I saw that cold weather in Michigan Wow!!! And I thought I was cold in fl. So far no freeze. Stay warm. Jeanie
Sent from my iPhone > On Jan 10, 2015, at 4:31 AM, sherri swanson <swanson.sherri...@gmail.com> > wrote: > > Hi Richard, > > If it's one thing I got, It's Attitude! At least that's what my mom would > tell me when I was a teenager. LOL > > Sorry to hear about the car. This cold weather can be brutal on a car's > battery. Glad you were able to get a new and now you’re good to go. > > Uor wind chills have been bad too. And we have some open fields so there is > nothing to block that wind. The other morning it was so cold that the water > froze in our community and none of had any water for awhile. It's a good > thing I'm an early raiser and I took my shower while we had water. > > Currently, it is -7 with a wind chill of -25 where I live and it isn't going > to be above zero until 9 am. That's cold. > > Stay warm Richard and think spring! > > L'chaim, > > Sherri > >> On Fri, Jan 9, 2015 at 11:29 PM, Marty Gartenberg <wa2...@gmail.com> wrote: >> Hi Jeanie, >> >> So many things effect your kidneys. The simple ageing factor is just one of >> them. Some medicines will also contribute to kidney function probably some >> of these TKI's. Mine finally gave out from all of the chemotherapy and >> radiation I had more then 25 years ago. >> >> I can make a suggestion: If you are not diabetic try drinking cranberry >> juice. Not the ones that are mixed up with juices like grape juice. Ocean >> Spray has pure cranberry juice so you might want to try it. Even if you are >> diabetic they also make a light cranberry juice. >> >> You know what? You have been through so much that this is only a bump in the >> road for you, and so it is for me. >> >> We have two choices. One, continue to fight and the other is not an option >> for me or you. >> That is why I always end any of my posts with 18's. You just hang in there >> sweetie. >> >> Marty >> >>> On Fri, Jan 9, 2015 at 7:55 AM, ICANDOALLTTC via CMLHope >>> <cmlhope@googlegroups.com> wrote: >>> Hi Sherri, >>> I think the tki's contribute to kidney disease. I think that I am in the >>> beginning of the disease and I have been on tki's for 11 years now. >>> Hang in in there; blessings >>> Jeanie<3 >>> >>> In a message dated 1/9/2015 3:21:09 A.M. Eastern Standard Time, >>> swanson.sherri...@gmail.com writes: >>> Hi Marty, >>> >>> Thanks for the prayers and right back at ya. >>> >>> I've been struggling with my kidney disease for many years and didn't know >>> it, and then one day voilà the doctors found that there was a problem and >>> that I'd been fighting it for years hence the diagnoses of Chronic Kidney >>> Disease. And the funny thing is, I'm the only one in my entire family that >>> has any of these diseases. My family had its share of health issues from >>> heart disease to diabetes. But never anything like what I have. All my >>> doctors just shake their heads. I tell them that I like to keep things >>> interesting. And what they like is that I have a sense of humor. And at >>> this point, it is much better to joke and laugh than to worry and cry. >>> While I still take what I have seriously, I'm just happy to be here. >>> >>> I would be a lot happier if the weather here would warm up. For crying out >>> loud it was -5 here yesterday and I was out in it. Now that is one hearty >>> person or a very foolish one. The jury is still out on that one. Today it >>> is going to be a balmy 8. Woohoo! A heat wave. And, again I'll be out in >>> it as I have to go and get a Rx that I need. >>> >>> L'chaim, >>> >>> Sherri >>> >>>> On Thu, Jan 8, 2015 at 10:40 PM, Marty Gartenberg <wa2...@gmail.com> wrote: >>>> Dear Sherri, >>>> >>>> Yes, you are a fighter and it takes one to know one. I pray that >>>> everything turns out well for you. >>>> >>>> And you are correct that all of the radiation and chemotherapy did destroy >>>> both of my kidneys. It has been over 25 years that I had my BMT. It took >>>> many years for my kidneys to fail and that is probably why most transplant >>>> centers will usually not use total body radiation any more unless it is >>>> really needed. >>>> >>>> 18's, >>>> >>>> Marty >>>> >>>>> On Thu, Jan 8, 2015 at 1:31 PM, sherri swanson >>>>> <swanson.sherri...