Hello Ruth,
I am going to try to start noticing if CS gives me more of a dry mouth
feeling. I've never noticed it doing so, but then I am so very dry I've
even been told I have Sjogren's Syndrome. My eyes get so dry I've had
keratitis, am at high risk of corneal ulcers, and always have some of
what the eye doc calls "dry spots" on my corneas which would quickly
turn into keratitis again if I get careless about my eye drops. I drink
liquids continuously all day everyday, if I don't I just can't stand the
dry mouth/throat, which makes me sort of feel like I'm going to choke.
Yes, I've had IBS, spastic colon, (whatever the latest name for it
is--its all the same thing to me) for over 30 years. But I don't have
anything like the problems you have, at least nothing like that has ever
showed up in any imaging studies. What I had was constant diarrhea,
which is also very life limiting. You can't go much of anywhere when you
might have sudden explosive diarrhea without warning. In my case a very
low carb diet almost cures it. I say 'almost' because I still eat too
much carbs (mostly bread and other grain products) at times, because
I've never lost my cravings for them. I'm finding that grains,
particularly wheat are major triggers for me. Though I don't believe I
have celiac maybe there are varying degrees even of gluten sensitivity.
If you won't have to have a colostomy, in your place I would probably go
for the surgery. I hate to say that, as I myself have had enough surgery
to last me several lifetimes, and have determined not to have any more,
but then I'm not suffering like you are. Not all surgery is bad, and it
sounds like the surgery you are contemplating might help a great deal.
But.....have you asked what your bowel function will be like after the
surgery has healed? Will you just change to constant diarrhea? My only
real advice other than drinking 2 liters of CS per day, is to be sure
you get the real, unvarnished, total truth about the possible
consequences (good and bad)of the surgery. Doctors and surgeons seem to
like to give only the best prognosis, not the worst or mid-case ones.
Once I went for an in office surgical procedure, which I was told was no
big deal. I read the last permission I had to sign, and got up and left
without having the procedure. The possible adverse effects of the
procedure were no joke and were much worse than the condition the docs
wanted to cut on me for. Not to be scary about it, but my advice is to
be sure you really understand the worst case possibilities. I have
chosen to have surgeries when I felt the risks were truly worth it. This
sounds to me like where you are at with your condition. As I said, in
your place, I'd probably go for the surgery.
My mother was told that after her colostomy surgery (rectal cancer) she
would never be constipated again, but that turned out not to be true.
Might have been because she refused to follow the diet recommendations
they gave her (no popcorn is the only thing I recall from her list), and
she refused to drink enough water as it was hard for her to get around
to get to the bathroom and since she had become somewhat incontinent and
also refused to wear protective panty things, she handled it by simply
not drinking. She ended up in the ER a few times with severe illness
from dehydration. Because the surgery she had removed all of the part of
the colon that helps neutralize and de-odorize feces, her output was
godawful for stench. I literally could not bear it at times. Plus she
had a lot of gas so sometimes her colostomy bag would actually "blow
off" its attachment. The fecal matter from higher up in the intestines
is also extremely acidic (I guess) because it burns skin, too, in
addition to its other attributes.
A lot of that may have just been my mother, as I have a little old lady
friend now who has a colostomy who does not suffer the stinks etc that
my mother did, nor does my friend become constipated, etc. Or maybe it
is because of what portion of the bowel was removed, I don't know enough
to know. My little friend (now 92) had the colostomy because she had
suffered a total bowel blockage with bowel death, and was found
unconscious in her apartment, near death. They were going to reverse it
at some point, but because of her age at the time (late 80s) the doctor
told her she might not survive the second operation.
Is there any chance you could go into the surgery expecting the bowel to
be attached to the rectum and still come out with a colostomy? If there
is any chance of that, be sure that is a consequence you can accept.
sorry not to have more to offer,
sol
ruth strackbein wrote:
Hi, Sol, I am not using DMSO and get this peculiar feeling in my mouth
and throat every time I use CS. I do have dry mouth this morning, but
am scheduled for a nuclear stress test of my heart at noon today to
see if my heart is okay for a possible partial removal of my large
bowel. This bowel is a great deal longer than normal and the X-ray
series show that it is sort of twisted back on itself, transverse
colon hangs way low, the upper "corner" that usually looks to be
higher in the abdomen than the other "curve" is doubled back on
itself. It has showed up that way back in the late 70's, too. The
extra long colon was first detected in 1954 when alot more contrast
medium was required to complete an x-ray. At present I seem only to be
able to pass stool by using an enema and/or stool softener or dulcomax
(spelling?) . And I have severe burning almost all the time in the
right side of my abdomen. I do not use the bowel medicines every day.
Usually a two -three cup plain warm water enema. If my whole abdomen
felt as good as my left side, I would be just fine! Have recently had
a transit time, food residue can take as long as 7-8 days to exit my
body. Recommendation is to remove about 90% of my large colon and
hitch the rest to my rectum. I am contemplating having this done by a
surgeon who specializes in colon, rectal surgery and does no other
kind. I have tried various alternative therapies without success, have
added some of the suggested nutrition changes like garlic caps for
inulin, etc. that have been suggested on eskimo. Trouble is, I feel I
can't try all of the suggestions at once. Finally I have to have money
left for food, itself. There are some food groups I can't tolerate. Am
lactose intolerant, Don't get along with the cabbage family,
potato-tomato family, citrus fruits. Actually it is very hard to
figure out what to have to eat. Even my chiropractor says that there
comes a time when the regular Docs and the Surgeons need to be called
in. Also I have lost a great deal of weight over the past year or so.
From around 130 to 120 to yesterday's weight of 111 since 2005-2006. I
know from your posts that you have alot of eating troubles, too. Would
value your opinion of all this. Ruth at ruthstrackb...@hotmail.com
From Ruth Strackbein
From: sol <sol...@sweetwaterhsa.com>
Reply-To: silver-list@eskimo.com
To: silver-list@eskimo.com
Subject: Re: CS>Sore throat
Date: Tue, 22 May 2007 20:47:45 -0600
I only get the dry mouth/throat if I'm using CS/DMSO orally.
sol
ruth strackbein wrote:
Hi, Jason, I don't exactly get a sore throat, but it does feel dry
in a strange sort of way, don't know just how to describe it. It
isn't like being thirsty, either. Ruth I tend not to use CS as much
on this account.
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