gpc-dev 11 Jul agenda and meeting notes

What else for tomorrow? * gpc-dev 11 July shared notes - scribe: UTHSCSA 1. Convene, take roll, review records and plan next meeting(s) * 11:00am Central Time.

Re: [gpc-informatics] #596: targeted cancer therapy study - Query 1, 2, 3 (was: targeted cancer therapy study - Query 1, 2 from tumor registry)

#596: targeted cancer therapy study - Query 1, 2, 3 --+ Reporter: dconnolly | Owner: schandaka Type: task | Status: assigned Priority: major | Milestone: gpc-phase2-h4 Component: data-sharing | Res

RE: GPC Dev Agenda Item 7/11: patient registries

Hi Tamara Just over a year ago Nebraska Medicine changed the Conditions of Treatment form to include consent to be contacted for research. About 2/3 of our patients are opting in. We just finished the policy allowing direct patient contact in that case. The Vice Chancellor of Research Office has

GPC Dev Agenda Item 7/11: patient registries

At KUMC we have Frontiers, a registry of patients who agree to be contacted in the event that they meet study criteria. Consenting to be in this registry allows for researchers to contact patients directly without going through the treating physician. What is the situation at each site? 1.