Thank You Debbie. That was a great clear way to explain the condition. We
appreciate it.
Dee for Art
[EMAIL PROTECTED] wrote:
tmic-digest Digest Volume 2007 : Issue 308
Today's Topics:
RE: [TMIC] Do we still have TM? [ Larry Throne ]
Re: [TMIC] Do we still have TM? [ "Grace M." ]
Re: [TMIC] Do we still have TM? [ ]
Re: [TMIC] Do we still have TM? [ ]
[TMIC] Fw: a great idea... [ "Dex Packard" ]
Re: [TMIC] Do we still have TM? [ [EMAIL PROTECTED] ]
Date: Sun, 4 Nov 2007 09:28:53 -0600
From: Larry Throne <[EMAIL PROTECTED]>
To: Carol <[EMAIL PROTECTED]>, <tmic-list@eskimo.com>
Subject: RE: [TMIC] Do we still have TM?
.hmmessage P { margin:0px; padding:0px } body.hmmessage { FONT-SIZE:
10pt; FONT-FAMILY:Tahoma }
Thanks Debbie, that is a great way to explain TM. I knew someone would help
out.
Larry in Oklahoma who is going to the farm today! Yeah!
---------------------------------
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: Fw: [TMIC] Do we still have TM?
Date: Sun, 4 Nov 2007 10:15:19 -0500
I think this is a GREAT explanation. Thank you, Debbie!!!!
Carol in Culver, IN
----- Original Message ----- From: Deborah Nord Capen
To: Carol
Sent: Saturday, November 03, 2007 6:22 PM
Subject: Re: [TMIC] Do we still have TM?
Carol,
"My-el-itis" is an inflammation. You can think of other illnesses, such as
tonsil-itis, appendic-itis, to name a few. It is an inflammation, that causes
a person to become severely ill, with death as a possibility if the
inflammation is not corrected. A person with appendicitis has surgery to
remove the inflamed appendix. A person with chronic tonsillitis has their
tonsils removed to get rid of the tonsils that are causing chronic inflammation.
Obviously, since myelin is surrounding our spinal cord, we can not have it
removed to get rid of the inflammation. The doctors either use medical
treatment, such as IV steroids or plasmaphoresis, or other therapies, to reduce
the inflammation before it does too much damage to the myelin sheath.
Once the inflammation has gone, we are left with the residual damages that
the "itis" caused to our spinal cord. We now have "myelopathy". There are
varying degrees of damage, such as permanent paralysis, mild paraplegia,
sensory deficits, motor deficits, bowel/bladder dysfunction, and in hundreds of
different ways, in thousands of people.
So, technically, we no longer have transverse myelitis - we have the residual
damage from an attack of transverse myelitis. In other words, you can say you
have transverse myelopathy. I tell people that I am living with damage caused
by an attack on my spinal cord called transverse myelitis.
Hope that helps.
Take care,
Debbie
----- Original Message -----
From: Carol
To: tmic-list@eskimo.com
Sent: Saturday, November 03, 2007 2:14 PM
Subject: [TMIC] Do we still have TM?
I know this question has been put out here before, but I can't find it. So I
ask again, do we still have TM or did it come, destroy and leave and we are
left with the aftermath?
Your comments please....
Carol in Culver, IN
Date: Sun, 4 Nov 2007 10:32:41 -0500
From: "Grace M." <[EMAIL PROTECTED]>
To: "Larry Throne" <[EMAIL PROTECTED]>
CC: tmic-list@eskimo.com
Subject: Re: [TMIC] Do we still have TM?
Hi Larry,
I think you're pretty close with that definition. For most, it is a one time
episode, and then dealing with all of the residual effects. There is a very
small percentage, however, who have recurrent TM. Then of course, there are
relapsing Devic's patients like me who face an indeterminable number of new
myelitis attacks. For recurrent TM and Devics, immunosuppression or chemo is
the rule.
Grace
Date: Sun, 4 Nov 2007 12:55:12 -0500
From: <[EMAIL PROTECTED]>
To: "Carol" <[EMAIL PROTECTED]>, <tmic-list@eskimo.com>
Subject: Re: [TMIC] Do we still have TM?
Definition of itis
-itis: Suffix meaning inflammation. For example, colitis is literally colon
inflammation or figuratively inflammation of the colon. The ending -itis is one
of the building blocks derived from Greek (in this case) or Latin used to
construct medical terms.
Some time ago someone on the list mentioned that at the time of the onset of
Transverse Myelitis--when we had inflammation---it was Transverse Myelitis, but
now we no longer have inflammation so it is Transverse My----------(something,
but I don't remember what it is) so it is still TM but not an "itis". I just
cannot recall what the "aftermath" of having the inflammation is and I was
hoping after Carol's quesiton someone would come up with the word.
Gary in Niles, MI
----- Original Message -----
From: Carol
To: tmic-list@eskimo.com
Sent: Saturday, November 03, 2007 4:14 PM
Subject: [TMIC] Do we still have TM?
