Folks; I¹m much better today, with energy increased and ability to do things. I am very happy and thankful to God for this day. I guess that¹s TM for ya, up a few days and down a few days. But I have only been diagnosed with TM since April so I am still learning its course and ways.
God bless, Dalton From: Janice Nichols <jan...@centurytel.net> Date: Wed, 17 Nov 2010 22:24:31 -0600 To: john snodgrass <jcs...@yahoo.com>, transverse myelitis <tmic-list@eskimo.com> Subject: Re: [TMIC] Doc Pomus Resent-From: <tmic-list@eskimo.com> Resent-Date: Wed, 17 Nov 2010 20:24:27 -0800 Would you believe that on "House" that they had a patient they diagnosed with TM?! It was brought on by some other problem, not idiopathec. But, it was at least exposure to TM. Janice From: john snodgrass <mailto:jcs...@yahoo.com> Sent: Wednesday, November 17, 2010 7:18 PM To: transverse myelitis <mailto:tmic-list@eskimo.com> Subject: Re: [TMIC] Doc Pomus lol,,sounds like a good "House" episode --- On Wed, 11/17/10, Dalton Garis <malugss...@gmail.com> wrote: > > From: Dalton Garis <malugss...@gmail.com> > Subject: Re: [TMIC] Doc Pomus > To: bgunny7...@aol.com, "TMIC" <tmic-list@eskimo.com> > Cc: "Brooks Garis" <bga...@optonline.net> > Date: Wednesday, November 17, 2010, 7:18 PM > > Well, Bernie; > > I can fully appreciate the problem of mis-diagnosis, because I have gone from > being a whole bunch of things this past year, to wit: > > > 1. Could be Lyme Disease. No, that¹s not right. All tests were negative for > Lyme. But you never know! > 2. Ok! Multiple Sclerosis. That¹s it, because it is targeting just the > left side and you had two attacks more than one month apart from which you > mostly recovered. Ah, not so fast. We¹ll call it, ³demyelinating disease, > unspecified.² > 3. It¹s TM. Definitely! It is on both sides of your body equally now; it > followed a severe, unexplained backache, it affects you from the level of > several thoracic vertebrae, and your reactions are hypersensitive, you are > spasmodic all over, there is banding pain in the torso, and . . . , and . . . > , and . . . . Diagnosis: ³Transverse myelitis, partial.² > 4. (5 months later) Well, good news! The MRI was basically clear in spine > and brain, except where we can¹t see because of your steel rods (most of the > back), and some weird stuff in your brainstem. It is therefore likely all > due to your old back fusions and the steel rods. We¹ll hold off > re-diagnosing for now. > 5. OK, wait: The old back fusions and steel rods are all pristine. No > difficulty there. Maybe epilepsy, That could explain a lot of what you seem > to be suffering. > 6. Well, no epilepsy. Tests were all negative. > 7. And, your new symptoms, fatigue, facial pain on left side only; no > headache or migrainemyasthenia gravis ? > 8. Meanwhile, how is your Lyrica holding out? Need a refill? > > LOL! > > What happened to the TM? Am I one of those who got mostly better? > Myasthenia gravis? I am now having new symptoms of extreme fatigue and pain > in the limbs and left side of the face, needles and pins. For a while now I > have tried to get up in the morning only to be forced back to bed by fatigue > and pain. After more rest and two more attempts I succeed in getting up and > dressed. My spine is just burning up, from thoracic to lumbar. But that is > an old symptom. The attacks of spasms are mostly gone now. > > Good thing I teach an 11:00 lecture and can sit in my office the rest of the > time. My old skating routine several times per week, or even once per week, > is not possible at the moment. It now hurts to type for very long. > > I am desperate for ideas here. Anyone with some thoughts on this sack of > symptoms? > > I have no idea what is happening, and the neuro has given up thinking about > it. I hope to get with another neuro this week or next. Hope all this will > pass and I can get back to where I was a few weeks ago. > > Dalton > > > > From: Bernie <bpe...@austin.rr.com> > Date: Wed, 17 Nov 2010 10:57:07 -0800 > To: <bgunny7...@aol.com>, TMIC <tmic-list@eskimo.com> > Subject: Re: [TMIC] Doc Pomus > Resent-From: <tmic-list@eskimo.com> > Resent-Date: Wed, 17 Nov 2010 10:57:16 -0800 > > I believe that a LOT of people were misdiagnosed years ago as they did not > have the diagnostic tools we have today. I believe that people are still > misdiagnosed in our times now, due to doctors either not knowing about it, > misinformation, or just plain hard heads who won't listen to anyone else. > Even though I was diagnosed with TM, I still think I have MS, but cannot > have an MRI done because of the pump in my abdomen. Just my 2 cents worth. > Peace, > Bernie in Texas >
