Hi John.
I am into my second month on ponatinib. I have had some bad side effects. My
vision is blurry and my skin feels like leather. I'm hoping every thing clears
up so I can stay on it. I feel like a dizzy blond now. Hehe
Thanks for helping me. I am on 1 (15) mil pill now.
Prayers &
Hi Marty: I wish you a fast recovery John B
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What great news. Good luck tonight and tomorrow John B
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Hi Russell,
It is me, Marty,
I am sorry to hear about you not being BCR-ABL zero after going through a
BMT and being on Gleevec. I am somewhat confused about who was your actual
donor. You mention Andreas was the person that donated the marrow for you.
So, I assume that she was a very well matche
My name is Russell, I am a 5 year BMT survivor after being
diagnosed in 2001 with CML, taking Gleevec for 3 years and slowly
developing an immunity to it. After initial success (somewhere in the
300's in Zavie's zero club), by the 3rd year my PCR's indicated that
despite the Gleevec there was st
Deb:
If you go through and get the transplant, you need to look at the
"Centers of Excellence" and ask you r insurance company which are
their centers that they pay for. United Health Care worked with me on
this in 2003-2004 because I was having so many reactions to Gleevec,
that Dr. Druker want
When my husband was diagnosed, we were told that if we decided to do a
transplant to have the transplant done at a center where they do a lot
of transplants. Transplant patients require specialized care from a
great team of doctors and nurses and the hospital has to have resources
to deal with tr
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