@gmail.com> wrote: >>>>> Hi Marty, >>>>> >>>>> The doctors are trying to treat the different illnesses that are included >>>>> in my condition. There are so many and they do so many different things, >>>>> that I am happy just to to be here. I agree that as we get older there >>>>> are some unusual things that that find us. But in the long run, we all >>>>> got something. I'm a survivor. It's what I do. So when I found out on >>>>> Monday that I have a large mass on my thyroid, I told my doctor I guess >>>>> we're going to be busy this winter. At least I'm not an alarmist. >>>>> <35C.png> >>>>> >>>>> I too have trouble with my kidneys. Not to the extend that you do, I'm >>>>> working to keep myself at the current level of stage III Kidney Disease. >>>>> Some days, I'm good others, not so much. Lately I've not been doing so >>>>> good and I've had to go and buy new shoes as my feet have been so swollen >>>>> that my current size no longer fit. I wear compression socks all the time >>>>> as well. >>>>> >>>>> My Nephrologist ran some blood work and found that my sodium was very low >>>>> and and so was a bunch of other levels. Now, he is an alarmist. If I even >>>>> look like I'm getting a cold he freaks out. I love him dearly, and I do >>>>> what he says, but I can't sneeze without him making me go see my GP or >>>>> the Oncologist or whatever doctor he thinks I need to see. >>>>> >>>>> I've heard that when you have a BMT and have to have radiation and chemo, >>>>> sometimes kidney failure is possible. How long have you been on the list >>>>> for transplant? >>>>> >>>>> Well, I'm glad that you are here and that you are strong. You're an >>>>> inspiration to all of us. Thanks for all you do Marty. >>>>> >>>>> L'chaim >>>>> >>>>> Sherri >>>>> >>>>>> On Thu, Jan 8, 2015 at 10:07 AM, Marty Gartenberg <wa2...@gmail.com> >>>>>> wrote: >>>>>> Hi again Sherri, >>>>>> >>>>>> Hopefully you will be able to be treated for this condition. It seems >>>>>> that as most of us get older we start suffering from some very unusual >>>>>> things, but that is the price we must pay to remain alive. We just have >>>>>> to do whatever we can to keep on going because we have no other choice. >>>>>> >>>>>> My kidneys failed four years ago and I must be on dialysis because it is >>>>>> keeping me alive until I can hopefully receive a kidney transplant. >>>>>> >>>>>> This happened because when I received a bone marrow transplant more then >>>>>> 25 years all of the radiation and chemotherapy started to destroy >>>>>> my kidneys, but i'm still alive today because of it. We all have our >>>>>> own battles in life and that is just the way it is. >>>>>> >>>>>> I wish you much health and happiness in this New Year. >>>>>> >>>>>> 18's, >>>>>> >>>>>> Marty >>>>>> >>>>>>> On Thu, Jan 8, 2015 at 5:19 AM, sherri swanson >>>>>>> <swanson.sherri...@gmail.com> wrote: >>>>>>> Hi Marty, >>>>>>> >>>>>>> Happy New Year. I hope you are well. Thanks for the research I enjoyed >>>>>>> article. I could only wish it was as simple as being as side effect of >>>>>>> my TKI. In my case, nothing is ever simple LOL. What I have is called >>>>>>> Autonomic Neuropathy. Basically, my Autonomic Nervous System has >>>>>>> malfunctioned. Here is a link for you to read if you would like to. >>>>>>> >>>>>>> http://en.wikipedia.org/wiki/Dysautonomia >>>>>>> >>>>>>> In a nutshell, Autonomic Neuropathy is a nerve disorder that affects >>>>>>> involuntary body functions, including heart rate, blood pressure, >>>>>>> perspiration and digestion. >>>>>>> It isn't a specific disease. Autonomic Neuropathy refers to damage to >>>>>>> the autonomic nerves. This damage disrupts signals between the brain >>>>>>> and portions of the autonomic nervous system, such as the heart, blood >>>>>>> vessels and sweat glands. This can cause decreased or abnormal >>>>>>> performance of one or more involuntary body functions. >>>>>>> >>>>>>> Autonomic Neuropathy can be a complication of a number of diseases and >>>>>>> conditions. And some medications can cause autonomic neuropathy as a >>>>>>> side effect. Signs, symptoms and treatment of autonomic neuropathy vary >>>>>>> depending on the cause, and on which nerves are affected. >>>>>>> >>>>>>> L'Chaim, >>>>>>> >>>>>>> Sherri >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>> On Wed, Jan 7, 2015 at 7:02 PM, Marty Gartenberg <wa2...@gmail.com> >>>>>>>> wrote: >>>>>>>> Hi Sherri, >>>>>>>> >>>>>>>> I did a little research on your no sweating problem, and it is >>>>>>>> probably a side effect of your TKI treatment. >>>>>>>> >>>>>>>> I also ran across an article which you can read here. It does mention >>>>>>>> something about the lack of sweating. It probably has nothing to do >>>>>>>> with your problem but maybe you should read it anyway. >>>>>>>> >>>>>>>> http://en.wikipedia.org/wiki/Fabry_disease >>>>>>>> >>>>>>>> 18's, >>>>>>>> >>>>>>>> Marty >>>>>>>> >>>>>>>>> On Wed, Jan 7, 2015 at 5:29 AM, sherri swanson >>>>>>>>> <swanson.sherri...