Enclosed is a response from the nicest lady in the world. I strong encourage Mrs Bullard to pursue the suggestions. I wish the best for the parents, the family and the son. Best Wishes
You are always welcome to direct people here and I will try to help them but I really should hear directly from them so that they don't feel they are being intruded on. Through the local NSCIA Chapter, the family might find physicians who have experience with SCI. Contact: Spinal Cord Injury Association Of Oklahoma Phone: (405) 321-3203 Contact: _Rick Lewis_ (mailto:rollinrick1...@att.net) Phone: (405) 737-9739 The mom can find lots of information at spinalcord.org, including list of Model SCI Care Systems and CARF Accredited programs. Unfortunately, neither of these appear to exist in Oklahoma but she could contact any one of those places out of state and seek information or get admission for her son at one of these hospitals. The reason that the Model SCI Care System was created was because spinal cord injury is so complex that it needs to be treated by people who have expertise in the field. If this family feels they are not getting the care that is needed, they should definitely seek it out. If they are not able to go out of state for care, minimally, their physician may find consultation and direction through the Model System, or the physician could consult _http://www.asia-spinalinjury.org/annualMeeting/meetinginfo.php_ (http://www.asia-spinalinjury.org/annualMeeting/meetinginfo.php) This is the medical-professional organization for those in SCI care. Based on what the mom wrote, in my non-medical opinion, she should definitely read about autonomic dysreflexia which she can find at _http://www.spinalcord.org/news.php?dep=17&page=94&list=1178_ (http://www.spinalcord.org/news.php?dep=17&page=94&list=1178) I hope this is of some help. At 19, this young man should be thinking about getting on with his life, not being sick and spending more time in hospitals. Sincerely, Mercedes Mercedes Rauen Executive Director Spinal Cord Injury Association of Illinois 708-352-6223 _www.SCI-Illinois,org_ (http://www.sci-illinois,org/) Find s on Facebook April 30, 2011 - SUPPORT AND WELLNESS: Ideas and Concepts for People with SCI, Families and Caregivers. A seminar being held at Marianjoy Rehabilitation Hospital May 29, 2011 - Cubs Game, Wrigleyville Rooftops July 27, 2011 - Annual Golf Outing, Glen Eagles Country Club, Lemont. October 9, 2011 - Bank of America Chicago Marathon. February 18, 2012 - Dinner with Friends, The Lexington House, Hickory Hills. Look for Spinal Cord Injury Association of Illinois on Facebook. SCIA is a proud member of the Community Health Charities of Illinois, an employee payroll giving program. ____________________________________ -----Original Message----- From: Rene Bullard <moip...@yahoo.com> To: quad-list <quad-list@eskimo.com> Sent: Mon, Apr 25, 2011 1:25 pm Subject: [QUAD-L] Unidentified subject! Well, I'm new to the SCI club. My 19 yr. old son had a M VA 4-10-10 that left him with a c 6-7. The prob is we have been sick from day 1. After 20 weeks in ICU 4 with rehab that we could not do because sick all the time. We got home late Aug.of 2010 and been back to hospital 95% of the time. In the last month we have been home 3-4 days.Well this past fri. we were at OU hospital and they told me theres nothing rong with him other then drug withdrows............. We went in this time as for all the past : 102.6 temp, vometing, sweating, pain, UTI, not eatting . OU called back to tell me he has staff again #3 for that one. I just don't know were to turn there is no place in ok. That I have found to help him get better. He is going down fast !!!