I know this question has been put out here before, but I can't find it. So I
ask again, do we still have TM or did it come, destroy and leave and we are
left with the aftermath?
Your comments please....
Carol in Culver, IN
Date: Sun, 4 Nov 2007 13:14:18 -0500
From: <[EMAIL PROTECTED]>
To: "Carol" <[EMAIL PROTECTED]>, <tmic-list@eskimo.com>
Subject: Re: [TMIC] Do we still have TM?
That was the word I was looking for "myelopathy"--thanks Debbie.
I did find in aWebster's Dictionary under "itis" that not only is it an
"inflammation or illness" but also a "malady arising from (an inflammation)" so
if that is the case, it is still proper to call our "aftermath" Transverse
Myelitis--but (in my opinion) Myelopathy would be more accurate.
Oh well, we know what it is!
Gary in Michigan
----- Original Message -----
From: Carol
To: tmic-list@eskimo.com
Sent: Sunday, November 04, 2007 10:15 AM
Subject: Fw: [TMIC] Do we still have TM?
I think this is a GREAT explanation. Thank you, Debbie!!!!
Carol in Culver, IN
----- Original Message ----- From: Deborah Nord Capen
To: Carol
Sent: Saturday, November 03, 2007 6:22 PM
Subject: Re: [TMIC] Do we still have TM?
Carol,
"My-el-itis" is an inflammation. You can think of other illnesses, such as
tonsil-itis, appendic-itis, to name a few. It is an inflammation, that causes
a person to become severely ill, with death as a possibility if the
inflammation is not corrected. A person with appendicitis has surgery to
remove the inflamed appendix. A person with chronic tonsillitis has their
tonsils removed to get rid of the tonsils that are causing chronic inflammation.
Obviously, since myelin is surrounding our spinal cord, we can not have it
removed to get rid of the inflammation. The doctors either use medical
treatment, such as IV steroids or plasmaphoresis, or other therapies, to reduce
the inflammation before it does too much damage to the myelin sheath.
Once the inflammation has gone, we are left with the residual damages that
the "itis" caused to our spinal cord. We now have "myelopathy". There are
varying degrees of damage, such as permanent paralysis, mild paraplegia,
sensory deficits, motor deficits, bowel/bladder dysfunction, and in hundreds of
different ways, in thousands of people.
So, technically, we no longer have transverse myelitis - we have the residual
damage from an attack of transverse myelitis. In other words, you can say you
have transverse myelopathy. I tell people that I am living with damage caused
by an attack on my spinal cord called transverse myelitis.
Hope that helps.
Take care,
Debbie
----- Original Message -----
From: Carol
To: tmic-list@eskimo.com
Sent: Saturday, November 03, 2007 2:14 PM
Subject: [TMIC] Do we still have TM?
I know this question has been put out here before, but I can't find it. So I
ask again, do we still have TM or did it come, destroy and leave and we are
left with the aftermath?
Your comments please....
Carol in Culver, IN
Date: Sun, 4 Nov 2007 11:06:16 -0800
From: "Dex Packard" <[EMAIL PROTECTED]>
To: "Al Clark" <[EMAIL PROTECTED]>
Subject: [TMIC] Fw: a great idea...
----- Original Message ----- From: Pam & Bill
To: Undisclosed-Recipient:;
Sent: Saturday, November 03, 2007 1:30 PM
Subject: Fw: a great idea...
----- (`~`)
Here's A Great Idea!!!
When you are making out your Christmas card list this year,
please include the following:
A Recovering American soldier
c/o Walter Reed Army Medical Center
6900 Georgia Avenue,NW
Washington,D.C. 20307-5001
If you approve of the idea,
please pass it on to your
e-mail list
Date: Sun, 4 Nov 2007 14:25:16 EST
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED], tmic-list@eskimo.com
Subject: Re: [TMIC] Do we still have TM?
In a message dated 11/3/2007 4:15:22 PM Eastern Standard Time, [EMAIL
PROTECTED] writes:
, do we still have TM or did it come, destroy and leave and we are left with
the aftermath
I must begin by saying that I know absolutely nothing but my own ideas.
I think that, for myself, I have been hit with a one time attack of
Transverse Myelitis and am left with the rot, rubble and ruin of the disease.
Although I do believe that my body is still susceptible to any disease
involving the action of the immune system and the CNS, I will not be attacked
again unless the time and circumstances are perfect, and that will be as rare
as the first time.
When I go out, I take precautions and cover my face ( to protect the public
from my hideous deformation ), no...to help me not pick up germs. I make sure
I touch nothing but my wheelchair or something I bring from home, to read for
example, and when I get home the first thing I do is wash my hands and Lysol my
chair.
I'm not compulsive about it or anything, but "Thank You Lord, have not had
any type of disease since the main attack. My difficulties are caused by the
wretched "left-overs" of TM, such as pressure sores, urinary tract infections,
broken bones ( with both legs casted for over a year ) and such as that. Other
people are left with different "left-overs" , such as their own fight with TM
left them with.
Peace and Prayers,
Jude
---------------------------------
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Dee
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