What a great support group we have!     How nice to have input from those who 
already have the pump.    Good luck to all of you.
Janice


From: Deb Monteleone 
Sent: Friday, June 21, 2013 5:17 PM
To: 'Robert Pall' ; tmic-list@eskimo.com ; ahope...@optonline.net ; 
shirleyabreu2...@msn.com ; vet2bi...@aol.com ; iluvt...@hotmail.com ; 
suelau...@optonline.net ; frosscl...@embarqmail.com ; 
mike.fitzger...@us.deltagalil.com ; purple442...@yahoo.com ; 
lbieh...@earthlink.net ; amy.war...@cigna.com ; judyd...@aol.com ; 
lbilli...@aol.com ; cgs...@comcast.net ; mpk0...@comcast.net ; 
traqu...@yahoo.com ; margo.or...@gmail.com ; ppet...@wiley.com ; 
campeo...@msn.com ; bac...@ramapo.edu ; aac...@rkco.com ; suela...@aol.com ; 
tikicon...@verizon.net ; fd...@aol.com ; baea...@aol.com ; 
fulltimewmc9...@aol.com ; mae...@thestettlergroup.com ; rmom...@comcast.net ; 
nzipu...@yahoo.com ; caree...@aol.com ; arp1...@aol.com ; tac8...@aol.com ; 
mother...@gmail.com ; suela...@aol.com ; jandpstev...@optonline.net ; 
jaydeeteef...@gmail.com ; kaysquare...@aol.com ; mrsde...@aol.com ; 
louie405phi...@aol.com ; r1aquil...@aol.com ; alke...@hotmail.com ; 
ktek...@aol.com ; deefi...@yahoo.com ; thav...@optonline.net ; 
teamba...@hotmail.com ; rollinmama...@yahoo.com ; niyu...@yahoo.com ; 
doctora...@aol.com ; aberc...@aol.com ; aberc...@aol.com ; sharoni...@yahoo.com 
; sharoni...@yahoo.com ; andreeb...@aol.com ; gary5...@comcast.net ; 
gary5...@comcast.net ; momc...@optonline.net ; amanda...@comcast.net ; 
beans...@aol.com ; hart...@comcast.net ; flynch8...@gmail.com 
Subject: RE: [TMIC] Baclofen Pump

Hi Rob,

 

I can’t wait to hear you say your pain is greatly reduced or gone.

 

I had my pain pump (same pump) put in on June 5th.  I was uncomfortable for 
about 3 days, then the surgical areas felt so much better.  You can’t do much 
but hang out, I organized all my screws, bolts, nuts, etc.  It occupied about 4 
days and now I know what I have and where it is, yeah.  I went back to work 
today, wasn’t too bad.

 

The pump does feel a little odd, really from the outside, under my skin I don’t 
really notice it.  I started the Prialt at a dosage of 2 as your body needs to 
acclimate to it.  He said most people seem to feel some release at a dosage of 
around 4.  I was raised to 3 this Wednesday, most likely 3.5 next Tuesday.  I’m 
hoping 4-5 is when I’ll feel something, but still not sure Prialt will work for 
me.  He also told me when they first started using Prialt they started the 
patients at a dosage of 10!  This is why so many people had and still have such 
problems.

That made me feel better about using it, they learned to start low and increase 
slowly.  It also makes me feel horrible that so many people were made so sick.

 

No need for you to worry, the pump with Baclofen had been around a long time 
with no problems and has helped so many people.

 

 

Make it a great day,

Deb

 

From: Robert Pall [mailto:robthe...@aol.com] 
Sent: Wednesday, June 19, 2013 9:29 PM
To: tmic-list@eskimo.com; ahope...@optonline.net; shirleyabreu2...@msn.com; 
vet2bi...@aol.com; iluvt...@hotmail.com; suelau...@optonline.net; 
frosscl...@embarqmail.com; mike.fitzger...@us.deltagalil.com; 
purple442...@yahoo.com; lbieh...@earthlink.net; amy.war...@cigna.com; 
judyd...@aol.com; lbilli...@aol.com; robthe...@aol.com; cgs...@comcast.net; 
mpk0...@comcast.net; traqu...@yahoo.com; margo.or...@gmail.com; 
ppet...@wiley.com; campeo...@msn.com; bac...@ramapo.edu; aac...@rkco.com; 
suela...@aol.com; tikicon...@verizon.net; fd...@aol.com; baea...@aol.com; 
fulltimewmc9...@aol.com; mae...@thestettlergroup.com; rmom...@comcast.net; 
nzipu...@yahoo.com; caree...@aol.com; arp1...@aol.com; tac8...@aol.com; 
mother...@gmail.com; suela...@aol.com; jandpstev...@optonline.net; 
jaydeeteef...@gmail.com; kaysquare...@aol.com; mrsde...@aol.com; 
louie405phi...@aol.com; r1aquil...@aol.com; alke...@hotmail.com; 
ktek...@aol.com; deefi...@yahoo.com; thav...@optonline.net; 
teamba...@hotmail.com; rollinmama...@yahoo.com; niyu...@yahoo.com; 
doctora...@aol.com; aberc...@aol.com; aberc...@aol.com; sharoni...@yahoo.com; 
sharoni...@yahoo.com; andreeb...@aol.com; gary5...@comcast.net; 
gary5...@comcast.net; momc...@optonline.net; amanda...@comcast.net; 
beans...@aol.com; hart...@comcast.net; flynch8...@gmail.com
Subject: [TMIC] Baclofin Pump

 

Well I am finally going to do it. I have completed my pre-certification and I 
am scheduled for surgery a week from tomorrow. I am both stressed and excited. 
I am excited about the possibility of feeling significantly better after 
suffering almost 16 years with this awful affliction. I am stressed about 
having a titanium pump attached to my spinal fluid. I promise the group I will 
give daily reports after the surgery to let all of you know what benefits I 
come in to. I hope this lets me walk better,takes away the awful banding and 
lets me live a more normal life.

All the best!
Rob in New Jersey

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