Re: [QUAD-L] bladder update

2023-12-13 Thread Michelle Harkness
PMNR = Physical Medicine and Rehabilitation I'm not sure if you fully understand what a supra pubic catheter is? It's a foley catheter, inserted in the hole they make in your abdomen that sits in your bladder. There is literally an open hole in your abdomen and that is where the catheter comes o

Re: [QUAD-L] bladder update

2023-12-12 Thread SHIRLEY BELL
what is a PMNR doc? When you used a night bag you must have used a floley. Also, when you capped off the s pubic, did you use a reg cath to drain it intermittently? Also, where did you have these surgeries? I am in RI sorry to keep asking, it is confusing. I read online that with a supra pub you

Re: [QUAD-L] bladder update

2023-12-12 Thread Michelle Harkness
Hey Shirley, I actually capped mine off and drained it periodically - trying to sustain some bladder capacity. It was tiny though, and only could hold about 100-150 cc's before I had to empty it. I did use a night bag when sleeping to make things easier though. I would speak with your quad doc (

Re: [QUAD-L] bladder update

2023-12-12 Thread SHIRLEY BELL
Hi Michelle, one question, when you did supra pubic did you use a Foley catheter? you would have had to? Please let me know thanks! > On 12/11/2023 9:52 PM EST Michelle Harkness > wrote: > > > Hey Shirley! I've been on this page forever and learned lots from y'all, but > I tend to keep ki

Re: [QUAD-L] bladder update

2023-12-12 Thread SHIRLEY BELL
Thank you Michelle. I don't think I would be a candidate for this because I used a foley all these yrs but I will ask. Good luck to us all on this quad journey! > On 12/11/2023 9:52 PM EST Michelle Harkness > wrote: > > > Hey Shirley! I've been on this page forever and learned lots from

Re: [QUAD-L] bladder update

2023-12-12 Thread SHIRLEY BELL
How can you have this Mitrofinoff surgery after yrs of a folley? > On 12/12/2023 4:12 PM EST Michelle Harkness > wrote: > > > Eric - I was TERRIFIED of the Mitrofinoff surgery for about 28 years. I had > never had a surgery other than my spinal fusion, so I was not on board with > signi

Re: [QUAD-L] bladder update

2023-12-12 Thread Michelle Harkness
Eric - I was TERRIFIED of the Mitrofinoff surgery for about 28 years. I had never had a surgery other than my spinal fusion, so I was not on board with signing up for anything major! I'm also on blood thinners because of blood clots/pulmonary embolism and I'm overweight, so add those two layers o

Re: [QUAD-L] bladder update

2023-12-12 Thread Eric Olson
I had my supra pubic done a couple decades ago and it certainly makes things easier for my care givers. I still have problems with uti's. I was thinking about the Mitrofinoff,but it is a no joke surgery. I have started doing gentamicin bladder irrigations. Gentamicin is an antibiotic. It's not

Re: [QUAD-L] bladder update

2023-12-11 Thread Michelle Harkness
Hey Shirley! I've been on this page forever and learned lots from y'all, but I tend to keep kinda quiet. Not sure what your situation is exactly, but I've been a C5-6 quad for 30 years and I had always done intermittent cathing, relying on someone else for help with it. In February of this year,

Re: [QUAD-L] bladder update

2023-12-11 Thread wheelch...@aol.com
Thanks for the update.  The bladder, over time, for those with indwelling caths, will/can shrink to the size of a walnut, compared to what it used to be.  When you consider the size of the cath, plus the balloon, inside a walnut.  there is not much room for urine to collect and it may pass quic