>Susan ;
>Peter here. Thought that I would write and see how you are and how things
>are going for you with the c.s.
>I am well into the third week of it and cannot really see a difference but
>hey am willing to give it a good scouts try as long as the side effects
>aren't as bad as some of the stuff that I have tried. Didn't realize that
>you were a nurse till I saw one of your posts
.
******Peter. sorry so long in getting back.  I am having flare-up, but
maybe it is die-off.  whategver it is is violent and I am exhausted from it
and just now feeling a little better but with sweats and chills again so am
actually going to the DR on Mon just by chance he might be able to helpo
figure this out.  The CS you will have to take for quite awhile, I think
eventually you will get die-off from it.  It took a while for me and then
wham bam it hit me so be prepared.  I am in a resting from everything
period right now to recoup.
*************
 I have an under graduate in
>microbiology and did a graduate paper in epidemology on m.s. before I had a
>clue how bad it can mess a person up and before I fell victim to it. Still
>am as confused as ever on what I should do / attempt/think. The paelolythic
>diet seems a bit drastic and till I can find corroberation from a few
>sources am sitting this one out. I like my cereals/ bread/ etc.etc. too
>much for that.
>If the cs helped then can you please tell me what time frame it took.


*******As I said It was into the 4th week and then I started with die-off.
However, until that time I had been geting better each week.  This is
indeed hard to figure out at times.  I got very sick.  I think the die off
caused my sinus on left to get plugged and I couldn't keep it open with CS
or salt water or nutrabiotic.  Then I started having headaches which I
don't usually have and a cold left face, like I had to lie down and wrap
up. All my joints became inflamed and swollen.  I consented to a quinalone
antibx for the head and it started all the symptoms into remission.  Which
is indeed too strange and the only thing we can think is that I got toxic
and then septic.  This is the danger in dealing with this stuff and being
already compromised.  I would say I would have been fine had I gone slower
and not increased the dose after the 3rd week.  So there you have it what
to do and what not to do.  I think in the end I will be better, but right
now I am exhausted and tired from being in this particular predicament with
this particular pain for this long.
****************
>Specifically what frequencies did you find beneficial with the riffe
>machine. That to me is something that appeals to the "chicken " me. Don
>Tunney sure is a honey isn't he?

**********Yes, Don is a honey!!!  I ran all the frequencies Don is using
plus some other ones.  I used the R/B device everyday so I saw results
better and more pronounced and consistent.  Right now I am not using it and
I should be, but I have been too exhausted to be frustrated and I can't be
clear when I am sick like I have been.  I can't put up with anything
either.  Things that I would ordinarily overlook I address with vehemence
and sometimes that is good, but usually it is better for me to pray and
stay still until I have gotten over that particular part of this type of
thing..In truth probably I say what I mean without giving the other person
all the benefit of the doubt I usually would.  No patience at all.  this
time has been bad because I insisted upon doing something everyday to a
certain extent and I just got things all mixed up from one day to the next.
Today I am not in so much pain, more just tired all over so here I am
expressing myself.  this affects your brain and it is good for people to
know that!

For instance, I picked up my DMM which I have been using for a year and
looked at it and had no idea what it was about.  I read the book about it
and I couldn't remember that either.  I am not out of the woods yet and so
I'm not fiddling with electrical things.  This is the time I wish I could
wave a white flag and have someone come help me with this R/B device!
***********************
>Have arranged for a mitoxantrone course but want to give the cs a scouts
>try first.That is why I ask about the time frame********** Methotrexate
>will kill your immune system!!!!!!!!!

********I think you have to look at a long range thing with the CS and the
R/B together.  I think 6 mos to a year wouldn't be outside too much!
*****************
>Was in to get some pastoral counselling today and think that there was a
>bit of headway there. ie. the concept of spirit, another dimension when
>questioned about the after life, and grace. Sure is a long uphill battle
>for me to let go or should I say return to a faith that I can grasp
>intellectually. Don't know if I will ever  totally get there but who knows.

************* When I depended upon my intellect to get closer to God it
helped me in the understanding of intellectual things.  God is all Love, He
is all everything we are not!  That is how I turned to Him as a heart thing
that really got my spiriituality in gear.  Metanoia mind to heart in a
circle.  Until it gets to your heart it is only hard, after that it is only
simple and easy and like a sponge.  Everyone comes to God differently, some
have to crawl after time, some can walk right up and give Him a kiss.  He
on the other hand takes us just where we are.  He doens't care about stuff
we think is important.  Whether you let Him LOVe you is what is important
to Him.  Believing in His mercy is unfathomable
*************************************
>Any suggestions on the pain issue tylenol 3 don't come close to touching it
>and morphine doesn't do a thing for the nerve pain that I experience.
>Spasms, depression are also big issues that I have been attempting to deal
>with on a daily basis . Can't find anyone who will perscribe anything where
>there is theh slightest possibility of more siezures and if you read the
>adverse effects of the baclofin and most antidepressants it is there in
>black and white.

*******************
Recently, during this episode, I have also used #3.  We did it because of
ischemia(lack of blood supply) and it helped a little.  the other day--who
knows when now I decided to try a combination for pain that I had used in
the past for other things--the usual stuff.  so I did this":  I took one
T#3(which I have never had until two weeks ago) and 4 megazymes(digestive
enzymes on an empty stomach) 2 grape seed extract caps, 2 COQ10-100mgms
caps, 2 Ginseng caps 2 heaping tablespoons of chelated mini quick by
Twinlab minerals,2 pkges of EMERgen C by Alacer which is 4000mgms Vit C and
mineral in a fizzy drink that I can absorb.  I got into a hot bath with sea
salt in it.  soaked got out put on lots of clothes, and got into a warm
bed.  I fell to sleep listening to a soothing tape and woke up soaking wet
and free of pain. This is repeatable, so something to consider.  There are
reasons for each one--all very strong antioxidants--in my humble opinion
these counter the catecholamines elicited by the pain or the cycle of pain.
the heat gets it where it need to be.  I actually had some improvement in
the neuropathy with this, but it has to be repeated daily it would seem.
You didn't get sick over night.  Are you still living in the basement?

I am going to do that again today because I think it must be something I
need.  Also have you ever thought that with all your stuff you don't absorb
the medication?  I know I don't at times.  That is one reason for the
megazymes, the other is that is eats up trash in your system allowing stuff
like blood to get to places it should be  sort of like undoing a traffic
jam.

Hope this helps, it is the awful truth right now so hope anybody can
benefit from it.

Life is Fragile. Handle with Prayer
Susan



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