RE: GPC Dev Agenda Item 7/11: patient registries

2017-07-10 Thread McClay, James C
11:27 AM To: Subject: GPC Dev Agenda Item 7/11: patient registries At KUMC we have Frontiers, a registry of patients who agree to be contacted in the event that they meet study criteria. Consenting to be in this registry allows for researchers to contact patients directly without going through t

GPC Dev Agenda Item 7/11: patient registries

2017-07-10 Thread Tamara McMahon
At KUMC we have Frontiers, a registry of patients who agree to be contacted in the event that they meet study criteria. Consenting to be in this registry allows for researchers to contact patients directly without going through the treating physician. What is the situation at each site? 1.