I'm sending this again, *with* a subject line. Sorry for the duplicate... Dear Trudy,
Welcome to the list. I hope we'll be able to give you at least a little help for your son. You write: > My son has been diagnosed with variegate porphyria with 'iron overload'. > He is experiencing extreme stomach pain; the skin on his hands is easily > broken, bleed and scar and now blistering. There does not seem to be much > information on this conditon, related symptoms or successful treatment. > His doctor has offered little information.....more testing. > Is there any one on this group familiar with this 'condition' that could > help. I just did a Google search. This article describes VP as an inherited disorder... http://www.emedicine.com/derm/topic450.htm The summary description I found interesting: "Causes: VP arises from autosomal dominant inheritance of a gene mutation encoding a defective protoporphyrinogen oxidase enzyme protein with resultant deficient activity at approximately 50% of normal activity. The disease in most individuals with such a mutation remains clinically silent, but these persons are at risk of becoming symptomatic if exposed to environmental factors, most often drugs that can induce overt phenotypical expression." Translated to plain english, this is a genetic condition carried on a dominant gene that causes an important enzyme system to screw up, that usually remains dormant unless triggered by something in the environment, such as a drug. <grrr> With that as a guide, has your son recently been exposed to any novel environmental factors such as a new drug, chemicals, dental work, or anything else you can think of that might have stressed him? CS might be applicable to some of the side effects of the condition, since it kills germs and might promote healing. I think you need to consider what's triggering it. Please keep us informed. You'll be in my prayers. Be well, Mike D. -- [Mike Devour, mdev...@eskimo.com] [Citizen, Patriot, Libertarian ] [Speaking only for myself ] -- The Silver List is a moderated forum for discussing Colloidal Silver. Instructions for unsubscribing are posted at: http://silverlist.org To post, address your message to: silver-list@eskimo.com Address Off-Topic messages to: silver-off-topic-l...@eskimo.com The Silver List and Off Topic List archives are currently down... List maintainer: Mike Devour <mdev...@eskimo.com>
