Good for you, Katy! You know we are all here to support you. We are
just worried for you.
Love,
Anjana
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[CMLHope]
A support group of http://cmlhope.com
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You received this message because you
Hey Katy,
I am very glad to hear that. I hope I did not come off overbearing in my reply.
Take care,
Terry
On 10/22/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
Dear Anjana,
Thank you for your reply and the information. I really dont know what my Dr. is thinking, he has me kinda
Dear Anjana,
Thank you for your reply and the information. I really dont know what my Dr. is thinking, he has me kinda confused at the moment and really upset. I agree, he should have put me on something else if he was taking me off of gleevec. Apparently they caught my CML very early, and I
Pat,
Not yet, but that is what I am afraid of. I have had a lot of pain in that area in the past few months. So I was just asking the question would my spleen get enlarged since I was off of gleevec.
Hugs,
Katy
--SHIH-POO Puppies now available! First shot and wormed. Email me for more info! x
Amen Anjana,
Katy, please get on your doctor's rear end, and either get back on Gleevec, or try Sprycel!! I am wondering why he is waiting myself? It should be obvious to your doc that sitting around watching counts go up is not a good thing. I hope everything is okay, please keep us posted. Take
Dear Katy,
Spleen will get enlarged only when the white counts go up to 50,000
and up. With remission, there are several stages, first you have
complete hematologic remission when the blood counts get normal from
high counts, then comes cytogenetic remission when the BMA test on 20
cells show
Katy,
This is Pat F. I was on Sprycel after G intolerance, but waited until
the med could get to me (insurance) and my spleen did get enlarged. WC
went up to 64K+/Platelets were up to 1,700K+. Darn right your spleen will
enlarge. Is your spleen getting larger?
Pat
--~--~-~--
Anjana,
One more question, without me being on anything to keep the CML from proliferating, wont my spleen get enlarged??
Katy
--SHIH-POO Puppies now available! First shot and wormed. Email me for more info! xanga.com/katybug45
-- Original message -- From: "anjana"
Anjana,
Thank you for your reply and the information. I am afraid. Plain and simply afraid. I am confused by what my doctor is doing and unsure of why. I have slowly been slipping into a kind of depression over the last few days. I feel like when I first found out that I had CML to begin with
Dear Katy,
0.169% is not a low PCR value since you relapsed from 0 to 0.169%.
In most labs 1-2% correlates to 10-20% Ph+. I know a patient whose
doctor started Sprycel when his PCR went positive after he was off
Gleevec for intolerance. The doctor did not wait for the patient to
have a 20-50%
g able to get it back down.
Hope you get on okay.
Lisa
>From: [EMAIL PROTECTED]
>Reply-To: CMLHope@googlegroups.com
>To: CMLHope@googlegroups.com
>Subject: [CMLHope] Re: Well I got the numbers
>Date: Thu, 19 Oct 2006 20:32:39 +
>
>Well I got the test results and they are.
Well I got the test results and they are...
Positive for BCR/ABL at 0.169% of the median level.
So (Anjana) what does that mean??
Hugs,
Katy
--SHIH-POO Puppies now available! First shot and wormed. Email me for more info! xanga.com/katybug45
-~[CMLHope] A support group of http://c
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