[CMLHope] Re: No diagnosis, but looking for others' experiences...

2007-01-06 Thread dee hedman
Daniel, I was diagnosed with CML in 2002 after having my annual physical. My platelets were high, but not my white blood cells. I came back the next week for another blood test...just to see if the first one had been a fluke, but my platelet count was even higher. The next week I went to an

[CMLHope] Re: No diagnosis, but looking for others' experiences...

2007-01-06 Thread Teepee710
Daniel, Good luck Monday at the Dr's. It is probably not cml with the white counts not being elevated. Whatever it is i hope its not serious and something that is easy to deal with --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com

[CMLHope] Re: No diagnosis, but looking for others' experiences...

2007-01-06 Thread mburwen
The diagnosis for CML is definitive; i.e. if the Philadelphia chromosome is detected, then you have it. Since your WBC is not elevated, the chances are that you do not have CML. In any event, a simple test for the Philadelphia chromosome will settle the matter. The symptoms you describe can be

[CMLHope] Re: No diagnosis, but looking for others' experiences...

2007-01-06 Thread Daniel
Katy, Thanks for the reply. I considered and have ruled out ulcers, stress, etc. I haven't touched sodas or any energy drinks for 16 years. As I said, I have an appointment with a hematologist on Monday, so maybe I'll get an answer then... Daniel --~--~-~--~~~--

[CMLHope] Re: No diagnosis, but looking for others' experiences...

2007-01-05 Thread katybug45
Daniel I just read where you say you are a nursing student...do you drink Red Bull, Rockstar, Full Throttle, Monster, Amp or any of the energy drinks? If so that could be part of your problem. They are very addictive. My husband drinks them everyday and if he misses a day he gets a wicked h

[CMLHope] Re: No diagnosis, but looking for others' experiences...

2007-01-05 Thread katybug45
Before I was diagnosed I was eating everything in sight! I was starving all the time but steadily loosing a pound here and a pound there. I had night sweats but just assumed it was hormanal, I had headaches but I always had headaches anyway.I was tired all the time but I was tired when I was bo

[CMLHope] Re: No diagnosis, but looking for others' experiences...

2007-01-05 Thread Trey
Sometimes the earliest sign of CML is a very high platelet count, even before the WBC counts start to rise. But if you do not have a high platelet count, and since your WBC counts are normal, it is unlikely that you have early stage CML. The tiredness and other symptoms in CML come after the WB

[CMLHope] Re: No diagnosis, but looking for others' experiences...

2007-01-05 Thread Daniel
Thanks, Sandy! Several things I forgot to put in my original message: I can't and don't want to eat, just like your husband. Nothing at all is appetizing. As I told my doctors, I haven't been hungry in nearly a year. One doc suggested I go to a nutritionist! What?? I have had three episode

[CMLHope] Re: No diagnosis, but looking for others' experiences...

2007-01-05 Thread Sandy Johnson
Hi Daniel, I'm sorry you have been sick,and I really hope you do not have CML! My Husband is the one with CML.As far as symptoms,We had no Idea there was any thing wrong with him,until he passed out at work one day.Than the doctor was asking him all these questions.He had been really tired(thou