Jim, could you help Laura get set up on here and the TMA site??? Thanks so much! Jeanne
-------Original Message------- From: Laura Beaudin Date: 8/14/2009 1:22:16 AM To: jrushton Subject: Re: [TMIC] TM and MS + carecure.org problem Hi Jeanne, I believe that this is the only email I received from you, but thanks. I'm glad that you were able to recover...I keep hoping that something will improve, but so far there is nothing. I have total paralysis (movement-wise) south of T10 and limited feeling. Bladder and bowels also went out the door with the TM. I was in hospital for 4 months, much of that at a leading rehab hospital, but there is only so much they can do unfortunately when the muscles refuse to react to any stimulation. Could you send me some links to TM sites? I am still unfamiliar with most of them. I am also on facebook at the above address, would love it if you added me. Thanks Laura On Fri, Aug 14, 2009 at 8:36 PM, jrushton<jrush...@columbiaenergyllc.com> wrote: > Hi, Laura, > > I think I just e-mailed you??? > > When I was first stricken with TM in 2005, I was paralyzed from the chest > down and with lots and lots of PT, I am able to walk actually pretty well. > Much better at home than when I go somewhere. Those times I sometimes use > my wheelchair and when we travel, I use it quite often. All of this is from > stubbornness and pure determination and never, ever giving up. We have a > hot tub and I do all of my PT in that and I think that has helped me more > than anything else. I really think water therapy is number one in getting > you better. > > I still can't feel from the chest down like I could before but I so have odd > sensations but nothing really like normal. I had to retrain myself to go to > the bathroom and still have urinary issues but nothing I can't handle. The > bowel issue doesn't work without help of herbs but it also works. > > I hope this helps, Laurie. The TMIC group is so wonderful and it is like a > big, caring family of friends. Please join one the TM sites as there are a > few. You can find one that 'fits' you the best. I'm also on Facebook and > there are a lot of us TMer's on that, also. Please take care..Jeanne > > -------Original Message------- > > From: Laura Beaudin > Date: 8/13/2009 11:26:41 PM > To: tmic-list@eskimo.com > Subject: [TMIC] TM and MS + carecure.org problem > > Hi, > > I recently joined this list and am happy to have found it. I've had MS > symptoms since I was 17 and was diagnosed with MS several years ago > (I'm 31). I started getting severe back spasms in March, along with > other relapse symptoms, so after emailing my neuro for his input, > decided to go to the ER for pain management and steroids. I walked in > and never walked since. TM is the cause and I'm wondering if many of > you have MS and what kind of recovery you have had? > > I've had total paraparesis since with no recovery and am pass the > three month mark, which kinda depresses me. I was discharged a month > ago and am frustrated with life in a wheelchair, especially as a > newly-single mother with two preschoolers. > > I also wanted to ask if someone has a connection with carecure.org > (which is where I found out about this list, I believe). I've been > trying to register and there's a problem with their captcha > software...so I can't even contact them via email about it, since > their contact form uses the same software. Could someone kindly > contact an admin and ask them to contact me at my email? > (laura.beau...@gmail.com). It looks like an awesome site, but I'd > rather get the chance to participate. > > Cheers! > > Laura > > -- > > Laura > http://practical-homeschooling.org > http://www.flickr.com/photos/khaleeka > > -- Laura http://practical-homeschooling.org http://www.flickr.com/photos/khaleeka
