I sent the attached to Robert but FYI - ----- Forwarded Message ----- From: "CANDIS KALLEY" <cakal...@embarqmail.com> To: "Robert Pall" <rp...@neillsupply.com> Sent: Friday, July 17, 2009 7:58:36 AM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Medications
I have tried the Provigil with little or no difference in the level of fatigue. I also tried Amantadine with the same results. Provigil is very expensive so try to get a sample before buying. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. ----- Original Message ----- From: "Robert Pall" < rp...@neillsupply.com > To: "Janice" < jan...@centurytel.net >, Tmic-list@eskimo.com Sent: Friday , July 17, 2009 7:38:57 AM GMT -05:00 US/Canada Eastern Subject: RE: [TMIC] Medications Janice...I believe my body has gotten so used to these meds..that Dr. Kerr felt it would be good to try a change.The new drugs he may try after I have weaned myself off the Lyrica are Lamictal or Tegretol (for the banding) and Provigil (for fatigue)....I would love to hear from other members who currently take these drugs as to how beneficial they are. As far as the meds I am weaning off I really had no bad reactions...it just feels like they are no longer helping. All the best! Rob in New Jersey From: Janice [ mailto:jan...@centurytel.net ] Sent: Thursday , July 16, 2009 11:40 PM To: Catherine; Robert Pall; Transverse Mylitis Group Subject: Re: [TMIC] Medications Rob, why are you getting off the meds? For the usual "taking too many drugs" thing or are you having adverse reactions? Janice ----- Original Message ----- From: Catherine To: Robert Pall ; Transverse Mylitis Group Sent: Thursday , July 16, 2009 2:47 PM Subject: Re: [TMIC] Medications Good Luck Rob I wish you the best!! ________________________________ From: Robert Pall < rp...@neillsupply.com > To: Tmic-list@eskimo.com Sent: Thursday , July 16, 2009 2:40:07 PM Subject: [TMIC] Medications Medications I mentioned previously that I visited Dr. Kerr on 7/1/09 and we decided to adjust my meds. Presently for the most part I take 2 meds for the banding, pins & needles and numbness. They are 4-Aminopyridine and Lyrica. I was taking the 4-aminopyridine (a Potassium channel blocker) twice a day (20 mgs each)…I have been taking this medicine for approx. 8 years…..2 weeks ago I cut my dosage in half and starting tomorrow I will cease taking this med…so far I have not noticed any changes resulting in the lower dose and I will keep you informed as to any changes I experience going off this med completely. I also take 150 mg of Lyrica 3x per day. Starting today I will cut this down to twice a day for 2 weeks and then once a day for 2 weeks before stopping it altogether. Hopefully I will notice little or no change getting off this medication which I have been on for more than 4 years. Assuming no problems getting off the Lyrica..Dr. Kerr will prescribe a new med for the banding (don't ask me the name…I promise to let you know)…he also said he could prescribe a new med to help with my constant fatigue (again don't ask me the name). As per his advice I am now swimming for an hour at least 3 times a week..it is not doing much for the TM but it is getting my body in better shape. Having had TM for almost 12 years my dreams of a cure seem more and more distant..so I therefore vow to try and keep my body as healthy as possible and deal with the pain and discomfort as much as medicine can help me. I will keep the group informed as to the weaning off of my current meds and any new meds I begin to take! All the best! Rob in New Jersey
