Hey Guys, John & James, I'm so sorry to hear that ya'll having a bad time with the freeze burning legs and/or body. I have never been on Baclofen. When I was on Neurontin, I was up to 3,600 mg a day and was told that this was the highest I could go. But, I had a friend that did go up to 4,000 mg a day and other narcotic medications, so I now know that we can go higher doses. With a doctor's Rx. lol I really like Lyrica 300 mg a day and I may need to go higher as I get new feeling back into both of my legs. With Lyrica you do need to watch the marijuana and/or drink hard liquor, it will not need as much as you use to do before. lol I too, think I'm going to look down at my feet & see flames coming off them. I do better when I have my legs up while in a recliner. Hope everyone is having a better day, today, Todd in Corpus Christi, TX TM since April 1, 2002 @ T-4 to T-8
--- On Tue, 4/26/11, James Berg <molokai...@gmail.com> wrote: From: James Berg <molokai...@gmail.com> Subject: Re: [TMIC] revisiting an old issue To: "john snodgrass" <jcs...@yahoo.com> Cc: "transverse myelitis" <tmic-list@eskimo.com> Date: Tuesday, April 26, 2011, 1:28 PM I am having a bad day--the thrumming is at its worst and the banding has gotten wider and tighter--to the point I couldn't eat dinner or breakfast this morning. Baclofen does nothing. It took four glasses of red wine and two alergy pills to get me to sleep. Being in the chair now is making the banding pain worse. any suggestions? On Tue, Apr 26, 2011 at 1:11 AM, john snodgrass <jcs...@yahoo.com> wrote: I remember hearing the concern of thrumming in the legs. You know,,like the sound that a power transformer makes except it's a feeling,a buzzing or even sometimes like energy going up and down your leg or legs. I gert this a lot and when it is real bad it is from the top of my head to the bottom of my feet. sometimes it even feels like something poking at the bottom of my feet from the inside trying to get out. perhaps i could harness it and drive a car with it! I am taking the maximum dosage of baclofen and neurontin and was wondering if anyone ever ran across something to either slow this part down or even stop it. sometimes it will last all day and can go from irritating to depressing. most of the time when this does stop that's when the burning begins. this on top of the wast banding and pain can drive me to thinking thoughts that are not normal for me. thoughts like,,perhaps i should find some marijuana and smoke it or perhaps i should drink enough to pass out or maybe i should punch someone and they will knock me out! my Doc's know about it but have no answer. losing insurance on may 5th.
