Judy, so glad you are going in this direction for your leg.I have a good
feeling about it!
Janice
From: heyjude48...@aol.com
Sent: Wednesday, January 16, 2013 5:55 PM
To: regina...@sbcglobal.net ; tmic-list@eskimo.com
Subject: Re: [TMIC] need for a neuroloist
Dear Regina,
I forgot to ans
I have not been to my neuro in at least 4 years.My family doctor and Pain
Management doctors take care of me far better than my neuro.Once I was out
of the hospital for a year or
two we quit going to him because he just did not do anything except ask how I
was doing and then that was it.
Your memory isn't shot! You remember my story perfectly, I
racked my brain for that information and could not come up with anything.
I've been with this Dr. for quite a few years now and our relationship
couldn't be better. She listens and is attentive and friendly, always greets
me with
Rick,
Sorry, I thought that message was from Rob. I am going to try the trial
before the permanent pump. Living with a broken leg is what is causing the
pain. I asked the Dr. about electrical stimulation etc. and she said to
tackle one thing first. I'm supposed to give them a week to c
Your case is totally different from mine.
Other than having increased burning, I have remained the same since onset
8/13/95. It is just a complete waste of my insurance and the co-pay for me.
Obviously, if I should experience changes, I would go to the neurologist.
__
Hi Rob,
I am waiting for a phone call from my neurologist, who is setting up a
trial for the pain pump, but he didn't mention anything about doing a trial
with a hypodermic. Do you think that I ought to call him?
Judy in Michigan
In a message dated 1/17/2013 11:21:50 A.M. Eastern St
Barbara:
Ashlee is in the same position, basically, that you are. She can walk, with the
aid of forearm crutches (for longer distances), or with the help of walls (when
she is in our home). She rarely has muscle spasms, and she rarely has fatigue
(could be b/c she is only 19). She has had TM sin
I think it depends on one's needs. I've had TM for 17 years and haven't
seen a neurologist in about 14 years. I got to an acceptable plateau (can
walk and pretty well function as a homemaker and volunteer, have some
issues with fatigue, balance, and muscle spasms. I don't think I could hold
down a
I disagree with all of you who are saying that you have either stopped going to a neurologist or see one very infrequently. I saw Dr Kerr at John Hopkins for the first 10 years after coming down with TM. I go to my neurologist at least once per year to insure that my meds are the best they can be.
My neurologist saw me less than 24 hrs after my tm attack; he quickly diagnosed me, gave me IV steroids for 7 days, saw me every day in rehab. I saw him every 3 months for over a year. Then I spoke with PCP about baclofen, and never went back.He was charging $300 per office visit to my insurance, p
I agree Cheryl. My daughter, Ashlee, hasn't been to a neuro since she was at
KKI in Baltimore in 2006 and even then, they didn't do any testing or anything
on her. He never really even checked in on her while she was there for the 8
week program. Her PCP orders her Oxybutnin and if she gets a si
I haven't seen a neurologist in over 15 years. What's the point? My PCP orders
my baclofen.
Cheryl
Thanks to everyone for the great response re banding. I hope my GP will be
prepared to let me trial maybe Baclofen/Lyrica in the hopes of getting some
relief and will let you know if I have any success.
Iris UK
On Thu, Jan 17, 2013 at 3:42 AM, Dalton Garis wrote:
> Lyrica has been a wonder dru
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