As I read your letter, it sounded like one I could have written word for
word. I am going nuts not knowing what is wrong with me. My TM
started in 1975 with terribly painful spasms in the large muscles in my thigh
and my bladder was beginning to 'not work'. I walked, very weakly, into
the
Hi,
I had a mylegram also,mine was in 1974,
at the Harrisburg Hospital. My spinal cord looked black for yrs. on x-rays. The
doctorsdid comment, but they do not say anything anymore. I guess the last
time was about 5yrs ago when I had an mri. I do not know if the dye is still
there, but
I thought the dye, or "contrast material," was something that
dissipated over time and vacated the body through urine (I remember wondering if
that was why my urine seemed to have an odd smell for the first several days
after TM struck). Once they put it in, I don't see how they could draw
Hi Anne - I was told that TM was a one time onset (usually)
but I feel I am worsening. My legs shake too, they call it "clonus" If I stand
on tip toes rather than on heels, it gets very much worse. I feel I am getting
worse, weaker due to decreased activity - I was very active, now I just
