Those were my thoughts exactly. My first onset of TM was in September 2008 then being officicially diagnosed with TM in October 2008. I walked out of the hospital in April 2009, and was fine up until February 2010. The material given to me was just research material to get me to understand what we could be dealing with, I just wanted to share with you guys the stuff about us! Thanks again for your love and support.
Date: Thu, 25 Mar 2010 16:06:24 -0700 From: dca...@earthlink.net To: rumc...@hotmail.com; jan...@centurytel.net; rp...@neillsupply.com; tmic-list@eskimo.com Subject: RE: [TMIC] Hospital Hello Jeron, I can't explain to you why you have had a recurrence of TM, if that is what you had, rather than an increase of symptoms due to an infection that you are fighting. But I would like to suggest that your doctors do a little bit more research before giving you those websites. Only one of them, from the TMA, has the important information that should be read about transverse myelitis. The other two websites are about research of transcendental meditation, rather than transverse myelitis. Although it might help to calm your inner soul, or whatever relief that this does provide for you, it will definitely not give you any answers as to why you have been diagnosed with recurrent transverse myelitis. Hope this info helps you to understand that these ten doctors just might not be actually READING those websites before passing on the information to you, their patient. Take care, Debbie -----Original Message----- From: j ra Sent: Mar 25, 2010 5:29 AM To: jan...@centurytel.net, rp...@neillsupply.com, Transverse Myelytis Subject: RE: [TMIC] Hospital Dear Friends, Last night I had a couple of bad episodes. Pain spasms running from my skull to my inflammed spine down to my right leg. The neuro-electric shocks lasted a few minutes each time, sometimes 10 minutes. I was treated with several drugs intraveniously, but valium finally did the trick in a large dosage. I have this onset of the TM recurrence and for the life of me, I can't figure out why? Maybe I tried to rush back to work too early last time, or maybe I just pretended to be normal when I clearly wasn't. Maybe I should have not lied when I kept telling people "I'm fine". Now, I had my doctors up all night doing research, all 10 of them, this is some of the material they gave me: 1. http://fairfield.freehosting.net/97sept/tm-research.html 2. http://www.myelitis.org/abouttma.htm (these are you, my friends!....they laughed because I always told my doctors about you guys) 3. http://www.behind-the-tm-facade.org/transcendental_meditation-tmresearch-problems.htm So, if you're up to having a read, please cut and paste each in a browser. I literally just did an ECG and I am hooked up to a automated "dripper machine", Fentanil, Ringers and another drip that is unfortunately in code so I can't tell what it is. I also have an automated blood pressure kit attached to my right arm that comes on every 50 minutes. I'm on a 5 point (chest) Dixtal Monitor Portal for heart complications (last time my heart stopped for a minute and 47 seconds) as well. A catherter has also been inserted now for 4 days, so I can't wait to start educating it (clamp and release every 3 hours). No bowel movement for 5 days, which in itself is nonsense because as I remember 3 days was pushing the envelop of danger. So, I preparing now for an enema. I'm back on high dose cortisone for 7 days, weaning off slowly after that, so let's see if it works this time. The big worry is my right leg as i have a motion/force scale of 2, with inability to stand and lean on it when sitting, which causes pain scale 10 on my herniated discs. One of these discs being responsible for my inability to urinate. I am going to listen to you Rob as well as all you TMers. I lucky to have you and even luckier to have the kind of wife to get me through all this once again. Thanks for always listening, Yours, Jeron From: jan...@centurytel.net To: rp...@neillsupply.com; rumc...@hotmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] Hospital Date: Wed, 24 Mar 2010 22:00:08 -0500 Jeron, Listen to Rob, he is right that there is absolutely NO blame that can be put on ourselves for TM or recurrences of it. Just do as the doc's say and remember that you got better the first time and you will improve again the second time. Just remember you have all of us here wanting you to get better, which you will with time and, assuming, therapy. Remember, we have all had our times of being really scared and wondering what the future will bring, but you need to ask your family for strong support and help to get you through this. With your strength and faith, your TM family will help you get through this as well as your biological family. Please keep us informed of your progress on good days and your mindset on bad days. Hopefully we can help. Janice From: Robert Pall Sent: Wednesday, March 24, 2010 2:43 PM To: j ra ; Transverse Myelytis Subject: RE: [TMIC] Hospital Jeron: I know you are terrified and I don't blame you....but please remember you are not alone. When did you have your first onset? What tests did the Dr. give you in determining his diagnosis? How old are you? And finally how are they presently treating you (are they giving you steroids?). Keep your head up....things will get better! All the best! Rob in New Jersey From: j ra [mailto:rumc...@hotmail.com] Sent: Wednesday, March 24, 2010 3:10 PM To: Transverse Myelytis Subject: RE: [TMIC] Hospital Good day my friends, Got some bad news today. I returned to the hospital a couple of days ago because I was feeling some pain and with TM, precaution is imperative. My neurologist just confirmed recurrent TM. I was doing so good, I was doing everything right, why me? I hate this, I have to start all over again. I am scared. I don't know what to do. My wife is terrified and my family is traumatised and it is all my fault...... help me please... Jeron Date: Tue, 23 Mar 2010 11:32:11 -0700 From: toddtm2...@sbcglobal.net Subject: RE: [TMIC] Hospital To: rumc...@hotmail.com Hey Jeron, Sorry to hear that you're in the hospital. Herniated discs is got to be very painful on top of TM. The drop foot will get better with exercises and the pin & needle will get better with drugs. lol Please keep us updated on your stay hospital. We are thinking of you, Todd in Corpus Christi, TX --- On Tue, 3/23/10, j ra <rumc...@hotmail.com> wrote: From: j ra <rumc...@hotmail.com> Subject: RE: [TMIC] Children To: jan...@centurytel.net, pieterheat...@shaw.ca, "Transverse Myelytis" <tmic-list@eskimo.com> Date: Tuesday, March 23, 2010, 3:14 AM Hey all, Firstly, I'm in the hospital again for more treatments (severe back pain due to herniated discs and dragging right leg, pins and needles etc). I asked Prof. Ivan about the connection and he disagrees based on many things he started to explain that I may have been too drugged up to understand. So, I asked him for medical journals on said topic and he reckons he has got some. I will get back to you on this. Also, stem cell research is still probably the only help for TMers with chronic pain and disabilities directly attributed to TM and MS. my 2 cents at 4 am at Clinica Sao Vincente Gavea, Rio de Janeiro, Brasil Jeron From: jan...@centurytel.net To: pieterheat...@shaw.ca; tmic-list@eskimo.com Subject: Re: [TMIC] Children Date: Mon, 22 Mar 2010 22:30:22 -0500 Jeepers! You do have a lot of autoimmune illnesses in your family. Kind of scary. I really don't understand insurance companies. They would be really happy if they only had to insure very healthy people that have no accidents of any kind. What a crock. Janice From: Pieter and Heather Sent: Sunday, March 21, 2010 12:57 PM To: Janice Nichols ; tmic-list@eskimo.com Subject: Re: [TMIC] Children Janice, I'm not sure about TM being passed on. However, there are a lot of autoimmune illnesses in my immediate family. I'm eldest of 3 girls (I'm going on 65). My father had rheumtoild arthritis. My sister 3 yrs younger has MS (was diagnosed in 1991 but figures she had it much longer) My sister 7 yrs younger was diagnosed with Ulcerative Colitis at age 19 and had large bowel and rectum removed then. My daughter has none of the above. However, this past year she signed up for extra medical insurance coverage and was denied MS coverage should she get it in the future. She had to include on her application any illnesses in her immediate family, mother, father, sibling. She had to declare that I have TM. So that tells me that insurance companies anyway figure there could be a connection. Heather in Calgary ----- Original Message ----- From: Janice Nichols To: tmic-list@eskimo.com Sent: Sunday, March 21, 2010 6:29 AM Subject: [TMIC] Children Good Morning. It is the first day of SPRING!!!!! I have a question for you "smarter than me" TM'ers. In the future, do we have any information on chances for our children ending up with TM also? Janice Your E-mail and More On-the-Go. Get Windows Live Hotmail Free. Sign up now. Hotmail: Free, trusted and rich email service. Get it now. Hotmail: Powerful Free email with security by Microsoft. Get it now. Debbie dca...@earthlink.net _________________________________________________________________ Hotmail: Trusted email with powerful SPAM protection. https://signup.live.com/signup.aspx?id=60969
