to start talking about conserving our water usage. It's getting danger

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 1 Topic

On Mon, Jan 3, 2011 at 4:18 AM, > wrote: > Today's Topic Summary > > Group: http://groups.google.com/group/cmlhope/topics > >- Price of Gleevec keeps going up <#12d4b630902dd510_group_thread_0> [2 >Updates] > > Topic: Price of Gleevec keeps going > up

[CMLHope] New E-Mail address

Rob:    I have a new e-mail account and will be losing my hotmail.com & fidnet.com accounts shortly.  How do we change to my new address or do you do it on your end?  Just let me know what to do on my end so that I continue to get the posts.  I guess since I set it up originally on my ho

[CMLHope] New E-Mail address

Rob:    I have a new e-mail account and will be losing my hotmail.com & fidnet.com accounts shortly.  How do we change to my new address or do you do it on your end?  Just let me know what to do on my end so that I continue to get the posts.  I guess since I set it up originally on my ho

[CMLHope] Recent Appointment & Biopsy

Hi Everyone: I had me four month's Dr's. visit yesterday along with a bone marrow biopsy & aspiration (first since Feb.2005). All went well except labs as the technician had trouble with the vein rolling on her, but I'm not too sure it wasn't her that was the problem by the way she was going

[CMLHope] Re: Second opinion

For my piece of mind, I would get another opinion before going through a transplant. Dr.Hannah Khoury (my first hem/onc. at Siteman whom I dearly loved) told me that most bone marrow transplants only had a 20% to 25% cure rate and that's with a perfect match. He said that they only do those a

[CMLHope] Re: New Doctor

Thanks, Mike. I had forgotten all about Google (smile). Must be the Gleevec Fog, huh? What a wealth of information I found. This support group really is a God-send and my thanks to the person who founded it. Keep Looking Up, Suzieq To: CMLHope Subject: [CMLHope] Re: New Doctor Jus

[CMLHope] New Doctor

Good Day to all: I just learned that I've been shifted once again to a new doctor within my group where I go at the Sitemen Cancer Center in St. Louis. The one I was seeing is returning to research, I was told. I am scheduled for next visit on July 10th and am also have BMB done that day, t

[CMLHope] Annie

Since it's been close to two and half years now since that first visit to the doctor who did the cbc test and called me at home that night and scared the living day lights out of me by saying something was terribly wrong because my white cell count was off the page and they were going to have t

[CMLHope] Welcome to the new ones............

Just wanted to welcome those newly dx with CML. But, I do have a question about being put right on Gleevec after dx. I had to wait at least two to three weeks waiting on the genetics test for the Philadelphia Cromosone to be found before the doctor would put me on Gleevec. I was put on Hydr

[CMLHope] Spleen

Thanks so much for all who responded to my questions. I feel much better now as I was beginning to worry that something terrible must be wrong, but also felt that it has to be the spleen as it is exactly same area and same pain. Sometimes it isn't noticeable and then like the last few days, i

[CMLHope] Juice Plus

Hi: Has been a few weeks since I posted last. Have been in Florida visiting my family and just recently returned to Missouri. Don't know about the rest of you, but it sure has turned off awfully hot and steamy here. My question is this: Has anyone tried the Juice Plus regimen? I have some

[CMLHope] Tea

I had a woman who works for Red Cross Blood Drives tell me that drinking tea (she didn't specify) depletes the red blood cells and causes anemia. Whether that is true, I don't know. I decided that I would cut back somewhat as I do struggle with some anemia (it's not too bad) but it hasn't s

[CMLHope] Welcome to the group, Jon:

Welcome to our group, Jon, even though I am sorry to hear of your diagnosis. Glad you found our group, as there are several here with lots of knowledge that can help with any questions you might have. Glad that you are doing so well on the Gleevec. Don't be surprised when some of the side

[CMLHope] Pat & Problems With Gleevec

Pat, I am also concerned for you & your health as you seem to be so desperate. You can bet your bottom dollar that I would have been camped out at my doctor's office door expecting some answers way before now if I started having all the problems you seem to be having. And, if he or she did

[CMLHope] For Pat Reynolds

Hi Pat: I am one of the new ones to the group, only a couple of months now. It has helped me so much reading these posts from different people dealing with the same thing I'm dealing with. I, too, struggled in the beginning two years ago when I first began this journey with Gleevec. I thr

[CMLHope] Chills

I'm so glad to hear that I'm not crazy after all like my husband kept telling me when I complained of the deep chill all the way to the bone feelings I kept having & it would be over 90 degrees outside. & Marcia, I am beginning with the hotflashes so this ought to be a fun summer. :>) I also

[CMLHope] Drug Cost & Insurance

BJ: We also have Blue Cross/Blue Sheild Alliance. It covers all the cost of Gleevec except for my co-pay of 25$. We own a small machine shop business & my husband negotiates the insurance coverage each year for it's employees. Last fall he informed me that we were probably going to be chan

[CMLHope] About Calcium & Glucosomine/Chondroitin

Pete: I am sorry to hear about having the combination of Crones disease along with CML. One is tough enough to deal with for sure. My dr. told me that taking the Glucosomine/Chondroitin would take at least nine weeks to get into your system as it is a type of protien that is slow to absorb.

[CMLHope] Would like more info about taking Calcium while on Gleevec

Hello everyone: I'm new to this group and am grateful for all the information I'm learning. I have been on 400mg. of Gleevec since February 2004. It's done it's job and continues to keep me in remission. Am scheduled for next bmb in July. I am interested in more information about taking calci