Re: [CMLHope] Kidney function

2011-10-21 Thread Martin Gartenberg
Hi Vivi, I actually have kidney problems but not because of Gleevec, but rather from all of the radiation and Chemo I had more then 22 years ago in preperation for my bone marrow transplant. It is getting very bad and unfortunately there is nothing that can be done about it. I will need dialysis,

[CMLHope] Kidney function

2011-10-21 Thread Vivi
Has anyone begun to have problems with reduced kidney function after being on Gleevec for a while? If so, please let us hear from you about how you discovered this, what form the discovery took and what was done about it. Thanks in advance to all our Gleevec warriors and Chai-18 to us all. Vivi --

Re: [CMLHope] Kidney function

2011-03-20 Thread Myvety2k
I remember reading in some posts about bleeding on the brain. I'm not saying that this is my problem put would like to hear how they found out that this was happening. Their's a lot of pollen in the air right now that it's spring here and I can tell because of the head aches and pressure

Re: [CMLHope] Kidney function

2011-03-20 Thread Myvety2k
Thanks, I will.greenie -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe

Re: [CMLHope] Kidney function

2011-03-20 Thread Myvety2k
Thanks for you reply Millie, when I got up this morning my wife said that it looked worse. I have appointment with a Doctor on Tuesday will see what happens. Greenie -- [CMLHope] A support group of http://cmlhope.com - You received this

Re: [CMLHope] Kidney function

2011-03-19 Thread Marcie
be an alarmist, but it is worth paying attention. Thanks, Susan (Indiana, used to be in Fl) -Original Message- From: Myvety2k To: cmlhope Sent: Sat, Mar 19, 2011 9:06 am Subject: Re: [CMLHope] Kidney function I folks, have a question? Eye bleeds, we have talked about this before

Re: [CMLHope] Kidney function

2011-03-19 Thread Martin Gartenberg
d yourself of all side affects for > awhile. Each one is different, so go with your own knowledge of your body. > Some of these doctors know just a little more than we do about how gleevec > and all of them work... > > > What does 18 mean? > Susan > (Indiana) > > &

Re: [CMLHope] Kidney function

2011-03-19 Thread C.M. Houtz
On Gleevec I had several eye bleeds and went to my eye doctor and he said that nothing was wrong, and it did go away in a few days. I had one since I'm on Tasigna, but it didn't last long. At first it worried me a lot, but then I kind of got use to them. Hope that yours has improved, Greenie

RE: [CMLHope] Kidney function

2011-03-19 Thread Nadiia Noles
@googlegroups.com] On Behalf Of myvet...@aol.com Sent: Saturday, March 19, 2011 1:06 PM To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Kidney function I folks, have a question? Eye bleeds, we have talked about this before but I didn't save any email about them. My wife looked at me this morning and

Re: [CMLHope] Kidney function

2011-03-19 Thread Myvety2k
I started Gleevec in the second study on Feb 5th 2000. I had I bleeds before only when we had soft water and I would try to dry my eyes by wiping my eye to hard with a towel. After moving to a home without soft water back to hard water I didn't have a problem with eye bleeds. But today I

Re: [CMLHope] Kidney function

2011-03-19 Thread Susan Zimmerman
lowering my dosage. I say this with great trepidation, as I don't want to be an alarmist, but it is worth paying attention. Thanks, Susan (Indiana, used to be in Fl) -Original Message- From: Myvety2k To: cmlhope Sent: Sat, Mar 19, 2011 9:06 am Subject: Re: [CMLHope] K

Re: [CMLHope] Kidney function

2011-03-19 Thread Susan Zimmerman
ssage- From: Martin Gartenberg To: cmlhope Sent: Sat, Mar 19, 2011 10:15 am Subject: Re: [CMLHope] Kidney function Hi Susan, I am sorry to hear about your brain bleed and the stroke that you had. Who really knows if it was or wasn't caused by the Gleevec? The thing is that your al

Re: [CMLHope] Kidney function

2011-03-19 Thread Martin Gartenberg
nt. I have developed diabetes, > (not related to the CML) so this stem cell news is something to consider. > Thanks for the insight and sharing. > Blessings, > Susan > (Indiana) > > > > -Original Message- > From: Martin Gartenberg > To: cmlhope > Sent: Thu

Re: [CMLHope] Kidney function

2011-03-19 Thread Myvety2k
I folks, have a question? Eye bleeds, we have talked about this before but I didn't save any email about them. My wife looked at me this morning and said your I is blood shot. Looked into a mirror and yes the white's of my eye were all red. Any input you can give me will make me feel bet

Re: [CMLHope] Kidney function

2011-03-18 Thread Susan Zimmerman
g To: cmlhope Sent: Thu, Mar 17, 2011 8:08 pm Subject: Re: [CMLHope] Kidney function Hi "V" I am not on Gleevec or any other drug because I had a bone marrow transplant 22 years ago this May. Since I had total body radiation and loads of chemo I became diabetic, and have had problems

Re: [CMLHope] Kidney function

2011-03-17 Thread Martin Gartenberg
Hi "V" I am not on Gleevec or any other drug because I had a bone marrow transplant 22 years ago this May. Since I had total body radiation and loads of chemo I became diabetic, and have had problems with my kidneys with rising Creatnine as well as my BUN levels over the years. I was in stage fou

Re: [CMLHope] Kidney function

2011-03-16 Thread TEDBDD
I am on Spryceland Creatinine levels are in the normal range.. Tom in KY In a message dated 3/16/2011 10:42:17 A.M. Eastern Daylight Time, myvet...@aol.com writes: My creatinine level was 1.3 back in June of 1997. After I found that I had CML in Dec. of 1998 my levels were still at

Re: [CMLHope] Kidney function

2011-03-16 Thread Myvety2k
My creatinine level was 1.3 back in June of 1997. After I found that I had CML in Dec. of 1998 my levels were still at 1.2 to 1.4. I started Gleevec the first week of Feb. of 2000 and my levels are still at 1.3 to 1.4. Nothing has changed but I can't say the same for anyone else. Greenie

Re: [CMLHope] Kidney function

2011-03-16 Thread ANGELYN ESDERS
--- On Wed, 3/16/11, Victoria Reiter wrote: From: Victoria Reiter Subject: [CMLHope] Kidney function To: CMLHope@googlegroups.com Date: Wednesday, March 16, 2011, 1:37 PM Has anyone found that their creatnine levels have risen while taking Gleevec?  I know this occurs when one's blood pre

[CMLHope] Kidney function

2011-03-16 Thread Victoria Reiter
Has anyone found that their creatnine levels have risen while taking Gleevec? I know this occurs when one's blood pressure goes up for any length of time but I'm talking about having normal blood pressure yet creatinine levels rising. VReiter -- [CMLHope] A support group of http://cmlhope.com --