[CMLHope] Re: Hi - I am new/Anjana

2006-06-08 Thread GEC117
When my mom had her lung embolisms they never mentioned anything about high platelets. Gayle --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subs

[CMLHope] Re: Hi - I am new/Rob

2006-06-08 Thread GEC117
Thanks so much for your best wishes. Gayle --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To

[CMLHope] Re: Hi - I am new/Gay

2006-06-08 Thread GEC117
Thank you for that information.  This is going to be a big learning experience for our family. Today they took the catheter out of her neck as her platelets seem to have stablilized at about 650,000 for the past two days, still too high but the medication seems to be kicking in. Has anyone here h

[CMLHope] Re: Hi - I am new/Sandy

2006-06-08 Thread GEC117
Thank you so much for your wishes for my mom.  She is 73. Gayle --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "

[CMLHope] Re: Hi - I am new/Trey

2006-06-08 Thread GEC117
Thank you for that article link.  She is being treated by a prominent blood specialist at Columbia Presbyterian Hospital in New York so that is not a concern. Gayle --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com --

[CMLHope] Re: Hi - I am new

2006-06-08 Thread anjana
Hi Gayle, Some patients I know who had high platelet counts took a drug called Anagrelide (Agrylin) to control the platelet counts. So, this is something to discuss with the doctor if the platelet counts are still a bit high on Gleevec. I am sure Gleevec will work very well for your Mom. Pla

[CMLHope] Re: Hi - I am new

2006-06-08 Thread Rob
Welcome to the group. I hope your mother will soon be much better. Gleevec works extremely well and she should see really good results once she is started.RobOn 6/8/06, disneyprincess <[EMAIL PROTECTED]> wrote: My mother was diagnosed with CML last week.  She is into her 2nd weekin the hospital du

[CMLHope] Re: Hi - I am new

2006-06-08 Thread Gay Bratton
Gayle, Welcome. You will get lots of good information from this group. You did not mention your Mother's age. Many people here have had good results on Gleevec, including me. I have been on a trial since 1999 and have continually decreasing counts of Ph+ cells. It is not a cure, but for most

[CMLHope] Re: Hi - I am new

2006-06-08 Thread Sandy Johnson
Hi Gayle,Welcome to the group.My husband has CML. His White counts were real high at dx,he was giving hydroxy at first and than on gleevec.His platelets also went over one million.It took a few weeks to get that under control.How old is your mother?Randy is 55. This is a good group to be in,every o

[CMLHope] Re: Hi - I am new

2006-06-08 Thread Trey
Welcome Gayle, and we all wish the best for your mother. Many of us started with high platelets, which is common in CML patients. For me, it was the first sign that I was developing CML. The doctors are using hydroxyurea, which does treat the CML to some degree, not just the platelet problem. Y