@gmail.com> wrote: >>>>>>>>> Hello, >>>>>>>>> >>>>>>>>> I've had CML for 12 years and I've taken Gleevec for those 12 years. >>>>>>>>> I've also experienced night sweats for many years. At first I was >>>>>>>>> told that it was due to menopause because of my age at the time. Go >>>>>>>>> figure. When that was no longer an option, the only >>>>>>>>> thing left was the Gleevec. Since being dx'd with the CML in 2003, >>>>>>>>> I've been dx'd with other chronic illnesses that are just as serious. >>>>>>>>> >>>>>>>>> With these new illnesses came a new problem. I no longer sweat at >>>>>>>>> all. So now I have the complete opposite problem. No matter how hot >>>>>>>>> it is, I never sweat. I a way, it's nice because I'm always cold and >>>>>>>>> I long for very hot days so I can go out side in the heat. But my >>>>>>>>> oncologist has warned me to not do it for very long as I have no way >>>>>>>>> to control my body temperature. Unfortunately, it works the same way >>>>>>>>> with the cold. My body temperature is a constant 95 degrees. >>>>>>>>> >>>>>>>>> So, in answer to your question, yes, the Gleevec does cause night >>>>>>>>> sweats. It is one of its side effects. Unfortunately, I was not able >>>>>>>>> to find a remedy for my night sweats other than going to the extreme >>>>>>>>> which I do not recommend. <332.png> >>>>>>>>> >>>>>>>>> I hope everyone has a good New Year and is healthy. Keep my posted >>>>>>>>> as to what you find out. Even thought I no long have this issue, I >>>>>>>>> would still like to be kept in the loop. >>>>>>>>> >>>>>>>>> L'chaim >>>>>>>>> >>>>>>>>> Sherri >>>>>>>>> >>>>>>>>>> On Tue, Jan 6, 2015 at 4:19 PM, 'Marcie Goodman' via CMLHope >>>>>>>>>> <cmlhope@googlegroups.com> wrote: >>>>>>>>>> Hello, Susan. Gosh, we are just sweating through this it >>>>>>>>>> seems. I will see what may be available naturally, as I don't >>>>>>>>>> want hormones either. Sorry you are experiencing this same problem >>>>>>>>>> which I hope to solve. >>>>>>>>>> >>>>>>>>>> Best wishes to you, Roy and your beautiful family for a blessed New >>>>>>>>>> Year. >>>>>>>>>> >>>>>>>>>> Marcie >>>>>>>>>> >>>>>>>>>> Sent from my iPad >>>>>>>>>> >>>>>>>>>>> On Jan 5, 2015, at 10:17 PM, "'Susan Zimmerman' via CMLHope" >>>>>>>>>>> <cmlhope@googlegroups.com> wrote: >>>>>>>>>>> >>>>>>>>>>> Dear Marcie, >>>>>>>>>>> >>>>>>>>>>> I have had night sweats for years, intensifying after my dx in >>>>>>>>>>> 2005. I have day sweats, too. When I stand up for more than five >>>>>>>>>>> minutes to do anything at all I start profusely sweating from >>>>>>>>>>> weakness. I think part of this is from the bosulif, but most is >>>>>>>>>>> from the stroke weakness and need for hormones. I will not take >>>>>>>>>>> artificial hormones and have not gotten the good kind that are >>>>>>>>>>> specially made for each person. I totally sympathize with you >>>>>>>>>>> Marcie. You might want to go to a naturalist doctor about getting >>>>>>>>>>> a test for hormones and then they will make a compound for you of >>>>>>>>>>> cream that usually works. Regular md's only know to prescribe the >>>>>>>>>>> synthetic or horse hormones which do cause cancer. That's my take >>>>>>>>>>> on it, hope you find some relief!!! >>>>>>>>>>> >>>>>>>>>>> Thanks for your always uplifting posts! Happy New Year to you, too! >>>>>>>>>>> Susan F. Zimmerman >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> -----Original Message----- >>>>>>>>>>> From: 'Marcie Goodman' via CMLHope <cmlhope@googlegroups.com> >>>>>>>>>>> To: cmlhope <cmlhope@googlegroups.com> >>>>>>>>>>> Sent: Mon, Jan 5, 2015 8:41 am >>>>>>>>>>> Subject: [CMLHope] Night Sweats >>>>>>>>>>> >>>>>>>>>>> Happy New Year, dear friends. I'm wondering if any of you suffer >>>>>>>>>>> with night >>>>>>>>>>> sweats as a side effect of your TKI. I do, and have, over the >>>>>>>>>>> years of my >>>>>>>>>>> treatment. I don't know that it is happening more frequently but >>>>>>>>>>> the sweats seem >>>>>>>>>>> to be more intense. Is there anything that you know of that will >>>>>>>>>>> help? >>>>>>>>>>> >>>>>>>>>>> Many thanks for always being there to offer encouragement and >>>>>>>>>>> assistance. >>>>>>>>>>> >>>>>>>>>>> Marcie >>>>>>>>>>> >>>>>>>>>>> Sent from my iPad >>>>>>>>>>> >>>>>>>>>>> -- >>>>>>>>>>> -- >>>>>>>>>>> [CMLHope] >>>>>>>>>>> A support group of http://cmlhope.com >>>>>>>>>>> ------------------------------------------------- >>>>>>>>>>> >>>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>>> Groups >>>>>>>>>>> "CMLHope" group. >>>>>>>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>>>>>>> For more options, visit this group at >>>>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>>>> --- >>>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>>> Groups >>>>>>>>>>> "CMLHope" group. >>>>>>>>>>> To 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