Re: [CMLHope] stopping meds.

2012-08-29 Thread bkbarney
-Original Message- From: TEDBDD To: cmlhope Sent: Wed, Aug 29, 2012 10:26 am Subject: Re: [CMLHope] stopping meds. BK...I am on 20mg Sprycel and it seems to be working well in controlling the CML.  I do have many of the side effects you list...Peripheral Neuropathy, memory issues and fatigue.  I

Re: [CMLHope] stopping meds.

2012-08-29 Thread TEDBDD
pain and inability to sit is not long term viable because I need to work. -Original Message- From: TEDBDD To: cmlhope Cc: tedbdd Sent: Mon, Aug 27, 2012 4:18 pm Subject: Re: [CMLHope] stopping meds. CarolynI think we have corresponded beforeI, also am on 20 mg of Sp

Re: [CMLHope] stopping meds.

2012-08-29 Thread bkbarney
heal.. this level of chronic pain and inability to sit is not long term viable because I need to work. -Original Message- From: TEDBDD To: cmlhope Cc: tedbdd Sent: Mon, Aug 27, 2012 4:18 pm Subject: Re: [CMLHope] stopping meds. CarolynI think we have corresponded beforeI, also

Re: [CMLHope] stopping meds.

2012-08-27 Thread TEDBDD
CarolynI think we have corresponded beforeI, also am on 20 mg of Sprycel after failing to tolerate Gleevec and Tasigna. I also had Pleural Effusion but didn't have to have my lungs drainedthe lower Sprycel dose seems to have stopped the fluid build up for me...I am sorry it isn't

[CMLHope] stopping meds.

2012-08-27 Thread jkuptz
Hi CML Group. I haven't posted in a long time but the lastest post about not taking meds interested me. I have been on Sprycel 20mg bid for about 5 years. My onocologist checks pcr levels and also a fish test every three months. 9 times out of ten the CML is undectable but every once in awhil